Jojo Update
Question:
- Hide quoted text — Show quoted text -> Dear Jo, > So sorry to hear things are so tough for you right now. This Botox dilemma > must be very draining. Do you have to plan time off for the first few weeks > after an injection? Wow. What a quandry… Botox to make, among other > things, work life easier affects your ability to do your work! Catch 22 > indeed. > Can’t offer much but a hug, and some encouragement. I am glad you are > letting us know how you are doing. You deserve some of the support that you > offer, I’m sure at great emotional cost sometimes, to other people! > I wish you sweet dreams, Jo! > Benita
)) Thanks, Benita. Yes, I do have to re-schedule around the Botox. Limited phone use, ability to communicate with friends and relatives makes it hard, too. On the good side, I can no longer use the drive thru at fast food places!! hee hee Study tonight, wish me luck.. Jo ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!uni-erlangen.de!news-nue1.dfn.de!news-lei1.dfn.de!new sfeed00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news.maxwell .syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: "Jo Cohen" <joco…@mediaone.net> Control: cancel <O4%_7.64623$Sj1.25964…@typhoon.ne.mediaone.net> Subject: cmsg cancel <O4%_7.64623$Sj1.25964…@typhoon.ne.mediaone.net> Newsgroups: alt.support.tourette Message-ID: <cancel.O4%_7.64623$Sj1.25964990@typhoon.ne.mediaone.net> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 17:49:56 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010784033 209.3.144.105 (Fri, 11 Jan 2002 15:20:33 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:20:33 CST Xref: news.uni-stuttgart.de control:40445710 autocancel
Response:
"Jo Cohen" <joco…@mediaone.net> wrote in message
news:3XO_7.64340$Sj1.25582830@typhoon.ne.mediaone.net… – Hide quoted text — Show quoted text -> I just wanted to briefly share a few personal things with AST…. > 1. Botox is and has been worn off for close to a month. It’s been very > difficult both physically and mentally as the vocals have come back louder > than in the past year, although remain less than at baseline (i.e., > pre-Botox). This in turn affects my mood, self-esteem, comfort level in > public, etc. Coprolalia has also returned, and of course (curse) can now be > heard quite clearly. i guess the Botox relief really spoiled me. The > increase in louder vocals also takes its toll on my body, since such yelling > and shouting tenses my back and other muscles. my throat has been sore for > weeks now. Motor tics remain OK. > 2. As I chided Randall for telling you publically, I’ve had trouble with my > sleep schedule and have changed med dosages (not types) a few times to help > balance this. I am currently lucky if I get to sleep before 3-4 a.m. I wake > early when I have to, but have gotten adept at scheduling things later. Many > days I must sleep past 1 p.m., and remain drowsy all day. > 3. Despite my enthusiasm for exercise and eating right, and the loss of 10 > pounds and 40 inches, that has ceased for now, mainly because of my sleeping > and eating schedules, and drowsiness precluding much exercise except late > afternoon hikes in the woods or working out in the gym or a weekly swim-date > with a female friend. > Anyway, tomorrow night I’m going in for a sleep study. We’ll see what it > shows. Hopefully not sleep apnea. We know something REM related is going on, > (and probably has for years). I just know there is more tweaking that needs > to be done in my life, with meds and scheduling, and even with my long-term > goals perhaps. I think I’ve been a bit in denial about how much time, > emotion, and energy it takes to do what I strive to do, while managing TS > and other medical issues. It’s hard. > It can feel like one step forward and one step back. It can feel like always > climbing uphill. > I may be joining a formal yoga group weekly, along with some other > structured things where I can get some support for me, make new friends, and > not focus so much on TS+, especially when my work involves that as well. I > absorb much frustration for my clients and THEIR issues, as well as anger at > the school systems who take advantage of the parents who do not have the > capacity to speak up to them/demand proper treatment for their kids. I can’t > do everything for them. > Clearly the recent rift with MA TSA is upsetting as well, as are the private > emails I am getting validating what I have gone through with TSA….and how > fear of making some very well-known and very serious issues against TSA > keeps people from trying to make change…. > All this, feeling greatly for Kat, along with the issues that has stirred > for many of us, the New Year, etc. etc are just wearing me down. > I am planning my next Botox shot in late January, but that will either > involve a lower dose so that I can communicate (which has the risk of it > either not working, or not working for as long) or the same dose which > provides tremendous relief but takes it’s toll with the subsquent 3-6 weeks > of not being audible..not being able to use the phone, give lectures, even > see clients or meet new ones….Catch 22. > Well, I just wanted to share that with you…as hard as that is for > me…..I’m learning slowly to let go of the pretenses that everything is > always OK….I know it will be again…but right not it just ain’t…. > Maybe after the study a few days Down East might soothe the soul….. > Jo
