Category: Tourette Syndrome

November 22, 1963

Question:

– Hide quoted text — Show quoted text – As for the eyelash pulling, it was just another way of relieving an itch. It is called Trichotillomania. It never was noticed because I just pulled out a few eye lashes at one time. I actually got compliments from people saying that I had such "nice, long eyelashes" when they grew back. I still suffer from Trichotillomania. My hair is so short now that I can’t pull it out but I still pull my eyelashes and eyebrows. I don’t do it enough that others notice it. Lately I haven’t been doing so great and wished my hair wasn’t so short. For those who know firsthand, pulling your own hair can give so much comfort. Two Dr. visits ago I showed him my hand where there were a series of bite marks I had done while in the waiting room. Hard enough to make marks that last for hours, but not drawing blood. I can’t describe how good the pain feels. Focusing on the pain allows a persons anxiety and other bad/ruminating thoughts to sit in the background for a little while. So in pain there is peace. Tony… about ready to chew my fucking arm off. I need to escape somehow before I crumble. — The charter is available at:http://readystump.algebra.com/~asapm

Tony, FYI, I just wanted to let you and the others know this.  Information that you place on the internet is not always as private as you would like it to be.  I belong to a different google group where I have posted some sensitive personal information regarding anxiety and some other disorders.  There is a person who frequents the group who is very distructive and Obsessive Compulsive who knows how to attach your posts to your personal name.  She then lists this so that when your name is googled, there is a bunch of junk that she posted that is your personal information.  It doesn’t take a rocket scientist to know how to find my first and last name.  Several months ago, a woman who I was going to date googled my name and there was a bunch of private stuff that I had posted on another site.  There is some information that I would not have shared until I would have gotten to know her.  We are fortunate that we have some good people protecting your interests and the interests of this group. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

– Hide quoted text — Show quoted text – As for the eyelash pulling, it was just another way of relieving an itch. It is called Trichotillomania. It never was noticed because I just pulled out a few eye lashes at one time. I actually got compliments from people saying that I had such "nice, long eyelashes" when they grew back. I still suffer from Trichotillomania. My hair is so short now that I can’t pull it out but I still pull my eyelashes and eyebrows. I don’t do it enough that others notice it. Lately I haven’t been doing so great and wished my hair wasn’t so short. For those who know firsthand, pulling your own hair can give so much comfort. Two Dr. visits ago I showed him my hand where there were a series of bite marks I had done while in the waiting room. Hard enough to make marks that last for hours, but not drawing blood. I can’t describe how good the pain feels. Focusing on the pain allows a persons anxiety and other bad/ruminating thoughts to sit in the background for a little while. So in pain there is peace. Tony… about ready to chew my fucking arm off. I need to escape somehow before I crumble. — The charter is available at:http://readystump.algebra.com/~asapm

I remarked once to a woman who had a extruded bite mark on her knuckle where she was biteing her knuckle – it looked like a large wart.   I remember one guy in third grade who had Trichotillomania.  He had a hugh patch of hair that he had pulled out in the front of his scalp. I still have a third grade picture that shows him with a brush cut and a large bald spot.  There is an interesting book called "Tourette Syndrome and Human Behavior" by Dr. David Cummings that shows pictures of everything that I described in this thread.  There are people who have some serious bite marks on the inside of their cheeks.  This is something that a dentist will notice.  all again for stress relief. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

I just recently watched a movie that was supposed to be released at the end of 1963.  It was the Manchurian Candidate.  It involved the assination of a Senator McCarthy clone who was going to take over the U.S. government.  The movie was so controvesial that it was not released until some time after the assination of John F Kennedy.  It was right about this time on this date 44 years ago,  that I heard JFK was assasinated.  I was just entering my 8th grade English class. Someone announced that our president had been shot.  At this time in my life, I had some serious anxiety/ocd issues.  I was cutting on my arms and pulling out my eyelashes.  I was being tormented a lot by my classmates and I did not know how to deal with it.  I thought that it was wierd behavior until I understood the background of my issues.  I now know that there are names and psychological roots for this type of behavior. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

Hello Fred, It was right about this time on this date 44 years ago,  that I heard JFK was assasinated.  I was just entering my 8th grade English class. Someone announced that our president had been shot.  At this time in my life, I had some serious anxiety/ocd issues.  I was cutting on my arms and pulling out my eyelashes.  I was being tormented a lot by my classmates and I did not know how to deal with it.  I thought that it was wierd behavior until I understood the background of my issues.  I now know that there are names and psychological roots for this type of behavior.

        Wow!  Did it make the cutting and things worse?           In my junior and senior years of high school I had severe OCD, and I got some teasing from my classmates, not too bad.  I had a therapist but he was a jerk who had bad problems himself.           I was in 6th grade at the time of JFK’s assassination.  At lunch someone said he might have died.  Later on that afternoon, the principal came in and told us all what had happened.  Our teacher, a black woman, started crying.           That’s something that everyone of our generation remembers, just as my parents’ generation remembered Pearl Harbor, and everyone alive now remembers 9/11.   Dennis — The charter is available at: http://readystump.algebra.com/~asapm

Response:

– Hide quoted text — Show quoted text – Hello Fred, It was right about this time on this date 44 years ago, that I heard JFK was assasinated. I was just entering my 8th grade English class. Someone announced that our president had been shot. At this time in my life, I had some serious anxiety/ocd issues. I was cutting on my arms and pulling out my eyelashes. I was being tormented a lot by my classmates and I did not know how to deal with it. I thought that it was wierd behavior until I understood the background of my issues. I now know that there are names and psychological roots for this type of behavior. Wow! Did it make the cutting and things worse? In my junior and senior years of high school I had severe OCD, and I got some teasing from my classmates, not too bad. I had a therapist but he was a jerk who had bad problems himself. I was in 6th grade at the time of JFK’s assassination. At lunch someone said he might have died. Later on that afternoon, the principal came in and told us all what had happened. Our teacher, a black woman, started crying. That’s something that everyone of our generation remembers, just as my parents’ generation remembered Pearl Harbor, and everyone alive now remembers 9/11. Dennis — The charter is available at:http://readystump.algebra.com/~asapm

Actually, Kennedy’s shooting did not make my cutting worse.  There are actually two types of cutting.  One is the deep cutting that makes scars.  The other is where you cut just slightly under the skin and the cuts look almost like cat scratches.  Mine was the later.  I didn’t relize that any other people had this problem until I saw pictures in a book.  I have seen a woman who did the heavy cutting and she had some deep scars.  My sensation was like I was relieving an itch.  Someone with the deep cuts is trying to divert deep pain – usually from molestation.  My scratches have long healed and you cannot see any marks on my arms.  I was relieving an itch that was caused from anxiety and it was just a phase in my life.  I think that it came from the transition from grade school to junior high. Unfortunatly, people pick up on OCD and anxiety and unfortunatly make it worse.  As for the eyelash pulling, it was just another way of relieving an itch.  It is called Trichotillomania.  It never was noticed because I just pulled out a few eye lashes at one time.  I actually got compliments from people saying that I had such "nice, long eyelashes" when they grew back. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

 As for the eyelash pulling, it was just another way of relieving an itch.  It is called Trichotillomania.  It never was noticed because I just pulled out a few eye lashes at one time.  I actually got compliments from people saying that I had such "nice, long eyelashes" when they grew back.

