Carbohydrates and lupus
Question:
That was very interesting George, thanks:) catherine George Parton <gepar…@earthlink.net> wrote in message news:3A464CA3.196B2E46@earthlink.net… At the location below you will find the information I have been trying to share. I want to thank a nice lady named Linda for editing and posting it for me. I want to point out that in addition to feeling better I have also benefited by losing 70 pounds on this way of eating. I know it doesn’t fit into the typical medical slant, but I’m really glad! If I listened to the regular medical slant I wouldn’t feel as good as I do and would still be laying in bed in a stupor feeling sorry for myself…… The author of this material is a medical doctor and his name and address are included with the material. George http://www.jaxworld.com/lowcarb/lupus.html Lupus Erythematosus
Response:
<<He has an obvious autoimmune reaction with C3 being 1280, with normal ranging 88-201. >> In autoimmune disease, complements are generally remarkable for being LOW. The lower the complement, the more active the disease. A low C3 is often associated with kidney disease in lupus. <<His anti DNA is 1-20. Normal is 1-10. This is consistent with systemic lupus erythematosus. Furthermore, these ANA antibodies which is specific for lupus erythematosus is 2600, which is quite abnormal. Thus, there is no doubt that he has lupus erythematosus.>> It’s the anti-dsDNA that is very specific for lupus. The result he cites, 1-20, might be positive, but it’s very low and might be questioned as being a possible false positive. At least this is what I’ve read before about this. My daughter’s anti-dsDNA titer was 80, which they considered well within the abnormal range, though still considered a low titer even at that. As for the ANA result cited. It’s true that it’s very abnormal; however, ANA is NOT specific for lupus. It very likely would represent real rheumatic disease at that level, but it wouldn’t be clear from that alone that lupus is the problem. Personally, I have doubts that such a low anti-dsDNA titer would be enough to cinch a diagnosis unless there were other criteria to base it on. In short, I’m not so sure he’s talking about a very clear cut case of lupus as claimed. In fact, any of you who have been to rheumatologists again and again trying to get diagnosed, know that a lupus diagnosis is never this easy. <<… gluten is the most likely food substance to continue evoking symptoms. Common physical reactions to gluten include gastrointestinal problems such as celiac disease and Crohn’s disease (gluten enteropathy); jerking muscles (Tourette’s Syndrome); and headache. >> Granted gluten can cause some severe symptoms in people allergic or intolerant to it, but it does NOT cause Tourette Syndrome. My son has Tourette Syndrome and I know a few things about this disease. It very clearly has a genetic cause, though there can be environmental triggers that either initiate or exacerbate symptoms. There are many other movement disorders besides Tourettes, some of which can be caused secondarily by other conditions. I’m not convinced that the individual who wrote the article is a lupus expert. Therefore, before deciding that what he’s saying is gospel truth, it’s a good idea to check other reliable sources. Also, never initiate major dietary changes without checking with your doctor first. Sandra
Response:
- Hide quoted text — Show quoted text -J Wootton wrote: > George Parton wrote: > > Sandra, > > I am not a doctor. I have seen three rheumatologists and am fortunate enough to > > have two currently. All three diagnosed me with lupus. I tested 2560 on > > something and have been retested regularly for 6 years. I would love to NOT have > > lupus. I really don’t pretend to understand such things but thank goodness I have > > people that do. I enjoy the results of that association. > > The doctor who wrote this information is available to correspond with you or > > anybody on this subject. I understand you may have some medical association which > > gives some special insight but please do not be so bold as to dispute a man’s > > credentials that you don’t even know! If you question his credentials or his > > work, why don’t you contact him? Maybe you can explain to him his error. > > As for the caveat to consult your medical professional before making any changes, > > I would point out that is exactly what I have done, and with great results. I > > would hope that anybody would, and I even further hope that the medical > > professional contacted would be objective enough to consider all avenues. > > This Dr. Philpott has published many works on many subjects. I think his books or > > pamphlets are available by mail. I was referred to him by one of my doctors but I > > think he has written info available to anyone. > > His address: > > William H. Philpott, M.D. > > 17171 S.E. 29th > > Choctaw, OK. 73020 > > 405/390-1444 Fax 405/390-2968 > > I want to point out that the information on the web site is a condensation of the > > reams of info sent to my doctor and I. It cannot be considered complete but > > hopefully someone may benefit from learning something new about our terrible > > disease. > Hi George, > I have great admiration for Dr. Philpott. Acquired his book "Brain Allergies" (1980) > (contributions by Linus Pauling and Pangborn etc) and having volunteered for many > years at a psychiatric institution and watched closely others, who have psychiatric > disorders, I think it’s a darned shame that conventional medicine does not first try > Dr. Philpott’s approach (before trying the short-cut approach of medications). > That being said, it’s a complex "read" (a barrier in itself) and not all patients can > self-manage his recommendations due to socio-economic factors. > In some ways it’s an unachievable ideal (in totality). For