Vitamin Therapy for TS?
Question:
Anyone know of any vitamins or suppliments that have positive effects on reducing TS?
Response:
an514…@anon.penet.fi (RadioMan) wrote: >Anyone know of any vitamins or suppliments that have positive effects on >reducing TS?
Youre on, Bonnie!!!!
Response:
an514…@anon.penet.fi (RadioMan) wrote: >Anyone know of any vitamins or suppliments that have positive effects on >reducing TS?
I heard form an alternative ‘healer’ that he things that vit E is considered as important for TS *jaap*
Response:
In article <4ldqpp$…@altrade.nijmegen.inter.nl.net>, J.Vhen…@net.HCC.nl (Jaap van Hennik) writes: >I heard form an alternative ‘healer’ that he things that vit E is >considered as important for TS
I posted most of the following from my theory (in progress) under another thread, but I thought that it would be appropriate to repost it here: In allergy and other inflammatory processes, such as rheumatoid arthritis and infections, white cells release hydrogen peroxide, which initiates lipid peroxidation and damages bacteria and viruses, joints (in RA), and other lipids that get in the way (brain cells?). When oxidative stress persists for a prolonged period of time, we get chronic degenerative disease. Our antioxidants and cofactors (Vitamin E, C, beta carotene, selenium, copper (at normal levels), manganese, and zinc) help our enzymes such as glutathione reductase, catalase, peroxidase, and superoxide dismutase to protect our cells from such oxidative processes. There has been speculation about free radicals forming in monoamine metabolism with chronic neuroleptic treatment. None of the studies could verify that vitamin E works by scavenging these free radicals, but lipid peroxidation was indicated by the high plasma levels of thiobarbituric acid reactive substances (TBARS) in TD patients. The higher the TBARS the worse the TD was. Vitamin E treatment significantly improved the TD, but the levels of TBARS never changed. (Peet M. Laugharne J. Rangarajan N. Reynolds GP. "Tardive dyskinesia, lipid peroxidation, and sustained amelioration with vitamin E treatment." _International Clinical Psychopharmacology_. 8(3):151-3, 1993 Fall.) Besides being an antioxidant, Vitamin E blocks the formation of Prostaglandin E2 (PGE2), which can cause inflammation. Vitamins E, and B6 along with magnesium has disappeared from our food supply as a result of refining processes. A combination of the cofactors needed for the anti-inflammatory prostaglandins, PGE1 and PGE3, are Vitamin C, B6, B3, zinc, magnesium. Vitamin E, which blocks the inflammatory prostaglandin, PGE2, can relieve some symptoms of TS, IMO. Vitamin A, beta carotene and biotin also help because they are cofactors of essential fatty acid (EFA) metabolism. EFA’s are what form prostaglandins. Exorphins formed in the intestine from digestion of wheat, milk, etc. (which are not detoxified in the liver, due to B6 deficiency, etc., and enter the brain), and other opioids block the formation of PGE1 also. This starts a new investigation into endorphins, concerning their exorphin agonists and antagonists; and how this relates to the TS spectrum disorders. Bonnie Grimaldi, BSMT (ASCP)
Response:
In article <4l682r$1…@usenetp1.news.prodigy.com>, BWHM…@prodigy.com (Kathryn Taubert) writes: >an514…@anon.penet.fi (RadioMan) wrote: >>Anyone know of any vitamins or suppliments that have positive effects >on >>reducing TS? >Youre on, Bonnie!!!!
Thanks for the intro, KAT! RadioMan, if you would like my list of supplements (vitamins and minerals) that has helped my son with TS greatly, please e-mail me with your request. I also have a very long theory (in progress) that goes along with the list to explain why it works. It is too long to post to the newsgroup. Keep in touch! Bonnie Grimaldi in Columbus, Ohio
Response:
RadioMan (an514…@anon.penet.fi) wrote:
: Anyone know of any vitamins or suppliments that have positive effects on : reducing TS? Yes. Vitamin B and Choline will have a noticable positive impact. I suggest you purchase a "B Complex" with the whole Vitamin B series, and also a choline suppliment. You will definently notice a decrease in your tics. –Jared — — Jared P. Schutz –Director, American Information Systems, Inc. — jpsch…@ais.net –980 N. Michigan, Suite 875 –Chicago, IL 60611 — "O brave new world…" –(312)255-8500 — William Shakespeare –(303)440-1116 (day) (personal)
Response:
In article <4lgeb0$…@news.ais.net>, jpsch…@eagle.ais.net (Jared Polis Schutz) writes: >Yes. Vitamin B and Choline will have a noticable positive impact. >I suggest you purchase a "B Complex" with the whole Vitamin B series, and >also a choline suppliment. You will definently notice a decrease in your >tics. >–Jared
Dear Jared, These supplements that you mention are in the regimen that I give Jason. There are more supplements that complement these, making them work better. They kept Jason from being taken out of class 3 times a day for being disruptive to NEVER being taken out (since December, ‘95 when he started the supplements). He has even made it through the waxing of his spring tics without incident. It is important to be responsible in the doses that is taken, as you probably know! My list of supplements are: This is how I started out with Jason: Make sure that the vitamins are naturally coated, and that no sugar, preservatives, artificial colors or flavors, chemical solvents, or specific things that you may be allergic to are on the label. In the morning: 1. 