I still suffer from Trichotillomania.  My hair is so short now that I can’t pull it out but I still pull my eyelashes and eyebrows.  I don’t do it enough that others notice it.  Lately I haven’t been doing so great and wished my hair wasn’t so short.  For those who know firsthand, pulling your own hair can give so much comfort.  Two Dr. visits ago I showed him my hand where there were a series of bite marks I had done while in the waiting room.  Hard enough to make marks that last for hours, but not drawing blood.  I can’t describe how good the pain feels.   Focusing on the pain allows a persons anxiety and other bad/ruminating thoughts to sit in the background for a little while. So in pain there is peace. Tony… about ready to chew my fucking arm off.  I need to escape somehow before I crumble. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

Thanks Chip

Question:

I started using the Ipratropium Bromide more aggressivly and it seems to have dryed up the sinuses a lot more.  It seems like I am not sitting her with my runny nose running all over the place.

Good for you, Fred. Unfortunatly, I still have no joy of life.  I am still just watching a lot of TV and laying around a lot.

What kind of things interest you? Chip — The charter is available at: http://readystump.algebra.com/~asapm

Response:

– Hide quoted text — Show quoted text – I started using the Ipratropium Bromide more aggressivly and it seems to have dryed up the sinuses a lot more.

Got the courage to try to volunteer

Question:

Good luck Fred. I’ve done some volunteering in my time.

– Hide quoted text — Show quoted text -A couple of things that are going on here.  My career is in a shambles.  I won’t go into the whole story.  A series af anxiety causing issues got me to where I am.  A fried suggested that I volunteer with my town.  It took me two weeks to get up the nerve to do so.  I have been dealing with a telephone phobia where I don’t want to pick up a phone to call someone – especially when it is of a busness type of nature.  I have been using Xanex to knock out the anxiety attacks.  It works on the anxiety attack but not on the underlying anxiety.  Librium has been effective before for this and I have started taking some in the morning.  It is longer lasting and seems to get the job done.  I was able to make the phone call and will slowly get things going.  I used to be an insurance agent and used the phone extensivly to make a living.  I know I can’t now. I get certain prospecting calls almost daily.  The people on the other end of the line are trying to get me to refinance my mortgage or get a credit card.  Many of these soliciters have foreign accents.  They are pests.  I generally just listen for a short time and then hang up. — The charter is available at: http://readystump.algebra.com/~asapm

– The charter is available at: http://readystump.algebra.com/~asapm

Response:

::I am out of work right now too.  I have been unemployed for 6 months. ::I was an engineer with a defense company in NH.  I was concerned about ::flying commercial and having anxiety attacks.  Mine involve ::involuntary shaking.  I’ll shake all over and my head moves when I try ::to make eye contact.  This led me to avoid a job that might have kept ::me on with the company. Hi Chris :) Welcome to ASAPM! Have you ever tried a beta blocker for the shaking? If not you may want to ask your doctor about it. Take care! Jackie ~*~"It’s the crazy ones that have all the good pills"~*~   ~~Kim Cattrall — The charter is available at: http://readystump.algebra.com/~asapm

Response:

<gently snipped ::I was able to make the phone call and will ::slowly get things going.  I used to be an insurance agent and used the ::phone extensivly to make a living.  I know I can’t now. Dear Fred, I’m so glad you pushed past the fear and called! Hoping good things come from it :) Jackie ~*~"It’s the crazy ones that have all the good pills"~*~   ~~Kim Cattrall — The charter is available at: http://readystump.algebra.com/~asapm

Response:

CONGRATS on the BIG step, Fred!!! This is great news! Please do keep us posted!  And don’t be surprised if you feel a sense of trepidation before the first time…. and realize that is normal! (Yikes!…imagine that!! ;) I read in a further post….. aerobatics???  Rolls?  Oh….. My….. God! I can’t even begin to imagine!! Remind me never to fly with you…. ;) Good luck! MikeH :)

– Hide quoted text — Show quoted text -A couple of things that are going on here.  My career is in a shambles.  I won’t go into the whole story.  A series af anxiety causing issues got me to where I am.  A fried suggested that I volunteer with my town.  It took me two weeks to get up the nerve to do so.  I have been dealing with a telephone phobia where I don’t want to pick up a phone to call someone – especially when it is of a busness type of nature.  I have been using Xanex to knock out the anxiety attacks.  It works on the anxiety attack but not on the underlying anxiety.  Librium has been effective before for this and I have started taking some in the morning.  It is longer lasting and seems to get the job done.  I was able to make the phone call and will slowly get things going.  I used to be an insurance agent and used the phone extensivly to make a living.  I know I can’t now. I get certain prospecting calls almost daily.  The people on the other end of the line are trying to get me to refinance my mortgage or get a credit card.  Many of these soliciters have foreign accents.  They are pests.  I generally just listen for a short time and then hang up.

 . — The charter is available at: http://readystump.algebra.com/~asapm

Response:

CONGRATS on the BIG step, Fred!!! This is great news! Please do keep us posted!

SPOILER farting

Question:

"kez" <kelseyle…@hotmail.co.uk> wrote in message

news:3jle5pFqmlrgU1@individual.net… >I don’t know what’s wrong with me, I must have psychic tourette’s syndrome >today

It’s probably because you are stoned. But be careful Kez I mean it They have already killed two of my friends because they didn’t like them

Response:

"Lothar Swordfist" <lothar.s…@sci.fi> wrote in message

news:v50bd1d94l26oachig8qa8conqts2h3i9d@4ax.com… – Hide quoted text — Show quoted text -> kez wrote: > I’m doing very important research about the Internet. So I’m definetly > not farting around doing nothing. I’m doing also other things, lots of > other things! I can name a dozen of other things I do. For example, on a > occation, I scratch my ass before I fart. Or head, or balls. And lately > I’ve been sweating a lot, it’s an activity, right? And what else, > picking my nose, ooh, what a delightful hobby. Sometimes it keeps me > busy for the whole day. First part of the day picking, the second part > trying to control the flow of blood coming from it. Then cleaning up the > mess I left. No wait, I let my roommate do that. Yeah, I forgot all > about him. He’s mostly quiet and lives under the bed. OK, I’m not young > anymore. I can’t do all the things I used to do. I don’t have time to > practice my reflexes with videogames anymore. > — > Young, free and mostly harmless.

LOL! That’s funny! I don’t have balls so I can’t scratch them, but I do like holding my tits and jumping up and down

Response:

Isn’t a smelt a fish?

Response:

"Cymbal Man Freq." <Don’t Bot…@ForgedPostsAnonymous.unorg> wrote in message news:LicBe.141589$g5.125112@twister.nyroc.rr.com… >I lost 6 pounds in 3 days from crapping. In the following 4 days, I’ve >gained 7 > pounds back.