instance, he mentions an > allergy to hydrocarbons (in the book). These are pervasive in our air so a person can > contol their own environment (home) but have little control if they are to step out of > their environment into the real world especially at work where workers have little say > and spend at least one-third of their day. > Another "for instance".. > http://www.alternativementalhealth.com/articles/causesofschizophrenia… > He mentions thyroid and severe stress. I know for a fact (now) that stress played a > major role in my thyroid diagnosis 25 years ago but I had little control over that > (being caught up in the stressful issues of keeping a roof over one’s head and trying > to be "all things to all people" (job, parent etc etc). > I do believe that much improvement (in many illnesses) can be achieved (even > prevented?) if followed even to 90% of the recommendations. (under supervision and > understanding from the physician(s) of course. There again lies another problem where > a specialist might understand and agree but the family physician might think it’s all > nonsense ..or vice versa… or doesn’t have the time to help the patient through this > (especially if multiple illnesses are involved). Not to mention having to read all > the labels on foods that one buys or buying from specialized sources. > And then it all starts with the beginning….as a child and trying to keep the child > on the correct path as they age and make their own decisions. > FYI and FWIW > J
Thank you ! I was starting to feel like an orphan. : ^) I do subscribe to Dr. Philpott’s other recommendations with great success. Yes it can be a bit spendy but I consider it to be a bargain compared to being a pharmaceutical dump for the less informed doctors. It is difficult to be so grateful without seeming to be a shill. Thanks again for your post. George
Response:
- Hide quoted text — Show quoted text -George Parton wrote: > Sandra, > I am not a doctor. I have seen three rheumatologists and am fortunate enough to > have two currently. All three diagnosed me with lupus. I tested 2560 on > something and have been retested regularly for 6 years. I would love to NOT have > lupus. I really don’t pretend to understand such things but thank goodness I have > people that do. I enjoy the results of that association. > The doctor who wrote this information is available to correspond with you or > anybody on this subject. I understand you may have some medical association which > gives some special insight but please do not be so bold as to dispute a man’s > credentials that you don’t even know! If you question his credentials or his > work, why don’t you contact him? Maybe you can explain to him his error. > As for the caveat to consult your medical professional before making any changes, > I would point out that is exactly what I have done, and with great results. I > would hope that anybody would, and I even further hope that the medical > professional contacted would be objective enough to consider all avenues. > This Dr. Philpott has published many works on many subjects. I think his books or > pamphlets are available by mail. I was referred to him by one of my doctors but I > think he has written info available to anyone. > His address: > William H. Philpott, M.D. > 17171 S.E. 29th > Choctaw, OK. 73020 > 405/390-1444 Fax 405/390-2968 > I want to point out that the information on the web site is a condensation of the > reams of info sent to my doctor and I. It cannot be considered complete but > hopefully someone may benefit from learning something new about our terrible > disease.
Hi George, I have great admiration for Dr. Philpott. Acquired his book "Brain Allergies" (1980) (contributions by Linus Pauling and Pangborn etc) and having volunteered for many years at a psychiatric institution and watched closely others, who have psychiatric disorders, I think it’s a darned shame that conventional medicine does not first try Dr. Philpott’s approach (before trying the short-cut approach of medications). That being said, it’s a complex "read" (a barrier in itself) and not all patients can self-manage his recommendations due to socio-economic factors. In some ways it’s an unachievable ideal (in totality). For instance, he mentions an allergy to hydrocarbons (in the book). These are pervasive in our air so a person can contol their own environment (home) but have little control if they are to step out of their environment into the real world especially at work where workers have little say and spend at least one-third of their day. Another "for instance".. http://www.alternativementalhealth.com/articles/causesofschizophrenia… He mentions thyroid and severe stress. I know for a fact (now) that stress played a major role in my thyroid diagnosis 25 years ago but I had little control over that (being caught up in the stressful issues of keeping a roof over one’s head and trying to be "all things to all people" (job, parent etc etc). I do believe that much improvement (in many illnesses) can be achieved (even prevented?) if followed even to 90% of the recommendations. (under supervision and understanding from the physician(s) of course. There again lies another problem where a specialist might understand and agree but the family physician might think it’s all nonsense ..or vice versa… or doesn’t have the time to help the patient through this (especially if multiple illnesses are involved). Not to mention having to read all the labels on foods that one buys or buying from specialized sources. And then it all starts with the beginning….as a child and trying to keep the child on the correct path as they age and make their own decisions. FYI and FWIW J
Response:
<< I have seen three rheumatologists and am fortunate enough to have two currently. All three diagnosed me with lupus. I tested 2560 on something and have been retested regularly for 6 years. >> Most likely that’s your ANA titer…kind of on the high side, I’d say. I most definitely wouldn’t think to dispute your diagnosis. I will say though that the diagnosis would have been made not just on the basis of your high ANA, since ANA itself is not specific for lupus, but on a variety of test results and symptoms. I didn’t realize the letter you posted from from your own doctor. That point wasn’t clear. Still, most of my friends are physicians so I have to tell you that I KNOW they are not infallible. Even the best of them make mistakes. Again, I’m not saying they are mistaken in your diagnosis. I’m saying that there were mistakes in the letter, the link to which you posted. I simply pointed out those mistakes. BTW, I’m so glad you did consult with your physician before making big dietary changes. Lupus can be a tricky disease to manage. This is usually best done with the help and direction of your doctor. Sandra
Response:
George, Wonderful that you’ve been helped by this guy’s suggestions. I have to second Sandra’s questions about his authority, though, given that his posted information is not accurate. I can’t vouch for all the inconsistencies Sandra found, but I can back her up on the ANA test’s *not* being specific for lupus. It seems very odd that an "expert" in the field would fail to know such basic information. Since you’re a satisfied customer of the guy, would it make more sense for *you* to point out that his inaccurate information is discouraging potential patients from examining his ideas more closely? In article <3A46E6A1.80B6C…@earthlink.net>, George Parton <gepar…@earthlink.net> wrote: > Sandra, > I am not a doctor. I have seen three rheumatologists and am fortunate enough to > have two currently. All three diagnosed me with lupus. I tested 2560 on > something and have been retested regularly for 6 years. I would love to NOT have > lupus. I really don’t pretend to understand such things but thank goodness I have > people that do. I enjoy the results of that association. > The doctor who wrote this information is available to correspond with you or > anybody on this subject. I understand you may have some
medical association which – Hide quoted text — Show quoted text -> gives some special insight but please do not be so bold as to dispute a man’s > credentials that you don’t even know! If you question his credentials or his > work, why don’t you contact him? Maybe you can explain to him his error. > As for the caveat to consult your medical professional before making any changes, > I would point out that is exactly what I have done, and with great results. I > would hope that anybody would, and I even further hope that the medical > professional contacted would be objective enough to consider all avenues. > This Dr. Philpott has published many works on many subjects. I think his books or > pamphlets are available by mail. I was referred to him by one of my doctors but I > think he has written info available to anyone. > His address: > William H. Philpott, M.D. > 17171 S.E. 29th > Choctaw, OK. 73020 > 405/390-1444 Fax 405/390-2968 > I want to point out that the information on the web site is a condensation of the > reams of info sent to my doctor and I. It cannot be considered complete but > hopefully someone may benefit from learning something new about our terrible > disease. > I also want to stress that I am only a satisfied patient of this man and have no > other association with him. I am just glad that I was ignorant enough to heed > what he had to say because it has helped me immensely. > George > SCroyle909 wrote: > > <<He has an obvious autoimmune reaction with C3 being
1280, with normal ranging > > 88-201. >> > > In autoimmune disease, complements are generally
remarkable for being LOW. The > > lower the complement, the more active the disease. A low C3 is often > > associated with kidney disease in lupus. > > <<His anti DNA is 1-20. Normal is 1-10. > > This is consistent with systemic lupus erythematosus.
Furthermore, these ANA > > antibodies which is specific for lupus erythematosus is 2600, which is quite > > abnormal. Thus, there is no doubt that he has lupus erythematosus.>> > > It’s the anti-dsDNA that is very specific for lupus. The result he cites, > > 1-20, might be positive, but it’s very low and might be
questioned as being a – Hide quoted text — Show quoted text -> > possible false positive. At least this is what I’ve read before about this. > > My daughter’s anti-dsDNA titer was 80, which they considered well within the > > abnormal range, though still considered a low titer even at that. As for the > > ANA result cited. It’s true that it’s very abnormal; however, ANA is NOT > > specific for lupus. It very likely would represent real rheumatic disease at > > that level, but it wouldn’t be clear from that alone that lupus is the problem. > > Personally, I have doubts that such a low anti-dsDNA titer would be enough to > > cinch a diagnosis unless there were other criteria to base it on. In short, > > I’m not so sure he’s talking about a very clear cut case of lupus as claimed. > > In fact, any of you who have been to rheumatologists again and again trying to > > get diagnosed, know that a lupus diagnosis is never this easy. > > <<… gluten is the most likely food substance to continue evoking symptoms. > > Common physical reactions to gluten include gastrointestinal problems such as > > celiac disease and Crohn’s disease (gluten enteropathy); jerking muscles > > (Tourette’s Syndrome); and headache. >> > > Granted gluten can cause some severe symptoms in people
