Tourettes syndrome and sleep insomnia

Question:

In article <372B8BF5.6…@gte.net>,   BradH…@gte.net wrote: > Dagoobster wrote: > > >   You got lessons from the Pillsbury Doughboy? > > You could probably call me the Pillsbury dagoobster……… >    Somehow that doesn’t sound too appealing. >    Do you come in those little tubes that pop open when you start peeling > the wrapper off? >            BradHAWK fresh from the box.

Is that the kind that went off causing a blonde woman to think she had been shot in the back of the head and that her brains were coming out? ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own    

Response:

In article <372BD289.D5C2F…@earthlink.net>, lilh…@earthlink.net writes: >Randall Bart wrote: >>  Unlike you, >> I don’t pick fights for the sake of fighting. >Sometimes it can be fun just to see which buttons to push to get them upset.

Do flies get more upset when you pull off the left wing, or the right? (Must be kinda fun to find out, huh?) – Hide quoted text — Show quoted text ->> I don’t think I’ve ever >> fought with Blessed (have I?) >How would I know? >> I have fought with Haggis a little in the past, but since she knew >> I didn’t fight for the sake of fighting, she actually paid attention to >> what I had to say. Yes, I do listen. >I’m amazed that she pays attention to anyone classified as male, you, me or >anyone else. >> When you go into flame mode, you are mostly ignored. >Randall, if I am so ignored when I am in flame mode then how come there are >so many people screaming about what I am saying?

You just love it, don’t you little man? If you can’t get kisses, then you’ll take kicks. How very sad. >If they are ignoring me how can >they even know what I said? Don’t make sense.

What…?  I don’t think I heard you… >Mark

-Haggis

Response:

RW wrote: >Is that the kind that went off causing a blonde woman to think she had been >shot in the back of the head and that her brains were coming out?

RW, you wicked man !!  <I remember that story … > You took time off of work for a blonde joke? LOL, BB2

Response:

Randall Bart wrote: > Unlike you, > I don’t pick fights for the sake of fighting.  I don’t think I’ve ever > fought with Blessed (have I?), because our disagreements are so rare and > minor.

Now I recall a few times when you’ve corrected me, but how can I fight with someone who is – always joking, – always serious, – and always right !? :-) BB2

Response:

‘Twas Wed, 21 Apr 1999 23:25:27 -0500, when Mark <lilh…@earthlink.net> illuminated alt.support.tourette thusly: >> >Good luck, >> >-Karen >> Glad to see you again :-) ) >> BB2 >You and her both need all you can get. You know I’m really surprised >that neither you nor Haggis nor Randall or a few others haven’t figured >out yet that you are so easy to bait into a fight.

I am well aware that it’s easy to bait Blessed or Haggis into a fight (I’ve seen you do it so many times), but why would I want to?  Unlike you, I don’t pick fights for the sake of fighting.  I don’t think I’ve ever fought with Blessed (have I?), because our disagreements are so rare and minor.  I have fought with Haggis a little in the past, but since she knew I didn’t fight for the sake of fighting, she actually paid attention to what I had to say.  When you go into flame mode, you are mostly ignored. — R B |  Randall Bart a a |/  mailto:Barti…@usa.spam.net      mailto:Barti…@att.spam.net n r |  1-614-538-8764 x230    Please reply without spam    I Love You d t || a    |/ Where have you gone Joe Dimaggio?  99?  7?       MS^7=6/28/107 l    | The Year 2000 Bugs:             http://users.aol.com/PanicYr00 l    |/ Have you solved http://users.aol.com/PanicYr00/Sequence.html ?

Response:

Randall wrote: > I don’t think I’ve ever >fought with Blessed (have I?),

Well, if you/we did ever disagree, I don’t remember it either! BB2

Response:

rphill8…@my-dejanews.com wrote: > Insomnia is the WORST part of my TS. I’ve started taking Klonopin and it > works like a charm. However, before this I tried melatonin. Just to let you > know my experience with melatonin, if you have any RLS "Restless Leg > Syndrome" symptoms, which some people with TS do, melatonin will make them > worse. Or if you don’t have any, melatonin can bring these symptoms on. This > is exactly what happened to me. I’d take a melatonin tablet, get drowsy and > sleepy and when I laid down I had a creepy feeling in my legs as if I had > worms crawling all over them. Fortunately, the neurology clinic I go to has a > lot of sleep specialists so they were able to figure it out fast. (BTW, same > thing happened when I tried over the counter sleep aids!) > Rick