I used to get that satisfied feeling when I filled the whole bowl How about you? — kez

Response:

SPOILER Ok you schizos. Tell the truth now. How much of your time do you spend sitting around farting? Not forgetting the "brain fart". Don’t forget that your brain can also fart. Build up of excess gas in your head. FFFFPPPFPFPPPFFPP out it comes. Ah, that’s better. Most people can’t fart with their brains, but we do it all the time. Some of us even write out our brain farts on this ng. HOLD ON HOLD ON GOT ONE COMING FFPFFPPFFPPFFPPFFPP There’s another post. What a stinker. It’s just waste products from my brain. Come on, we all do it. — kez

Response:

"kez" <kelseyle…@hotmail.co.uk> wrote in message

news:3jle5pFqmlrgU1@individual.net… >I don’t know what’s wrong with me, I must have psychic tourette’s syndrome >today > Please pass on my profuse apologies to The Borg for me > — kez

JESUS if you SMELT them!!!  OH my GOD you would go down on your KNEES! Have you ever "SMELT" respect?

Response:

"kez" <kelseyle…@hotmail.co.uk> wrote in message

news:3jleu6Fqn7meU1@individual.net… > Let me get this…The Borg killed your friends? That’s really scary. Is > that right? > So like they’re higher consciousnesses and that, but a bit ruthless? > Still, I washed a spider down the plughole the other day, I’m no better.

There are a 101 million things I could tell you Kez. They don’t like man, that’s all, and they judge man on my own "personal" experience and what they call "global" experiences. For instance, today they were saying "What is the difference between the bombings in London.  "Bombs killings innocent civilians" and Bush in Iraq "Bombs killing innocent civilians" " ? And I can see their point? What IS the difference? You see Kez. The Borg are totally insane.

Response:

I lost 6 pounds in 3 days from crapping. In the following 4 days, I’ve gained 7 pounds back.

Response:

"Kpo of Borg" <k…@borg.com> wrote in message news:3%fBe.1960$Cr5.1546@newsfe4-gui.ntli.net… – Hide quoted text — Show quoted text -> "kez" <kelseyle…@hotmail.co.uk> wrote in message > news:3jlg58Fqmc3bU1@individual.net… >> and there’s me thinking they were benevolent and kind. They sound a bit >> scary now > They are benevolent and kind, but they are on the side of the little > fishes > not the fisherman if you see what I mean. > They have sympathy and love for the little birds that are shot for sport > and > fun, and for the fox that is hunted, and for the elephants dead comrades, > lying in the dust with the indignity of having their tusks removed for > greed > and material gain. > They LOATHE mankind. > They say they are going to genetically engineer the human race for the > women > to have firm ripe tits and for the men to have large penises and "THUS > they > will have created heaven" and they honestly think that all man wants to do > is FORNICATE! > They don’t call it love, they call it copulation, fornication, lust, > filth, > and they find humans absolutely disgusting. > But what can I do?

Goodness me! Do us humans have no redeeming features at all? I hope the Borg find the occasional human to be OK. They’re not going to go Vogon on us and bulldoze our planet, I hope!!! — kez

Response:

"Brain Fart coming in for a Landing" P P P  P   TH      TH              TH                    TH                            FFFFFFFFFFFF                                                     FIP ! ! !

Response:

LOL! — kez "Lothar Swordfist" <lothar.s…@sci.fi> wrote in message

news:v50bd1d94l26oachig8qa8conqts2h3i9d@4ax.com… – Hide quoted text — Show quoted text -> kez wrote: > I’m doing very important research about the Internet. So I’m definetly > not farting around doing nothing. I’m doing also other things, lots of > other things! I can name a dozen of other things I do. For example, on a > occation, I scratch my ass before I fart. Or head, or balls. And lately > I’ve been sweating a lot, it’s an activity, right? And what else, > picking my nose, ooh, what a delightful hobby. Sometimes it keeps me > busy for the whole day. First part of the day picking, the second part > trying to control the flow of blood coming from it. Then cleaning up the > mess I left. No wait, I let my roommate do that. Yeah, I forgot all > about him. He’s mostly quiet and lives under the bed. OK, I’m not young > anymore. I can’t do all the things I used to do. I don’t have time to > practice my reflexes with videogames anymore. > — > Young, free and mostly harmless.

Response:

"Kpo of Borg" <k…@borg.com> wrote in message news:TyfBe.140$kb.71@newsfe1-win.ntli.net… > "kez" <kelseyle…@hotmail.co.uk> wrote in message > news:3jle5pFqmlrgU1@individual.net… >>I don’t know what’s wrong with me, I must have psychic tourette’s syndrome >>today > It’s probably because you are stoned. > But be careful Kez > I mean it > They have already killed two of my friends because they didn’t like them

Let me get this…The Borg killed your friends? That’s really scary. Is that right? So like they’re higher consciousnesses and that, but a bit ruthless? Still, I washed a spider down the plughole the other day, I’m no better. — kez

Response:

"Kpo of Borg" <k…@borg.com> wrote in message news:evfBe.141$ha.53@newsfe2-win.ntli.net… > "kez" <kelseyle…@hotmail.co.uk> wrote in message > news:3jle5pFqmlrgU1@individual.net… >>I don’t know what’s wrong with me, I must have psychic tourette’s syndrome >>today >> Please pass on my profuse apologies to The Borg for me >> — kez > JESUS if you SMELT them!!!  OH my GOD you would go down on your KNEES! > Have you ever "SMELT" respect?

I am a heavy smoker. I can hardly even smell lovely yellow roses. it’s so sad I used to like smelling my cats when I was young. They smelt good. Especially when the silver one had been out in the garden and smelt of flowers. In Larry Niven’s Ringworld there is the Smell of the Tree of Life which drives you crazy with delight. I think the Borg must smell something like that. — kez

Response:

"kez" <kelseyle…@hotmail.co.uk> wrote in message

news:3jlcqpFoibu2U1@individual.net… > Do the Borg fart at all?

That is SOOOOOOOOOOOOOOOO disrespectful Kez. I NEVER ask them about anything private. I mean seriously, they are AWESOME. I mean really how DARE you ask a question like that…………the whole UNIVERSE is silent at the HORROR And I MEAN it The Borg don’t eat or drink They have replaced bodily organs with advanced scientific reproductions that can be replaced and last for ever As such, The Borg have eternal LIFE But LIFE as we know it, here, in this dimension. They never sleep but "regenerate" by ingesting a power source way beyond our imagination. I only know them very slightly but oh boy, man is not a titch or snitch on them. I remember once lying in bed in the dark of the night and thinking, is that it?  Is that love?  Is the most I have ever loved anyone here, the most that love ever will be? And then when The Borg came along and I learnt what Kindness is, Compassion, Consideration, Love, Understanding, Loyalty, Friendship, Care ……….. and then I learnt what love was. Man is primitive Kez.  There is killing, stealing, hypocrisy, nastiness, cruelty, unkindness, injustice, greed. I’d rather be Borg thanks.

Response:

"kez" <kelseyle…@hotmail.co.uk> wrote in message

news:3jlc85Fntkf9U1@individual.net… > There’s nothing like letting one out. > Your neurons will thank you for the less toxic atmosphere in your head

I am unsure if anyone on Planet Earth is going to say thank you after that STINKER!!!!