Dear Jo, So sorry to hear things are so tough for you right now. This Botox dilemma must be very draining. Do you have to plan time off for the first few weeks after an injection? Wow. What a quandry… Botox to make, among other things, work life easier affects your ability to do your work! Catch 22 indeed. Can’t offer much but a hug, and some encouragement. I am glad you are letting us know how you are doing. You deserve some of the support that you offer, I’m sure at great emotional cost sometimes, to other people! I wish you sweet dreams, Jo! Benita ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!uni-erlangen.de!news-nue1.dfn.de!news-lei1.dfn.de!new sfeed00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news.maxwell .syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: "BENITA M WINSLOW" <Ben…@prodigy.net> Control: cancel <VqP_7.4517$Hy3.817782…@newssvr15.news.prodigy.com> Subject: cmsg cancel <VqP_7.4517$Hy3.817782…@newssvr15.news.prodigy.com> Newsgroups: alt.support.tourette X-Auth-User: 717117157/bc214c2413c04a01 X-Post-Time: Fri, 11 Jan 2002 20:18:38 GMT X-Problems-To: ab…@prodigy.com Message-ID: <cancel.VqP_7.4517$Hy3.817782…@newssvr15.news.prodigy.com> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 19:48:25 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010784188 209.3.144.105 (Fri, 11 Jan 2002 15:23:08 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:23:08 CST Xref: news.uni-stuttgart.de control:40446120 autocancel
Response:
"Jo Cohen" <joco…@mediaone.net> wrote in message
news:2R2%7.64677$Sj1.26065946@typhoon.ne.mediaone.net… – Hide quoted text — Show quoted text -> > Dearest Jo, > > We love you. I’m so sorry it’s so tough for you right now. I wish I > could > > give you a hug. You do so much for so many, you are such a bright spot in > > every day. > > Persecution hurts, Jo, and so do physical problems. I’m sorry you have > both at > > the same time. :( > > (((((((((((Jo))))))))))) > > Love, > > Sara > Thanks, Sara, this means a lot to me… > Today has been even worse – I thought I pulled a muscle in my back this > morning (after ahorrible night). After my massage therapist worked on it for > 1/2 hour we both realized since I was really in pain and could hardly > breathe, that it must be a rib. > I drove straight to my chiropractor (in tears now, wondering how much more I > must endure before tonight’s sleep study). He took me gasping and crying and > found that indeed I had torqued a rib, which was pressing on my diaphragm, > making it hard to breathe. In pain and scared, i began hyperventilating and > almost passed out. He calmed me, did one adjustment which helped me breathe, > then a few more to get the rib into place. > It still hurts like hell, and breathing is still tough at times, but I am > home now after errands and once my friend gets here to stay with the dogs > I’ll leave for the hospital. C’est la vie…. > So, I’ll see you guys when I’m back….. > Keep an eye on the shop while I’m gone :0) > Jo
Dear Jo, I will be keeping you in my thoughts tonight, even in my dreams. I hope that the sleep study works out and yields good information that will help you get some good rest, darlin’. Again, sweet dreams, Benita ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!fu-berlin.de!news.maxwell.syr.edu!feed.news.qwest.net !news.uswest.net.POSTED!u_n_a__c_ancel From: "BENITA M WINSLOW" <Ben…@prodigy.net> Control: cancel <d_8%7.4651$nm4.625413…@newssvr16.news.prodigy.com> Subject: cmsg cancel <d_8%7.4651$nm4.625413…@newssvr16.news.prodigy.com> Newsgroups: alt.support.tourette X-Auth-User: 075155552/606c20d1e8258d0f X-Post-Time: Fri, 11 Jan 2002 18:39:56 GMT X-Problems-To: ab…@prodigy.com Message-ID: <cancel.d_8%7.4651$nm4.625413…@newssvr16.news.prodigy.com> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 18:45:52 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010783924 209.3.144.105 (Fri, 11 Jan 2002 15:18:44 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:18:44 CST Xref: news.uni-stuttgart.de control:40445489 autocancel
Response:
> Dearest Jo, > We love you. I’m so sorry it’s so tough for you right now. I wish I could > give you a hug. You do so much for so many, you are such a bright spot in > every day. > Persecution hurts, Jo, and so do physical problems. I’m sorry you have both at > the same time. :( > (((((((((((Jo))))))))))) > Love, > Sara
Thanks, Sara, this means a lot to me… Today has been even worse – I thought I pulled a muscle in my back this morning (after ahorrible night). After my massage therapist worked on it for 1/2 hour we both realized since I was really in pain and could hardly breathe, that it must be a rib. I drove straight to my chiropractor (in tears now, wondering how much more I must endure before tonight’s sleep study). He took me gasping and crying and found that indeed I had torqued a rib, which was pressing on my diaphragm, making it hard to breathe. In pain and scared, i began hyperventilating and almost passed out. He calmed me, did one adjustment which helped me breathe, then a few more to get the rib into place. It still hurts like hell, and breathing is still tough at times, but I am home now after errands and once my friend gets here to stay with the dogs I’ll leave for the hospital. C’est la vie…. So, I’ll see you guys when I’m back….. Keep an eye on the shop while I’m gone :0) Jo