A word of caution here. If you take tegretol DO NOT take melatonin. I have read where several people that did have died. Apparently the combination of tegretol and melatonin combine to form a deadly posion. Mark

Response:

Dagoobster wrote: > >   You got lessons from the Pillsbury Doughboy? > You could probably call me the Pillsbury dagoobster………

        Somehow that doesn’t sound too appealing.         Do you come in those little tubes that pop open when you start peeling the wrapper off?                 BradHAWK fresh from the box.

Response:

Randall Bart wrote: >  Unlike you, > I don’t pick fights for the sake of fighting.

Sometimes it can be fun just to see which buttons to push to get them upset. > I don’t think I’ve ever > fought with Blessed (have I?)

How would I know? > I have fought with Haggis a little in the past, but since she knew > I didn’t fight for the sake of fighting, she actually paid attention to > what I had to say.

I’m amazed that she pays attention to anyone classified as male, you, me or anyone else. > When you go into flame mode, you are mostly ignored.

Randall, if I am so ignored when I am in flame mode then how come there are so many people screaming about what I am saying? If they are ignoring me how can they even know what I said? Don’t make sense. Mark

Response:

I’m using Klonpin, not Clonidine. They are easily confused. In article <19990424231900.11708.00001…@ng26.aol.com>,   otyn40…@aol.com (OTYN400MS) wrote: > My 4 yr was recently diagnosed.  How old are your?  How else did clonidine > "work like a charm"  for you?  What has been the progression of your symptoms?

———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own    

Response:

No. I guess I just figured I wasn’t atypical. The problem I was having was that I needed a sleep aid to get sufficiently drowsy, and then once I took melatonin or an OTC sleep aid I would get drowsy, but start kicking my legs or needing to move my legs to get relief from the creepiness. I didn’t even know what the "creepiness" was until I finally went to a sleep doctor. Rick In article <3722C266.7247F…@home.com>,   "Roger D. Freeman" <rfree…@home.com> wrote: – Hide quoted text — Show quoted text -> Very interesting, but I need to tell you that, since we do extensive > melatonin research, we do NOT find that it creates or aggravates RLS in > our patients. > That is not to say that your experience is unique, and I will tell my > colleagues about it.  Did anyone give you any specific evidence that it > occurs the way you describe in others? > Roger D. Freeman, M.D. > rphill8…@my-dejanews.com wrote: > > Insomnia is the WORST part of my TS. I’ve started taking Klonopin and it > > works like a charm. However, before this I tried melatonin. Just to let you > > know my experience with melatonin, if you have any RLS "Restless Leg > > Syndrome" symptoms, which some people with TS do, melatonin will make them > > worse. Or if you don’t have any, melatonin can bring these symptoms on. This > > is exactly what happened to me. I’d take a melatonin tablet, get drowsy and > > sleepy and when I laid down I had a creepy feeling in my legs as if I had > > worms crawling all over them. Fortunately, the neurology clinic I go to has a > > lot of sleep specialists so they were able to figure it out fast. (BTW, same > > thing happened when I tried over the counter sleep aids!) > > Rick > > ———–== Posted via Deja News, The Discussion Network ==———- > > http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own

———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own    

Response:

           Insomnia is part of tourettes syndrome and my doc put me on 1mg xanax at bedtime.  This worked fine at first but now i find im taking 5-6 mg just to get to bed.  Has anyone had this sort of problems, and what should i bring up to the doc about my insomnia.  Shouldi tell him im taking 5-6 mg xanax just to go to sleep ?  Or will he think im abusing it.  I really need   help. Thanks for  reading, Ryan Sweat ry…@ih2000.net please cc my email in  your reply since im not subscribed to this NG at my business. Thanks you

Response:

 "Ryan Sweat" <bat…@ih2000.net> writes: >Subject:Tourettes syndrome and sleep insomnia >From:       "Ryan Sweat" <bat…@ih2000.net> >Date:       Tue, 13 Apr 1999 22:05:23 -0500

Dear Ryan – I’m going to answer your questions within the body of your message. >Insomnia is part of tourettes syndrome and my doc put me on1mg >xanax at bedtime.  