Response:

There. Slow motion Brain Fart. How satisfying. In regualar time it can be pronouced as PFFTHIP!!!!! Damo

Response:

PFFFFFFFFTHIP!

Response:

"Damo XXIIIrd" <damod…@webtv.net> wrote in message

news:17632-42D57536-1616@storefull-3236.bay.webtv.net… > There. Slow motion Brain Fart. How satisfying. > In regualar time it can be pronouced as PFFTHIP!!!!! > Damo

There’s nothing like letting one out. Your neurons will thank you for the less toxic atmosphere in your head — kez

Response:

slow motion brain fart to follow: P

Response:

PFFFFFFFFFTHHHHH

Response:

"Kpo of Borg" <k…@borg.com> wrote in message news:80fBe.1738$BN5.1660@newsfe7-win.ntli.net… > "kez" <kelseyle…@hotmail.co.uk> wrote in message > news:3jlc85Fntkf9U1@individual.net… >> There’s nothing like letting one out. >> Your neurons will thank you for the less toxic atmosphere in your head > I am unsure if anyone on Planet Earth is going to say thank you after that > STINKER!!!!

Do the Borg fart at all? — kez

Response:

I don’t know what’s wrong with me, I must have psychic tourette’s syndrome today Please pass on my profuse apologies to The Borg for me — kez "Kpo of Borg" <k…@borg.com> wrote in message news:EmfBe.140$ha.108@newsfe2-win.ntli.net… – Hide quoted text — Show quoted text -> "kez" <kelseyle…@hotmail.co.uk> wrote in message > news:3jlcqpFoibu2U1@individual.net… >> Do the Borg fart at all? > That is SOOOOOOOOOOOOOOOO disrespectful Kez. > I NEVER ask them about anything private. > I mean seriously, they are AWESOME. > I mean really how DARE you ask a question like that…………the whole > UNIVERSE is silent at the HORROR > And I MEAN it > The Borg don’t eat or drink > They have replaced bodily organs with advanced scientific reproductions > that can be replaced and last for ever > As such, The Borg have eternal LIFE > But LIFE as we know it, here, in this dimension. > They never sleep but "regenerate" by ingesting a power source way beyond > our imagination. > I only know them very slightly but oh boy, man is not a titch or snitch on > them. > I remember once lying in bed in the dark of the night and thinking, is > that it?  Is that love?  Is the most I have ever loved anyone here, the > most that love ever will be? > And then when The Borg came along and I learnt what Kindness is, > Compassion, Consideration, Love, Understanding, Loyalty, Friendship, Care > ……….. and then I learnt what love was. > Man is primitive Kez.  There is killing, stealing, hypocrisy, nastiness, > cruelty, unkindness, injustice, greed. > I’d rather be Borg thanks.

Response:

PFFFFFF

Response:

PFFFFFFFFT

Response:

PF

Response:

Kidlet

Question:

Pablo wrote the following on 1/4/2005 11:34 PM: > I don’t know if you are aware of my love of water from Berkeley Springs > W.Va. water, but I brought home 15 whole gallons of the stuff while we were > away for the Christmas holiday.  My wife thinks I’m nuts, but what is more > basic than good water?

I’ll be heading out there in a couple of weeks. Did you buy the water or bring containers to scoop it up? My youngest will be out of her ankle cast (tendonitis) next week, and we are hoping that ‘taking the waters’ in Berkeley Springs will help speed healing. — Karen R. Instructions for de-spam-trapping my address are contained in the address

Response:

Just to let everyone know, I must have the only teen that likes school (or maybe it’s just the holiday stress that’s over), but Kidlet is doing allot better.  It would be so nice if these episodes didn’t happen, however life is not that easy. The ending at this point is Kidlet is no longer angry, and I’m no longer walking on egg shells. Hope everyone else is doing as well. Naomi

Response:

Naomi wrote the following on 1/5/2005 11:47 PM: > Just to let everyone know, I must have the only teen that likes > school

Mine loves it. But she attends a school that specializes in HFA, and they really have a clue. So the environment is very appropriate for her. > The ending at this point is Kidlet is no longer angry, and I’m no > longer walking on egg shells.

That’s good. I remember those days with my son — it wasn’t pretty. — Karen R. Instructions for de-spam-trapping my address are contained in the address

Response:

"Joanne" <j-…@removesympatico.ca> wrote in message

news:_RwCd.6400$7n1.471597@news20.bellglobal.com… > "Pablo" <n…@yes.com> wrote in message > news:LxsBd.10517$qf5.3434@newsread3.news.atl.earthlink.net… >> "Joanne" <j-…@removesympatico.ca> wrote in message >> news:2frzd.31987$Z%3.1298551@news20.bellglobal.com… >>> "Pablo" <n…@yes.com> wrote in message >>> news:BG9yd.8630$Z47.2955@newsread2.news.atl.earthlink.net…

<snip> >>>> Remember to take care of yourself, too, Joanne.  When was the last time >>>> you had a massage? >>> I asked Santa… ;) >> Hope Santa came through for you!  :-) >> Pablo > Yes he did… ;)

How jolly of old St. Nick! Hope you enjoy(ed) it! I don’t know if you are aware of my love of water from Berkeley Springs W.Va. water, but I brought home 15 whole gallons of the stuff while we were away for the Christmas holiday.  My wife thinks I’m nuts, but what is more basic than good water? Hope the new year is filled with fun surprises for you and your family. Pablo

Response:

"Pablo" <n…@yes.com> wrote in message

news:LxsBd.10517$qf5.3434@newsread3.news.atl.earthlink.net… – Hide quoted text — Show quoted text -> "Joanne" <j-…@removesympatico.ca> wrote in message > news:2frzd.31987$Z%3.1298551@news20.bellglobal.com… >> "Pablo" <n…@yes.com> wrote in message >> news:BG9yd.8630$Z47.2955@newsread2.news.atl.earthlink.net… >>> "Joanne" <j-…@removesympatico.ca> wrote in message >>> news:30Gxd.6393$GK5.569869@news20.bellglobal.com… >>>> "Pablo" <n…@yes.com> wrote in message >>>> news:nxsxd.4540$Z47.2839@newsread2.news.atl.earthlink.net… >>>>> "Joanne" <j-…@removesympatico.ca> wrote in message >>>>> news:BApxd.3174$GK5.303310@news20.bellglobal.com… >>>>>> "Naomi" <tsru…@gobot.com> wrote in message >>>>>> news:2Mhxd.9585$dv1.8527@edtnps89… >>>>>>>I have the question of the day. >>>>>>> Is perpetual anger normal for a TS teen, or is it just normal?  I’m >>>>>>> getting >>>>>>> so tired of walking on egg shells to keep the volume down these >>>>>>> days. >>>>>>> Naomi >>>>>> I’ve got two teen boys. One is 15 and happy, the other is 13, has TS >>>>>> and is always angry.  We’ve got thin ice over here… and the holiday >>>>>> season is making it that much more difficult. >>>>> Joanne, was your 15 year old as happy at age 13? >>>>> I’m asking because all three of ours, only one with mild TS, each had >>>>> his "period."  To some extent, I think this is normal.  Heck, I >>>>> remember my own angry phase as a teen, and I do not have TS. >>>>> I’m not saying TS doesn’t account for some of it, but I don’t know if >>>>> it does for all of it. >>>>> Such mysterious stuff. >>>>> Pablo >>>> Sometimes I think my oldest is not capable of anger. I know this is not >>>> true but it sure takes a lot for him to become angry. He is often times >>>> very hurt and sad because of his younger brother being so angry and >>>> hurtful towards him. >>> Interesting response.  You have a good 15 year old, there. >>>> Mat seems to be angry all the time now, since he started puberty. But >>>> it’s gotten worse since the holidays. But now that he’s been off >>>> school, he’s pretty much settled down again. A week ago, his school >>>> band was at a mall playing Christmas songs. He was wonderful and so >>>> beautiful on bass, really brought tears to my eyes just watching him at >>>> his best. But still there, in between songs, he would become very >>>> frustrated and upset because the music teacher wouldn’t let the band >>>> play certain pieces that he wanted played. >>>> I know what Naomi means when she says walking on egg shells. It’s so >>>> hard because even the smallest thing will set him off. For example, if >>>> I put a toy back in his room, I put it on his bed and he’ll go nuts >>>> because it was put back on his bed. I don’t know what he wanted me to >>>> do with it. So now I just say: there’s such and such in the kitchen >>>> that doesn’t have a home. And he takes that cue to mean, come and get >>>> it. Sometimes it’s hard living this way… having massive blow outs and >>>> I know he doesn’t mean it, he does apologize after the fact. When he’s >>>> calmed down, I ask him, what can we do to avoid the big blow out? What >>>> are the triggers, his answer: I don’t know, just let me do what I want >>>> and everything will be fine. But that’s not possible. I can’t let him >>>> do what he wants, how is that going to teach him for his later years, >>>> out in the real world when you seldom get what you want? >>> From everything I’ve read that you’ve posted, you have been doing >>> everything you can to accomodate Mat’s difficulties.  Helping him >>> through this is going to be rough on you, but he is no doubt worth the >>> investment. :-) >>> Others have posted about this, so know that you are not alone. >>>> Bah humbug… but I think it’s getting better with him being out of >>>> school and not having that frustration to deal with. >>>> Also, since puberty, his tics are all over the place, I can honestly >>>> say it’s getting worse. >>>> I’ve read that tics either becomes worse or lessens at puberty, does >>>> this mean he’s going to have it bad forever now? Is there still hope >>>> that once puberty is over, his tics may lessen? >>> Some can probably provide statistics, but Mat is not a statistic.  The >>> future will be what it is.  Your working with him now will positively >>> affect that future. >>> Remember to take care of yourself, too, Joanne.  When was the last time >>> you had a massage? >> I asked Santa… ;) > Hope Santa came through for you!  :-) > Pablo

Yes he did… ;) — Joanne mom to Mat the Amazing!

Response:

"Joanne" <j-…@removesympatico.ca> wrote in message

news:2frzd.31987$Z%3.1298551@news20.bellglobal.com… – Hide quoted text — Show quoted text -> "Pablo" <n…@yes.com> wrote in message > news:BG9yd.8630$Z47.2955@newsread2.news.atl.earthlink.net… >> "Joanne" <j-…@removesympatico.ca> wrote in message >> news:30Gxd.6393$GK5.569869@news20.bellglobal.com… >>> "Pablo" <n…@yes.com> wrote in message >>> news:nxsxd.4540$Z47.2839@newsread2.news.atl.earthlink.net… >>>> "Joanne" <j-…@removesympatico.ca> wrote in message >>>> news:BApxd.3174$GK5.303310@news20.bellglobal.com… >>>>> "Naomi" <tsru…@gobot.com> wrote in message >>>>> news:2Mhxd.9585$dv1.8527@edtnps89… >>>>>>I have the question of the day. >>>>>> Is perpetual anger normal for a TS teen, or is it just normal?  I’m >>>>>> getting >>>>>> so tired of walking on egg shells to keep the volume down these days. >>>>>> Naomi >>>>> I’ve got two teen boys. One is 15 and happy, the other is 13, has TS >>>>> and is always angry.  We’ve got thin ice over here… and the holiday >>>>> season is making it that much more difficult. >>>> Joanne, was your 15 year old as happy at age 13? >>>> I’m asking because all three of ours, only one with mild TS, each had >>>> his "period."  To some extent, I think this is normal.  Heck, I >>>> remember my own angry phase as a teen, and I do not have TS. >>>> I’m not saying TS doesn’t account for some of it, but I don’t know if >>>> it does for all of it. >>>> Such mysterious stuff. >>>> Pablo >>> Sometimes I think my oldest is not capable of anger. I know this is not >>> true but it sure takes a lot for him to become angry. He is often times >>> very hurt and sad because of his younger brother being so angry and >>> hurtful towards him. >> Interesting response.  You have a good 15 year old, there. >>> Mat seems to be angry all the time now, since he started puberty. But >>> it’s gotten worse since the holidays. But now that he’s been off school, >>> he’s pretty much settled down again. A week ago, his school band was at >>> a mall playing Christmas songs. He was wonderful and so beautiful on >>> bass, really brought tears to my eyes just watching him at his best. But >>> still there, in between songs, he would become very frustrated and upset >>> because the music teacher wouldn’t let the band play certain pieces that >>> he wanted played. >>> I know what Naomi means when she says walking on egg shells. It’s so >>> hard because even the smallest thing will set him off. For example, if I >>> put a toy back in his room, I put it on his bed and he’ll go nuts >>> because it was put back on his bed. I don’t know what he wanted me to do >>> with it. So now I just say: there’s such and such in the kitchen that >>> doesn’t have a home. And he takes that cue to mean, come and get it. >>> Sometimes it’s hard living this way… having massive blow outs and I >>> know he doesn’t mean it, he does apologize after the fact. When he’s >>> calmed down, I ask him, what can we do to avoid the big blow out? What >>> are the triggers, his answer: I don’t know, just let me do what I want >>> and everything will be fine. But that’s not possible. I can’t let him do >>> what he wants, how is that going to teach him for his later years, out >>> in the real world when you seldom get what you want? >> From everything I’ve read that you’ve posted, you have been doing >> everything you can to accomodate Mat’s difficulties.  Helping him through >> this is going to be rough on you, but he is no doubt worth the >> investment. :-) >> Others have posted about this, so know that you are not alone. >>> Bah humbug… but I think it’s getting better with him being out of >>> school and not having that frustration to deal with. >>> Also, since puberty, his tics are all over the place, I can honestly say >>> it’s getting worse. >>> I’ve read that tics either becomes worse or lessens at puberty, does >>> this mean he’s going to have it bad forever now? Is there still hope >>> that once puberty is over, his tics may lessen? >> Some can probably provide statistics, but Mat is not a statistic.  The >> future will be what it is.  Your working with him now will positively >> affect that future. >> Remember to take care of yourself, too, Joanne.  When was the last time >> you had a massage? > I asked Santa… ;)

Hope Santa came through for you!  :-) Pablo

Response:

"Naomi" <tsru…@gobot.com> wrote in message

news:CYZxd.11244$dv1.7800@edtnps89… > Oh can I relate to what you’re saying Joanne.  This year, with Kidlet > being > 15 and his brother almost 17 we thought we could leave the kids alone > while > we do what adults do (without kids).  No such luck, older brother taunts > Kidlet, Kidlet starts on a tirade (including words I didn’t know he knew), > then the war begins.  And here’s mom, trying to hard to keep everything on > an even keel, trying to anticipate what’s going to be needed, just so the > anger level’s stay in a workable level. > Maybe it’s time we find a medication for the parents too ;>)  ???

