Web Site for Adults ONLY with TS
Question:
I’m in the process of learning Dreamweaver, a program for developing websites. I hope to have a site that is exclusively for adults with Tourette Syndrome, something I think is needed in the TS community. Among the topics I would like to post are: Medical issuses of adults with TS. Accomplishments of adults with TS. Writings about TS by adults with TS. How TS affects us as we age. The law and adults with TS. Employment issues and adults with TS. Education issues concerning adults with TS. I see the site as one that will evolve over time. However, as far as graphics go, I want to keep things plain and simple so that the pages will download quickly. Take a look at my site: www.ddonin.com I’m interested in your comments and suggestions. You can write me at brook…@ddonin.com Please keep in mind that I’m new at developing internet sites. Therefore, I’m not yet ready to write code or to even implement the code witten by others. Thanks, Don Donin
Response:
On Mon, 26 Apr 1999 01:45:02 -0400, "brooklyn" <brook…@prodigy.net> wrote: >I’m interested in your comments and suggestions. You can write me at >brook…@ddonin.com
The only thing I’d like to see you change is the menu bar. Can you make that sucker proportional? >Please keep in mind that I’m new at developing internet sites. Therefore, >I’m not yet ready to write code or to even implement the code witten by >others.
What kind of code did you have in mind? -Greg G — -Greg "TORCHA" Gershowitz -DGX3K’s own Extreme Icon To Reply: See the organization line Spam sucks. Fuck you spammers. Have a Nice Day. http://www.geocities.com/Area51/5207
Response:
The site sounds GREAT, but I want to be able to go there. I have had TS symptoms (from snorting to bending my head back until it went numb to clearing my throat until 2:00 am)I am 22 yrs old. When I first saw a talk show on TS, I felt like I was looking into a mirror. When I made a face, someone at college told me I had TS. A psychologist told me I MIGHT have TS. I meet the diagnostic criteria, but I wonder about the 3 month thing. If I stop for three months do I stop having TS? Identity Crisis. Would I be allowed to come to your site. I like the sound of a "TS Community". I identify with you all and OBSESSIVELY support TSers. I have a history of obsessing on things (from being the top Latin scholar to cute surfers at the beach to women’s equality). I consider TSers my brothers and sisters. Sometimes I think of doing something, then I worry that I have to do it or I can’t be down with you all. I really don’t want to hurt myself in the process. I am not severe. If I wanted to stop, maybe I could? In the past I couldn’t. But now, perhaps. Help! Can I support you all anyway? Believe me, I am good to have on your side because I am positive, supportive, and have similar experinces. I like finding people who have unique things in common with me. In the TS chat room, I found I could state something about myself than nobody can identify with and they say, "Me too." (Like super sensitivity to high pitches, the TS temper, etc.) Advise? What should I do? J.A.M.
Response:
> I have had TS >symptoms (from snorting to bending my head back until it went numb to >clearing >my throat until 2:00 am)I am 22 yrs old. When I first saw a talk show on TS, >I >felt like I was looking into a mirror. When I made a face, someone at >college >told me I had TS. A psychologist told me I MIGHT have TS. I meet the >diagnostic criteria,
I’ve got TS, but I’ve never been ‘officially diagnosed’. Seems to me that TS is almost a thing that one must diagnose themselves for anyway……a doctor can never feel the urges behind the tics, all (s)he can go by is what we tell them…and so many docs know so little about TS anyway…… if a doc told me I didn’t have TS, it wouldn’t make a difference to me.. _I_ know I have it. > but I wonder about the 3 month thing. If I stop for three >months do I stop having TS?
Waxing and waning is normal. I don’t think that one wouldn’t have TS anymore. > I have a history of obsessing on things (from being >the top Latin scholar to cute surfers at the beach to women’s equality).
(foreign language scholar, starving artists, and women’s equality are some of my obsessions!! LOL) > Sometimes I think of doing something, >then I worry that I have to do it or I can’t be down with you all.
What do ya think ya gotta do??? > I am not severe. If I wanted to >stop, maybe I could? In the past I couldn’t. But now, perhaps.
I get on that trip sometimes too. I kinda like my tics…ticcing feels good, like scratching an itch. and I start to wonder, do I REALLY have to tic? or do I just enjoy ticcing for some weird, perverse reason? So I try to stop, I focus all my attention on NOT ticcing….lasts about 10 seconds, if I’m lucky…but I still wonder sometimes…. >Can I >support you all anyway? Believe me, I am good to have on your side because I >am positive, supportive, and have similar experinces.
Don’t worry about supporting, just hang out! It’s surprising the things that one might find supporting isn’t what we always expect? I seem to find the most support from people willling to debate issues with me, sometimes about TS, sometimes not? A lot of the parents say they get help from us adults, not only from talking about what it was like for us as kids, but just now we post, how our minds work? >I like finding people >who have unique things in common with me. In the TS chat room, I found I >could >state something about myself than nobody can identify with and they say, "Me >too."
It IS cool to finally talk to other TSers…I never had till I got this computer last year, and now I’ve even met some in person. Wow!! it’s been great!! I hang out in the chat room a lot, next time you’re in there, say ‘Hola!’ I’m usually signed in as ‘Haejin’. 
>Advise? >What should I do?
Do what you WANT to do?? You’re not the only one without an official diagnosis, don’t worry about it! And we could use more adult TSers here! :) Dominique