I was initially given Klonopin for the same reason. >This worked fine at first but now i find im taking 5-6 mg just >to get to bed.  

This is NOT good.  Xanax is highly addictive. >Has anyone had this sort of problems, and what should i >bring up to the doc about my insomnia.  

I think that almost everyone with Tourette has this problem to some degree. You should definitely tell your Dr. >Shouldi tell him im taking 5-6 mg xanax just to go to sleep ?  

Absolutely.   >Or will he think im abusing it.  

You ARE abusing it, and it can make you very, very, sick. If you having a problem with depression, this drug can make it a lot worse. If you AREN’T, it can cause you to BECOME depressed. >I really need help.

Please see your Dr. as soon as possible. Tell him that you want to stop the Xanax. You really need to do this, and he can help. >Thanks for  reading, >Ryan Sweat

Good luck, -Karen

Response:

>Good luck, >-Karen

Glad to see you again :-) ) BB2

Response:

Hi Ryan My son has been dealing with insomnia since age 8. I always attributed it to anxiety but the TS connection makes sense. One of my friends whose daughter was recently diagnosed with TS (possible strep related) was told by the neurologist to make sure the daughter gets plenty of physical activity during the day to allow her to wind down more easily. Have you tried exercise on a regular basis to use up some of the energy? This really helps our son sleep at a reasonable hour.  Alternately, I would think that melatonin may be helpful about an hour or half an hour before bed. Your experience with Rx meds is normal:  you build up a tolerance and must increase levels in order to achieve the same effect. Obviously when you do that, you also increase the likelihood of undesirable side effects.  So, you probably should ask your doctor about it (and don’t worry about him thinking you are abusing it) and then come up with a treatment plan that helps you wean yourself from the Xanax gradually. You probably already know that routine at bedtime is one of the most helpful sleep agents, by the way. If you are awake, don’t dwell on the fact that you can’t sleep. Ignore it–get up and away from bed to disassociate yourself from "BED=No Sleep" and just do something enjoyable with the pressure off.  And let the group know how you are doing. – Hide quoted text — Show quoted text -Ryan Sweat wrote: >            Insomnia is part of tourettes syndrome and my doc put me on 1mg > xanax > at bedtime.  This worked fine at first but now i find im taking 5-6 mg just > to get to bed.  Has anyone had this sort of problems, and what should i > bring up to the doc about my insomnia.  Shouldi tell him im taking 5-6 mg > xanax just to go to sleep ?  Or will he think im abusing it.  I really > need   help. > Thanks for  reading, > Ryan Sweat > ry…@ih2000.net > please cc my email in  your reply since im not subscribed to this NG at my > business. > Thanks you

Response:

BlessedBy2 wrote: > >Good luck, > >-Karen > Glad to see you again :-) ) > BB2

You and her both need all you can get. You know I’m really surprised that neither you nor Haggis nor Randall or a few others haven’t figured out yet that you are so easy to bait into a fight. I can always count on this small group to react in a negative fashion. You’re so predictable it’s not funny. If I’m not all that intelligent how come I can always get a rise out of the three of you when I want to? Mark

Response:

Mark wrote: > You and her both need all you can get. You know I’m really surprised > that neither you nor Haggis nor Randall or a few others haven’t figured > out yet that you are so easy to bait into a fight. I can always count on > this small group to react in a negative fashion. You’re so predictable > it’s not funny. If I’m not all that intelligent how come I can always > get a rise out of the three of you when I want to? > Mark

Predictable, Mark??  That’s always your last line when you’ve run out of everything else.  So, how about this, Mark. You started off as KKK, bullying an innocent youngster who came here looking for support, and you tried to lie your way out of it.  You ran off your mouth and lost your shirt in every department but you’re too ignorant to even realize it. Stop bullying innocent youngsters who come through here.  When you stop being so hateful and using your TS as an excuse, you’ll get the understanding that you asked for in another post.  In the meantime, wake up and smell the roses.  The emperor has no clothes, Mark.  The joke’s on you. No, it’s not pleasant for the rest of us, but you’ve shown a lot of times that this is the only language you speak.  Now we can go back to ignoring your flames until you do it to another youngster — or maybe until you look down and realize you’ve got no clothes covering those 218 pounds and decide you’d rather be part of a group than always tearing it apart. BB2

Response:

<snip> > If I’m not all that intelligent how come I can always > get a rise out of the three of you when I want to? > Mark

        You got lessons from the Pillsbury Doughboy?