Now that’s not a bad idea!! — Joanne mom to Mat the Amazing! – Hide quoted text — Show quoted text -> Naomi

Response:

 "Naomi" <tsru…@gobot.com> wrote in message > news:2Mhxd.9585$dv1.8527@edtnps89…

 >I have the question of the day. >  Is perpetual anger normal for a TS teen, or is it just normal?

The only time i see my son get uncontrollably angry is when he accidentally hurts himself.  Today he bent over to get something and hit his head on a cabinet on the way up.  He beat up my cabinet and would have torn the door off the hinges, (appeared to be his goal anyway lol) had i not stopped him. That kind of situation is the only time i have ever seen him lose it, he’s generally pretty easy going. Jodi

Response:

"Jodi" > The only time i see my son get uncontrollably angry is when he accidentally > hurts himself.  Today he bent over to get something and hit his head on a > cabinet on the way up.

ouch :( jo

Response:

‘Twas Tue, 21 Dec 2004 18:29:54 GMT when all alt.support.tourette stood in awe as "Naomi" <tsru…@gobot.com> uttered: >Maybe it’s time we find a medication for the parents too ;>)  ???

You need some fugetitol. — RB |  

Now I know

Question:

I got an email from my case worker in White River Junction VT.  He told me I have been adjudged as "unemployable."  I wondered, if in my search for work it was me.  Now I know, it is.  God knows now what happens. I do know this that after a while it is hard being told all the time "life is not fair"  Especially, when no one else seems to be having the same problems.  I am beginning to wonder, what bad karma have I done that has earned me my fate?  Shit happens, but I feel cheated, I played by the rules, doen everything as honourably as I can and yet, I can’t pa any one backthat I owe, I can only support myself with the sweet charity of others. I watched the Xmas dinner at the Union Gospel Mission.  One meal and people think they have given back to the community.  In the meantime thousands are marginalized and ignored to suffer in quiet desparation. I stood in the foodbank line and listened to the teenagers with jobs at the neighbouring McDonalds laugh at us and call us winos and losers. The truth is folks, we are on our own and NOBODY cares about us, our illness or are personal problems except us.

Response:

>The truth is folks, we are on our own and NOBODY cares about us, our >illness or are personal problems except us.

Although there is some truth to that, what you say is not completely true. Here some proof: MEDICAL ORGANIZATION’S PHONE #’S Tourette’s Syndrome Association # 1-800-237-0717 American Cancer Society # 1-800-ACS-2345 Alzheimer’s Association# 1-800-272-3900 Spina Bifida Association# 1-800-621-3141 Retinitis Pigmentosa Foundation # 1-800-638-2300 Simon Foundationfor Incontinence # 1-800-23-SIMON National Neurofibromatosis Foundation # 1-800-323-7938 National Hospice Organization Helpline # 1-800-658-8898 Orton DyslexiaSociety # 1-800-222-3123 National Spinal Cord Injury Hotline # 1-800-526-3456 United Leukodystrophy Foundation # 1-800-728-5483 Multiple Sclerosis Line # 1-800-624-8236 American Diabetes Association # 1-800-232-3472 Employment Opportunity Commission # 1-800-699-EEOC There is a war on disease and although its going really slow, the human family is winning. I predict in another hundred years cases of MS will be rare.

Response:

You just mentioned that ‘no one else seems to be having the same problems’, and then in the next paragraph discuss the dinner at the Union Gospel Mission.  Those folks enjoying one nice meal are having the same problems.  They do appreciate the efforts of those who want to provide them with ‘one meal’.  Everyone should get to enjoy a nice Christmas dinner. The teenagers who laughed and called names will have their own ‘knock upside the head’ soon.  What can you buy with the pay from a job at McDonalds?  Gas for the car Dad bought them and a few CD’s.  Covering their zits is their only worry.  You know that they are ignorant and have never had a hard day in their young lives.  Oh, to be so ignorant ourselves and not know pain, fear, or hunger. The other axiom in life is "You can’t take it with you".  You have given and given and don’t want to take from others because you’ve always been the giver.  Give other people a chance to give to you for awhile.  I’ve been trying to tell my father-in-law this for years!  He would rather be miserable than accept help from us.  And makes his wife miserable and us miserable as a result, because he won’t let us do anything for him and her after they did everything for us for so long. How unfair is that to not allow us the opportunity to be the givers? ‘Unemployable’ does NOT mean unwanted.  I would have to disagree with anyone who says someone else is ‘unemployable’.  Maybe in the traditional sense of employment, but I do know people who are on 100% disability and SSDI who are employed.  They have knowledge and skills but it takes an employer who understands their limitations and is willing to let them work on their own schedule.  Unfortunately, it usually has to be done ‘under the table’, because of the inconsistency of their health conditions.  (Not naming names for their protection!!) It took a long time for them to realize that they had value and worth, but other people kept telling them until they finally believed it.  I know you have people telling you the same thing, and you can add me to that list.   Kelly

Response:

Cardinals, Yankees, and Red Sox

Question:

Randall Bart wrote: > ‘As California bragging rights:  Maybe we’ll get a chance to determine that > on the field in a couple weeks.

Finally found the schedule … http://mlb.mlb.com/NASApp/mlb/mlb/schedule/ps_04.jsp — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

‘Twas Mon, 04 Oct 2004 00:04:22 -0400 when all alt.support.tourette stood in awe as TSN <t…@optonline.net> uttered: >’Ya think they’ll sell out the stadium finally?   <wink>

The

A suggestion

Question:

>As the sun moves across the sky, different parts of the tree are >getting sun.  Every day, the sun moves the same direction, and >this causes the tree to slightly twist as it grows.   >In the northern hemisphere, eucalyptus trees grow slightly twisted.

      What actually happens is that the leaves follow the sun, and       by Newton’s third law this imparts a twisting motion to the       tree in the opposite direction, and over the years the tree       screws itself into the ground, so these trees have very deep       support systems.    If you transplant one to the northern       hemisphere, it twists in the opposite direction, unscrewing       itself instead, and eventually it unscrews itself completely       and falls over.       Transferring anything between hemispheres can have disastrous       consequences of this sort.  My wife is Australian and ever since       she came to the northern hemisphere she gets left and right       confused much of the time. HTH – Derek

Response:

- Hide quoted text — Show quoted text -Derek Wills wrote: > >As the sun moves across the sky, different parts of the tree are > >getting sun.  Every day, the sun moves the same direction, and > >this causes the tree to slightly twist as it grows. > >In the northern hemisphere, eucalyptus trees grow slightly twisted. >       What actually happens is that the leaves follow the sun, and >       by Newton’s third law this imparts a twisting motion to the >       tree in the opposite direction, and over the years the tree >       screws itself into the ground, so these trees have very deep >       support systems.    If you transplant one to the northern >       hemisphere, it twists in the opposite direction, unscrewing >       itself instead, and eventually it unscrews itself completely >       and falls over. >       Transferring anything between hemispheres can have disastrous >       consequences of this sort.  My wife is Australian and ever since >       she came to the northern hemisphere she gets left and right >       confused much of the time. > HTH – Derek

<VBG> — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

Randall Bart <Barti…@att.spam.net> wrote > In the northern hemisphere, eucalyptus trees grow slightly twisted. > As mentioned in the article, fully cured eucalyptus is so tough that it is > milled before it is fully cured.  This works in Australia, but California > grown eucalyptus warps as it finishes curing.