1200 mg lecithin (in gel capsule) 2. Vitamin B complex tablet (B100 timed release-11 B factors) For under 8 yrs use 50 mg of each B factor – "B 50 timed release) -Vit B1 (thiamine) 100 mg -Vit B2 (riboflavin) 100 mg -Vit B6 (pyridoxine HCl) 100 mg -Vit B12 (Cyanocobalamin) 100 mg -Biotin 100 mg -Pantothenic Acid 100 mg -Folic Acid 400 mg -Niacinamide 100 mg -in a base of PABA, inositol, choline 3. Vitamin B3 (niacin) tablet 100 mg (2 1/2) *** use niacinamide if sensitive to niacin (see below in description of reaction to niacin) You may start at 50 mg and work up to 250 mg. Do not exceed 500 mg/day, niacin + niacinamide in the B complex, unless under the physician’s supervision. Just before bed: 1. Chelated Calcium-Magnesium tablets 780 mg calcium 468 mg magnesium (6 tablets of Schiff brand provides this) 2. Antioxidants softgel tablet -Beta Carotene 10,000 I.U. -Vitamin E 200 I.U. -Vitamin C 250 mg. -Zinc 7.5 mg. -Selenium 15 mcg. -Copper 1mg. -Manganese 1.5 mg *** The PDR states that niacin shouldn’t be used while on high blood pressure medicine. Also it is normal to have a flush to the skin when it is first started. Any reaction more than that, such as hives, etc. should be a reason to discontinue niacin (vitamin B3) and try niacinamide instead (in addition to the niacinamide in the B complex) in the same dose. Bonnie Grimaldi in Columbus, Ohio
Response:
On 2 May 1996 06:16:40 GMT, you wrote: >Choline is a neurotransmitter. It is the nervous system’s way of getting >messages to muscle cells that make them fire. Thus the relation to >Tourette’s is obvious, but I have no idea why Choline alleviates the >symptoms.
The relationship is not that obvious. Choline would only help transmit the impulses to the muscles cells after the impulse originates. Lack of choline would lead to a sort of fatigue feeling, since your muscles don’t respond as well or easily to your will. But it does not logically follow that choline is in any way involved with the source of that minority of "movement messages" that we call tics. All this I say off the cuff. Maybe somebody has some actual facts? ,_ /_) /| / / i e t e r / |/ a g e l The Platinum Puma
Response:
What is choline? Darcie
Response:
Darcie Girmus (gg44…@ltec.net) wrote:
: What is choline? Darcie Choline is a neurotransmitter. It is the nervous system’s way of getting messages to muscle cells that make them fire. Thus the relation to Tourette’s is obvious, but I have no idea why Choline alleviates the symptoms. –Jared — — Jared P. Schutz –Director, American Information Systems, Inc. — jpsch…@ais.net –980 N. Michigan, Suite 875 –Chicago, IL 60611 — "O brave new world…" –(312)255-8500 — William Shakespeare –(303)440-1116 (day) (personal)
Response:
Hi Bonnie, The Parent Advisory Board of Children’s Hospital Of Phila.’s Pediatric Neuropsychiatric Center met yesterday. I distributed copies of the materials you sent me including your description of the vitamin regimen you have used successfully with Jason. I asked that a study be conducted between allergies and TS. I was told they would look into it but that a study such as this would require funding. They have gotten at least two new grants from pharmaceutical companies for the purpose of medication studies. They would likely look for a foundation grant to fund something like this, but it will not be easy to obtain. I’ll keep you posted. In the interim, we have just completed getting our son off of tenex and will try some B6 as well as other vitamins mentioned in your memo in about 2 weeks (give some time for the tenex to leave his system). Regards, Pete Busy people are Happy!
Response:
I asked that a study be conducted >between allergies and TS. I was told they would look into it but that a >study such as this would require funding
Companies/Foundations fund what they have a vested interest in….there are some pretty "big" producers of vitamins "out there"……..and lots of Foundations with funds available to researchers engaged in efforts to meet their particular objectives. The money is there……it just takes time/patience/and a bit of creativity to find it. Not to mention INTEREST. The idea is a good one. The problem may be with the institution itself. The money that’s easier to come by is usually the money that’s sought first. And it’s sought with the vested interest in mind of those involved in distributing it. Wonder what "Twin Labs" would have to say about Bonnie’s theory? KAT in CT
Response:
In a message dated 96-04-23 22:16:27 EDT, you write: << Hi Bonnie, The Parent Advisory Board of Children’s Hospital Of Phila.’s Pediatric Neuropsychiatric Center met yesterday. I distributed copies of the materials you sent me including your description of the vitamin regimen you have used successfully with Jason. I asked that a study be conducted between allergies and TS. I was told they would look into it but that a study such as this would require funding. They have gotten at least two new grants from pharmaceutical companies for the purpose of medication studies. They would likely look for a foundation grant to fund something like this, but it will not be easy to obtain. I’ll keep you posted. In the interim, we have just completed getting our son off of tenex and will try some B6 as well as other vitamins mentioned in your memo in about 2 weeks (give some time for the tenex to leave his system). Regards, Pete Busy people are Happy! >> Dear Pete, Wow! I am grateful for your help. They could apply for a TSA Research Grant. To apply, they can contact the website: http://neuro-www2.mgh.harvard.edu/TSA/tsamain.html I have checked this out, but maybe you might also want to make sure that my URL works! You are a gem. Keep in touch about your son! Bonnie