Response:
- Hide quoted text — Show quoted text -"Jo Cohen" <joco…@mediaone.net> wrote in message > > Dearest Jo, > > We love you. I’m so sorry it’s so tough for you right now. I wish I > could > > give you a hug. You do so much for so many, you are such a bright spot in > > every day. > > Persecution hurts, Jo, and so do physical problems. I’m sorry you have > both at > > the same time. :( > > (((((((((((Jo))))))))))) > > Love, > > Sara > Thanks, Sara, this means a lot to me… > Today has been even worse – I thought I pulled a muscle in my back this > morning (after ahorrible night). After my massage therapist worked on it for > 1/2 hour we both realized since I was really in pain and could hardly > breathe, that it must be a rib. > I drove straight to my chiropractor (in tears now, wondering how much more I > must endure before tonight’s sleep study). He took me gasping and crying and > found that indeed I had torqued a rib, which was pressing on my diaphragm, > making it hard to breathe. In pain and scared, i began hyperventilating and > almost passed out. He calmed me, did one adjustment which helped me breathe, > then a few more to get the rib into place. > It still hurts like hell, and breathing is still tough at times, but I am > home now after errands and once my friend gets here to stay with the dogs > I’ll leave for the hospital. C’est la vie…. > So, I’ll see you guys when I’m back….. > Keep an eye on the shop while I’m gone :0) > Jo
All the best to you, Jo. Hope the sleep study goes alright. That’d be quite an experience I would imagine… especially if you’re in pain to begin with. Hope you’re feeling better really fast there. Lara
Response:
- Hide quoted text — Show quoted text -"Jo Cohen" <joco…@mediaone.net> wrote in message > > Dearest Jo, > > We love you. I’m so sorry it’s so tough for you right now. I wish I > could > > give you a hug. You do so much for so many, you are such a bright spot in > > every day. > > Persecution hurts, Jo, and so do physical problems. I’m sorry you have > both at > > the same time. :( > > (((((((((((Jo))))))))))) > > Love, > > Sara > Thanks, Sara, this means a lot to me… > Today has been even worse – I thought I pulled a muscle in my back this > morning (after ahorrible night). After my massage therapist worked on it for > 1/2 hour we both realized since I was really in pain and could hardly > breathe, that it must be a rib. > I drove straight to my chiropractor (in tears now, wondering how much more I > must endure before tonight’s sleep study). He took me gasping and crying and > found that indeed I had torqued a rib, which was pressing on my diaphragm, > making it hard to breathe. In pain and scared, i began hyperventilating and > almost passed out. He calmed me, did one adjustment which helped me breathe, > then a few more to get the rib into place. > It still hurts like hell, and breathing is still tough at times, but I am > home now after errands and once my friend gets here to stay with the dogs > I’ll leave for the hospital. C’est la vie…. > So, I’ll see you guys when I’m back….. > Keep an eye on the shop while I’m gone :0) > Jo
All the best to you, Jo. Hope the sleep study goes alright. That’d be quite an experience I would imagine… especially if you’re in pain to begin with. Hope you’re feeling better really fast there. Lara ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!rz.uni-karlsruhe.de!schlund.de!newsfeed01.sul.t-onlin e.de!newsfeed00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news .maxwell.syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: "Lara" <kbu…@tpg.com.au> Control: cancel <3c3cc…@dnews.tpgi.com.au> Subject: cmsg cancel <3c3cc…@dnews.tpgi.com.au> Newsgroups: alt.support.tourette Message-ID: <cancel.3c3cc…@dnews.tpgi.com.au> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 20:27:15 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010783962 209.3.144.105 (Fri, 11 Jan 2002 15:19:22 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:19:22 CST Xref: news.uni-stuttgart.de control:40445569 autocancel
Response:
"Jo Cohen" <joco…@mediaone.net> wrote in message
news:3XO_7.64340$Sj1.25582830@typhoon.ne.mediaone.net… – Hide quoted text — Show quoted text -> I just wanted to briefly share a few personal things with AST…. > 1. Botox is and has been worn off for close to a month. It’s been very > difficult both physically and mentally as the vocals have come back louder > than in the past year, although remain less than at baseline (i.e., > pre-Botox). This in turn affects my mood, self-esteem, comfort level in > public, etc. Coprolalia has also returned, and of course (curse) can now be > heard quite clearly. i guess the Botox relief really spoiled me. The > increase in louder vocals also takes its toll on my body, since such yelling > and shouting tenses my back and other muscles. my throat has been sore for > weeks now. Motor tics remain OK. > 