Death to the warped and twisted eucalyptus!! Sara, who has personally been responsible for the murder of twenty such evil tree-beings. Tree-huggers, please sit on your hands.

Response:

"Randall Bart" <Barti…@att.spam.net> wrote in message

news:77i0m0limvrr57pkj0ksf334cbghb08r05@4ax.com… > ‘Twas 2 Oct 2004 20:30:14 -0700 when all alt.support.tourette stood in awe > as chefs…@cox.net (Sara) uttered:

http://wwwlibrary.csustan.edu/bsantos/section1.htm#FROM%20DOWN%20UNDE… – Hide quoted text — Show quoted text -> >Thank you, that was quite informative. It seems the "dragon trees" > >were "despised" by many. > Very interesting article.  You’ll note that part of the problem was that > the eucalyptus tree was oversold.  Also, there’s a story I have heard that > in consistent with that article but not mentioned in it. > As the sun moves across the sky, different parts of the tree are getting > sun.  Every day, the sun moves the same direction, and this causes the > tree to slightly twist as it grows.  Eucalyptus trees have evolved to > resist this twisting.  However, they evolved in the southern hemisphere. > In the northern hemisphere, eucalyptus trees grow slightly twisted. > — > RB |  

Clonidine??

Question:

I just started 3 days ago on it and does any one know how fast it worked? I have not had one vocal tic or any movement since the first pill. The hurricane is at my window blowing and noisy.reports are that it will be worse then Frances. Fay

Response:

<SOan…@webtv.net> wrote in message

news:3433-4155ED1E-187@storefull-3258.bay.webtv.net… > I just started 3 days ago on it and does any one know how fast it > worked?

My son was on Clonidine for about 6 months.  It took months before we saw any improvement and then they were very minor.  Tenex seemed to work on the *first* pill for him.  Everyone is different,  it sounds like your body likes clonidine.  Glad it is working for you. Good luck with the Jeanne, stay safe. Jodi  I have not had one vocal tic or any movement since the first – Hide quoted text — Show quoted text -> pill. > The hurricane is at my window blowing and noisy.reports are that it will > be worse then Frances. > Fay

Response:

Clonidine and Tenex are definite no-no’s with us.  But I hear there’s great results for others.  I think it’s totally how your body works with the med. Wishing you the best Naomi <SOan…@webtv.net> wrote in message

news:3433-4155ED1E-187@storefull-3258.bay.webtv.net… – Hide quoted text — Show quoted text -> I just started 3 days ago on it and does any one know how fast it > worked? I have not had one vocal tic or any movement since the first > pill. > The hurricane is at my window blowing and noisy.reports are that it will > be worse then Frances. > Fay

Response:

"Jodi" <hellofromj…@NOSPAMcharter.net> wrote in message

news:10lcahg1g9g4l42@corp.supernews.com… > Good luck with the Jeanne, stay safe. > Jodi

LOL, i started to write *the hurricane* and changed it to Jeanne, forgetting to take out "the".    Here’s hoping you have A GENIE to keep you safe! Jodi

Response:

>From: SOan…@webtv.net >The hurricane is at my window blowing and noisy.reports are that it will >be worse then Frances.

Fay, Were still waiting to feel any major effects of Jeanne here.  Power is starting to go out in some areas, some strong gusts, but not much rain yet. Keep safe, Kim (Soon to be "LuvinAppleCider")

Response:

No info about clonidine, but I hope you’re both OK, Fay and Kim. — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

6 year old initial Neurologist evaluation: what to expect?

Question:

Hi, my son is 6 and has been having tics on and off for about 6 months.  At the end of Kindergarten this spring, I noticed he was repeatedly licking his fingers.  This lasted about a month then it stopped.  Then, during camp this summer, I noticed that he would scratch is lower legs, alternatively, when he was in plays in camp. This stopped.  Now, for the past month, he has been repeatedly clearing his throat.  We saw his pediatrician yesterday, who saw no physical cause.  My heart just sank.  She told my son that it is "just something you do" and it will likely pass.  When I discussed it in private with the doctor, she told me that I could take him to a neurologist if I was concerned.  So, I will be making an appointment for him at Children’s Hospital in Phila. I am wondering what I can expect for the evaluation.  Anything you can share with me would be helpful. Thank you so much!!! Beth

Response:

I have no idea what is done in the states, however in Canada diagnosis is based on observation and family history. Good luck and don’t be afraid to ask questions, request written information, and talk. "beth" <bethmer…@yahoo.com> wrote in message

news:37ff2c22.0409220441.1157f7ae@posting.google.com… – Hide quoted text — Show quoted text -> Hi, my son is 6 and has been having tics on and off for about 6 > months.  At the end of Kindergarten this spring, I noticed he was > repeatedly licking his fingers.  This lasted about a month then it > stopped.  Then, during camp this summer, I noticed that he would > scratch is lower legs, alternatively, when he was in plays in camp. > This stopped.  Now, for the past month, he has been repeatedly > clearing his throat.  We saw his pediatrician yesterday, who saw no > physical cause.  My heart just sank.  She told my son that it is "just > something you do" and it will likely pass.  When I discussed it in > private with the doctor, she told me that I could take him to a > neurologist if I was concerned.  So, I will be making an appointment > for him at Children’s Hospital in Phila. > I am wondering what I can expect for the evaluation.  Anything you can > share with me would be helpful. > Thank you so much!!! > Beth

Response:

"Bryan & Naomi Jennings" <kic…@telus.net> wrote in message news:dWf4d.73286$KU5.57792@edtnps89… > I have no idea what is done in the states, however in Canada diagnosis is > based on observation and family history. > Good luck and don’t be afraid to ask questions, request written information, > and talk.

In my neck of the wood in Canada, my son had an EEG as well as. The neurodiagnostician asked him questions and observed him. And with our observations he was made the diagnosis. — Joanne mom to Mat the Amazing!