allergic or intolerant – Hide quoted text — Show quoted text -> > to it, but it does NOT cause Tourette Syndrome. My son has Tourette Syndrome > > and I know a few things about this disease. It very clearly has a genetic > > cause, though there can be environmental triggers that either initiate or > > exacerbate symptoms. There are many other movement disorders besides > > Tourettes, some of which can be caused secondarily by other conditions. > > I’m not convinced that the individual who wrote the article is a lupus expert. > > Therefore, before deciding that what he’s saying is gospel truth, it’s a good > > idea to check other reliable sources. Also, never initiate major dietary > > changes without checking with your doctor first. > > Sandra
– "We are confronted by insurmountable opportunities." Sent via Deja.com http://www.deja.com/
Response:
Sandra, I am not a doctor. I have seen three rheumatologists and am fortunate enough to have two currently. All three diagnosed me with lupus. I tested 2560 on something and have been retested regularly for 6 years. I would love to NOT have lupus. I really don’t pretend to understand such things but thank goodness I have people that do. I enjoy the results of that association. The doctor who wrote this information is available to correspond with you or anybody on this subject. I understand you may have some medical association which gives some special insight but please do not be so bold as to dispute a man’s credentials that you don’t even know! If you question his credentials or his work, why don’t you contact him? Maybe you can explain to him his error. As for the caveat to consult your medical professional before making any changes, I would point out that is exactly what I have done, and with great results. I would hope that anybody would, and I even further hope that the medical professional contacted would be objective enough to consider all avenues. This Dr. Philpott has published many works on many subjects. I think his books or pamphlets are available by mail. I was referred to him by one of my doctors but I think he has written info available to anyone. His address: William H. Philpott, M.D. 17171 S.E. 29th Choctaw, OK. 73020 405/390-1444 Fax 405/390-2968 I want to point out that the information on the web site is a condensation of the reams of info sent to my doctor and I. It cannot be considered complete but hopefully someone may benefit from learning something new about our terrible disease. I also want to stress that I am only a satisfied patient of this man and have no other association with him. I am just glad that I was ignorant enough to heed what he had to say because it has helped me immensely. George – Hide quoted text — Show quoted text -SCroyle909 wrote: > <<He has an obvious autoimmune reaction with C3 being 1280, with normal ranging > 88-201. >> > In autoimmune disease, complements are generally remarkable for being LOW. The > lower the complement, the more active the disease. A low C3 is often > associated with kidney disease in lupus. > <<His anti DNA is 1-20. Normal is 1-10. > This is consistent with systemic lupus erythematosus. Furthermore, these ANA > antibodies which is specific for lupus erythematosus is 2600, which is quite > abnormal. Thus, there is no doubt that he has lupus erythematosus.>> > It’s the anti-dsDNA that is very specific for lupus. The result he cites, > 1-20, might be positive, but it’s very low and might be questioned as being a > possible false positive. At least this is what I’ve read before about this. > My daughter’s anti-dsDNA titer was 80, which they considered well within the > abnormal range, though still considered a low titer even at that. As for the > ANA result cited. It’s true that it’s very abnormal; however, ANA is NOT > specific for lupus. It very likely would represent real rheumatic disease at > that level, but it wouldn’t be clear from that alone that lupus is the problem. > Personally, I have doubts that such a low anti-dsDNA titer would be enough to > cinch a diagnosis unless there were other criteria to base it on. In short, > I’m not so sure he’s talking about a very clear cut case of lupus as claimed. > In fact, any of you who have been to rheumatologists again and again trying to > get diagnosed, know that a lupus diagnosis is never this easy. > <<… gluten is the most likely food substance to continue evoking symptoms. > Common physical reactions to gluten include gastrointestinal problems such as > celiac disease and Crohn’s disease (gluten enteropathy); jerking muscles > (Tourette’s Syndrome); and headache. >> > Granted gluten can cause some severe symptoms in people allergic or intolerant > to it, but it does NOT cause Tourette Syndrome. My son has Tourette Syndrome > and I know a few things about this disease. It very clearly has a genetic > cause, though there can be environmental triggers that either initiate or > exacerbate symptoms. There are many other movement disorders besides > Tourettes, some of which can be caused secondarily by other conditions. > I’m not convinced that the individual who wrote the article is a lupus expert. > Therefore, before deciding that what he’s saying is gospel truth, it’s a good > idea to check other reliable sources. Also, never initiate major dietary > changes without checking with your doctor first. > Sandra
Response:
At the location below you will find the information I have been trying to share. I want to thank a nice lady named Linda for editing and posting it for me. I want to point out that in addition to feeling better I have also benefited by losing 70 pounds on this way of eating. I know it doesn’t fit into the typical medical slant, but I’m really glad! If I listened to the regular medical slant I wouldn’t feel as good as I do and would still be laying in bed in a stupor feeling sorry for myself…… The author of this material is a medical doctor and his name and address are included with the material. George http://www.jaxworld.com/lowcarb/lupus.html Lupus Erythematosus