Response:

- Hide quoted text — Show quoted text -BlessedBy2 wrote: > Mark wrote: > > You and her both need all you can get. You know I’m really surprised > > that neither you nor Haggis nor Randall or a few others haven’t figured > > out yet that you are so easy to bait into a fight. I can always count on > > this small group to react in a negative fashion. You’re so predictable > > it’s not funny. If I’m not all that intelligent how come I can always > > get a rise out of the three of you when I want to? > > Mark > Predictable, Mark??  That’s always your last line when you’ve run out of > everything else.  So, how about this, Mark. > You started off as KKK, bullying an innocent youngster who came here looking > for support, and you tried to lie your way out of it.  You ran off your > mouth and lost your shirt in every department but you’re too ignorant to > even realize it. > Stop bullying innocent youngsters who come through here.  When you stop > being so hateful and using your TS as an excuse, you’ll get the > understanding that you asked for in another post.  In the meantime, wake up > and smell the roses.  The emperor has no clothes, Mark.  The joke’s on you. > No, it’s not pleasant for the rest of us, but you’ve shown a lot of times > that this is the only language you speak.  Now we can go back to ignoring > your flames until you do it to another youngster — or maybe until you look > down and realize you’ve got no clothes covering those 218 pounds and decide > you’d rather be part of a group than always tearing it apart. > BB2

Like I said, I can always get a rise out of you and you just proved it. Mark

Response:

>   You got lessons from the Pillsbury Doughboy?

You could probably call me the Pillsbury dagoobster……… __________________________________________________________________________ I have married my Faye and destiny!!!!!!!!!!!! Chaim

Response:

Insomnia is the WORST part of my TS. I’ve started taking Klonopin and it works like a charm. However, before this I tried melatonin. Just to let you know my experience with melatonin, if you have any RLS "Restless Leg Syndrome" symptoms, which some people with TS do, melatonin will make them worse. Or if you don’t have any, melatonin can bring these symptoms on. This is exactly what happened to me. I’d take a melatonin tablet, get drowsy and sleepy and when I laid down I had a creepy feeling in my legs as if I had worms crawling all over them. Fortunately, the neurology clinic I go to has a lot of sleep specialists so they were able to figure it out fast. (BTW, same thing happened when I tried over the counter sleep aids!) Rick ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own    

Response:

Be careful with xanax!!!!!!!!!!  Talk about hard to come down off of! Be honest with your doctor so you don’t get yourself in trouble.

Response:

Curious about your 8 year old’s past, as my 4 yr oldhas just been diagnosed with TS.  He has had MAJOR trouble sleeping for about the last 1 1/2 yrs. Could you share with me your history?  Symptoms, age of onset, medications, progression….?  Thank you for your time.

Response:

My 4 yr was recently diagnosed.  How old are your?  How else did clonidine "work like a charm"  for you?  What has been the progression of your symptoms?

Response:

Very interesting, but I need to tell you that, since we do extensive melatonin research, we do NOT find that it creates or aggravates RLS in our patients.   That is not to say that your experience is unique, and I will tell my colleagues about it.  Did anyone give you any specific evidence that it occurs the way you describe in others?   Roger D. Freeman, M.D. – Hide quoted text — Show quoted text -rphill8…@my-dejanews.com wrote: > Insomnia is the WORST part of my TS. I’ve started taking Klonopin and it > works like a charm. However, before this I tried melatonin. Just to let you > know my experience with melatonin, if you have any RLS "Restless Leg > Syndrome" symptoms, which some people with TS do, melatonin will make them > worse. Or if you don’t have any, melatonin can bring these symptoms on. This > is exactly what happened to me. I’d take a melatonin tablet, get drowsy and > sleepy and when I laid down I had a creepy feeling in my legs as if I had > worms crawling all over them. Fortunately, the neurology clinic I go to has a > lot of sleep specialists so they were able to figure it out fast. (BTW, same > thing happened when I tried over the counter sleep aids!) > Rick > ———–== Posted via Deja News, The Discussion Network ==———- > http://www.dejanews.com/       Search, Read, Discuss, or Start Your Own

Response:

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