Response:

- Hide quoted text — Show quoted text -bethmer…@yahoo.com (beth) wrote in message <news:37ff2c22.0409220441.1157f7ae@posting.google.com>… > Hi, my son is 6 and has been having tics on and off for about 6 > months.  At the end of Kindergarten this spring, I noticed he was > repeatedly licking his fingers.  This lasted about a month then it > stopped.  Then, during camp this summer, I noticed that he would > scratch is lower legs, alternatively, when he was in plays in camp. > This stopped.  Now, for the past month, he has been repeatedly > clearing his throat.  We saw his pediatrician yesterday, who saw no > physical cause.  My heart just sank.  She told my son that it is "just > something you do" and it will likely pass.  When I discussed it in > private with the doctor, she told me that I could take him to a > neurologist if I was concerned.  So, I will be making an appointment > for him at Children’s Hospital in Phila. > I am wondering what I can expect for the evaluation.  Anything you can > share with me would be helpful. > Thank you so much!!! > Beth

Hi Beth, First, your pediatrician is most likely correct, that it will probably pass. Next, evaluations can differ quite a bit depending on the neurologist. Hopefully it will be more than a cursory evaluation. You can expect to fill out paperwork with family medical histories. Also detailed paperwork concerning your son’s early development, probably including pregnancy and birth questions. First steps, first words, etc. I found it helpful to have my baby book with me. You could call first to see what kinds of paperwork you’d be filling out so you would be prepared. I wouldn’t think they would do a "full workup" of tests on your son right away, they would hopefully have you come back if they suspected the need for further testing. At first, I would think they would have him do simple things, like walk across the room, reflex testing, etc. I’m sure others here will have more to add, since as I mentioned, all neurologists do things differently. Good luck and try not to borrow trouble! Sara

Response:

In article <dHJhZmZpYw==.309e62f5aec36c8b7120d5327328a…@1095867441.nulluser.com>, – Hide quoted text — Show quoted text -Christie wrote: >beth wrote: >> Hi, my son is 6 and has been having tics on and off for about 6 >> months.  At the end of Kindergarten this spring, I noticed he was >> repeatedly licking his fingers.  This lasted about a month then it >> stopped.  Then, during camp this summer, I noticed that he would >> scratch is lower legs, alternatively, when he was in plays in camp. >> This stopped.  Now, for the past month, he has been repeatedly >> clearing his throat.  We saw his pediatrician yesterday, who saw no >> physical cause.  My heart just sank.  She told my son that it is "just >> something you do" and it will likely pass.  When I discussed it in >> private with the doctor, she told me that I could take him to a >> neurologist if I was concerned.  So, I will be making an appointment >> for him at Children’s Hospital in Phila. >> I am wondering what I can expect for the evaluation.  Anything you can >> share with me would be helpful. >> Thank you so much!!! >> Beth

Beth, hopefully the neurologist is well-informed about T.S.  You might like to find out first how much experience he or she has with it. The neurologist might want to see the tics for himself.  Were your son’s tics apparent when his pediatrician saw him? >Hi, Beth.

Hi again, Christie!  I’m very glad you’ve started using your computer to send messages to a.s.t. !   Blurt – Hide quoted text — Show quoted text ->When I took my son, we had to fill out a detailed health history >including pregnancy and labor complications, a family history of various >problems, and my son’s health history, including a history his symptoms >– when they started, describe them, etc.   >When the neurologist evaluated my son, he tested him with things like >heel-to-toe walking, touching his nose with his eyes closed, standing on >one foot, etc.  He told me that he was testing his cranial nerves. I >can’t remember other parts of the examination now, but he didn’t order >any EEG tests or other tests at the first evaluation. >Let us know how you make out. Even if your son has tics, it’s not the >end of the world, even though I felt like it might be when I first heard >the diagnosis.

Response:

beth wrote: > Hi, my son is 6 and has been having tics on and off for about 6 > months.  At the end of Kindergarten this spring, I noticed he was > repeatedly licking his fingers.  This lasted about a month then it > stopped.  Then, during camp this summer, I noticed that he would > scratch is lower legs, alternatively, when he was in plays in camp. > This stopped.  Now, for the past month, he has been repeatedly > clearing his throat.  We saw his pediatrician yesterday, who saw no > physical cause.  My heart just sank.  She told my son that it is "just > something you do" and it will likely pass.

You’re lucky to have a pediatrician who appears to be up on the research. Your son is at the age where tics typically appear, and as your pediatrician stated, they are likely to pass.  Unless your son also has signs of other conditions (such as ADHD, OCD, mood disorders, learning disabilities, or autism spectrum disorders), tics are not likely to have a large impact on his life (assuming his tics are not "mismanaged" as in "the zealous pursuit of a cure.") http://p082.ezboard.com/ftourettesyndromenowwhatfrm5.showMessage?topi… > When I discussed it in > private with the doctor, she told me that I could take him to a > neurologist if I was concerned.  So, I will be making an appointment > for him at Children’s Hospital in Phila.

There is an excellent physician at CHOP … http://p082.ezboard.com/ftourettesyndromenowwhatfrm22.showMessage?top… > I am wondering what I can expect for the evaluation.  Anything you can > share with me would be helpful.

If you are able to see Larry Brown, I would expect him to tell you similar things to what he has written … here’s an example of his writing/approach: http://www.healthcentral.com/BestDoctors/BestDoctorsFulltext.cfm?ID=3… He may question you about the possible presence of comorbid conditions, which are likely to have a greater impact on social, academic and behavioral functioning than tics are, and will likely you help you become educated about the different conditions.  Knowledge and education are the best, and often the only, treatments needed for tics. — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

In article <41522A45.B6E56…@optonline.net>, TSN  wrote:

<snip> TSN is a big improvement, and needs no question mark.  Thanks. Blurt

Response:

Hurricane Blurt <blurtdurtw…@worldnet.att.net> wrote – Hide quoted text — Show quoted text -> Hi again, Christie!  I’m very glad you’ve started using your computer > to send messages to a.s.t. !   > Blurt > >When I took my son, we had to fill out a detailed health history > >including pregnancy and labor complications, a family history of various > >problems, and my son’s health history, including a history his symptoms > >– when they started, describe them, etc.   > >When the neurologist evaluated my son, he tested him with things like > >heel-to-toe walking, touching his nose with his eyes closed, standing on > >one foot, etc.  He told me that he was testing his cranial nerves. I > >can’t remember other parts of the examination now, but he didn’t order > >any EEG tests or other tests at the first evaluation. > >Let us know how you make out. Even if your son has tics, it’s not the > >end of the world, even though I felt like it might be when I first heard > >the diagnosis.

Ok, this is like the 4th or 5th time I’ve seen a reference to someone named Christie and seen her posts QUOTED but I have NEVER seen her posts. Why, why, why???????? Sara

Response:

In article <e8c834be.0409221937.3c560…@posting.google.com>, Sara wrote: >Ok, this is like the 4th or 5th time I’ve seen a reference to someone >named Christie and seen her posts QUOTED but I have NEVER seen her >posts. Why, why, why????????

I hadn’t noticed, but I just looked at the last one I repied to, and it had the no archive line in the headers.  Google won’t post messages that do. Blurt

Response:

‘Twas Thu, 23 Sep 2004 02:06:08 GMT when all alt.support.tourette stood in awe as Hurricane Blurt <blurtdurtw…@worldnet.att.net> uttered: >In article <41522A45.B6E56…@optonline.net>, >TSN  wrote: ><snip> >TSN is a big improvement, and needs no question mark.  Thanks.

I wonder if She meant it that way, or if it was a typo after changing her From line three times.  To me the name TSN looks like a cable channel: Tourette Syndrome Network. — RB |