Now I know
Question:
I got an email from my case worker in White River Junction VT. He told me I have been adjudged as "unemployable." I wondered, if in my search for work it was me. Now I know, it is. God knows now what happens. I do know this that after a while it is hard being told all the time "life is not fair" Especially, when no one else seems to be having the same problems. I am beginning to wonder, what bad karma have I done that has earned me my fate? Shit happens, but I feel cheated, I played by the rules, doen everything as honourably as I can and yet, I can’t pa any one backthat I owe, I can only support myself with the sweet charity of others. I watched the Xmas dinner at the Union Gospel Mission. One meal and people think they have given back to the community. In the meantime thousands are marginalized and ignored to suffer in quiet desparation. I stood in the foodbank line and listened to the teenagers with jobs at the neighbouring McDonalds laugh at us and call us winos and losers. The truth is folks, we are on our own and NOBODY cares about us, our illness or are personal problems except us.
Response:
>The truth is folks, we are on our own and NOBODY cares about us, our >illness or are personal problems except us.
Although there is some truth to that, what you say is not completely true. Here some proof: MEDICAL ORGANIZATION’S PHONE #’S Tourette’s Syndrome Association # 1-800-237-0717 American Cancer Society # 1-800-ACS-2345 Alzheimer’s Association# 1-800-272-3900 Spina Bifida Association# 1-800-621-3141 Retinitis Pigmentosa Foundation # 1-800-638-2300 Simon Foundationfor Incontinence # 1-800-23-SIMON National Neurofibromatosis Foundation # 1-800-323-7938 National Hospice Organization Helpline # 1-800-658-8898 Orton DyslexiaSociety # 1-800-222-3123 National Spinal Cord Injury Hotline # 1-800-526-3456 United Leukodystrophy Foundation # 1-800-728-5483 Multiple Sclerosis Line # 1-800-624-8236 American Diabetes Association # 1-800-232-3472 Employment Opportunity Commission # 1-800-699-EEOC There is a war on disease and although its going really slow, the human family is winning. I predict in another hundred years cases of MS will be rare.
Response:
You just mentioned that ‘no one else seems to be having the same problems’, and then in the next paragraph discuss the dinner at the Union Gospel Mission. Those folks enjoying one nice meal are having the same problems. They do appreciate the efforts of those who want to provide them with ‘one meal’. Everyone should get to enjoy a nice Christmas dinner. The teenagers who laughed and called names will have their own ‘knock upside the head’ soon. What can you buy with the pay from a job at McDonalds? Gas for the car Dad bought them and a few CD’s. Covering their zits is their only worry. You know that they are ignorant and have never had a hard day in their young lives. Oh, to be so ignorant ourselves and not know pain, fear, or hunger. The other axiom in life is "You can’t take it with you". You have given and given and don’t want to take from others because you’ve always been the giver. Give other people a chance to give to you for awhile. I’ve been trying to tell my father-in-law this for years! He would rather be miserable than accept help from us. And makes his wife miserable and us miserable as a result, because he won’t let us do anything for him and her after they did everything for us for so long. How unfair is that to not allow us the opportunity to be the givers? ‘Unemployable’ does NOT mean unwanted. I would have to disagree with anyone who says someone else is ‘unemployable’. Maybe in the traditional sense of employment, but I do know people who are on 100% disability and SSDI who are employed. They have knowledge and skills but it takes an employer who understands their limitations and is willing to let them work on their own schedule. Unfortunately, it usually has to be done ‘under the table’, because of the inconsistency of their health conditions. (Not naming names for their protection!!) It took a long time for them to realize that they had value and worth, but other people kept telling them until they finally believed it. I know you have people telling you the same thing, and you can add me to that list. Kelly