2. As I chided Randall for telling you publically, I’ve had trouble with my > sleep schedule and have changed med dosages (not types) a few times to help > balance this. I am currently lucky if I get to sleep before 3-4 a.m. I wake > early when I have to, but have gotten adept at scheduling things later. Many > days I must sleep past 1 p.m., and remain drowsy all day. > 3. Despite my enthusiasm for exercise and eating right, and the loss of 10 > pounds and 40 inches, that has ceased for now, mainly because of my sleeping > and eating schedules, and drowsiness precluding much exercise except late > afternoon hikes in the woods or working out in the gym or a weekly swim-date > with a female friend. > Anyway, tomorrow night I’m going in for a sleep study. We’ll see what it > shows. Hopefully not sleep apnea. We know something REM related is going on, > (and probably has for years). I just know there is more tweaking that needs > to be done in my life, with meds and scheduling, and even with my long-term > goals perhaps. I think I’ve been a bit in denial about how much time, > emotion, and energy it takes to do what I strive to do, while managing TS > and other medical issues. It’s hard. > It can feel like one step forward and one step back. It can feel like always > climbing uphill. > I may be joining a formal yoga group weekly, along with some other > structured things where I can get some support for me, make new friends, and > not focus so much on TS+, especially when my work involves that as well. I > absorb much frustration for my clients and THEIR issues, as well as anger at > the school systems who take advantage of the parents who do not have the > capacity to speak up to them/demand proper treatment for their kids. I can’t > do everything for them. > Clearly the recent rift with MA TSA is upsetting as well, as are the private > emails I am getting validating what I have gone through with TSA….and how > fear of making some very well-known and very serious issues against TSA > keeps people from trying to make change…. > All this, feeling greatly for Kat, along with the issues that has stirred > for many of us, the New Year, etc. etc are just wearing me down. > I am planning my next Botox shot in late January, but that will either > involve a lower dose so that I can communicate (which has the risk of it > either not working, or not working for as long) or the same dose which > provides tremendous relief but takes it’s toll with the subsquent 3-6 weeks > of not being audible..not being able to use the phone, give lectures, even > see clients or meet new ones….Catch 22. > Well, I just wanted to share that with you…as hard as that is for > me…..I’m learning slowly to let go of the pretenses that everything is > always OK….I know it will be again…but right not it just ain’t…. > Maybe after the study a few days Down East might soothe the soul….. > Jo
Dear Jo, So sorry to hear things are so tough for you right now. This Botox dilemma must be very draining. Do you have to plan time off for the first few weeks after an injection? Wow. What a quandry… Botox to make, among other things, work life easier affects your ability to do your work! Catch 22 indeed. Can’t offer much but a hug, and some encouragement. I am glad you are letting us know how you are doing. You deserve some of the support that you offer, I’m sure at great emotional cost sometimes, to other people! I wish you sweet dreams, Jo! Benita – Hide quoted text — Show quoted text –
Response:
In article <3XO_7.64340$Sj1.25582…@typhoon.ne.mediaone.net>, "Jo Cohen" <joco…@mediaone.net> wrote:
Dear Jo – I’m so sorry to hear how tough things are for you. It was quite a shock coming after the previous post I read which was those great lines about 2001. > It can feel like one step forward and one step back. It can feel like always > climbing uphill.
This is something I empathize with a lot. Everytime I felt like I had made progress for my depression and the associated life problems I would realize that I had just reached a small plateau and the mountain was still looming over me. It was always so hard to overcome the frustration and start pushing forward again. I don’t have time to see my therapist this year because I’m focusing on Alex and family dynamics – the mountain climbing is different hill is different. Each time I feel like I can’t possibly put any more energy into my family, I realize that I have to. I’ve been like a clinging vine since childhood and being the one who provides the answers, the energy and the support is working mental and emotional muscles I never even knew I had. You are so amazing – you do so incredibly much. lesliedelong when I’m posting, you know I’m in avoidance mode. ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!uni-erlangen.de!news-nue1.dfn.de!news-lei1.dfn.de!new sfeed00.sul.t-online.de!newsfeed01.sul.t-online.de!t-online.de!feed.news.na camar.de!news.maxwell.syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_ n_a__c_ancel From: LeslieDeL…@alum.mit.edu (Leslie DeLong) Control: cancel <LeslieDeLong-0901021117290…@net243-81.med.yale.edu> Subject: cmsg cancel <LeslieDeLong-0901021117290…@net243-81.med.yale.edu> Newsgroups: alt.support.tourette Message-ID: <cancel.LeslieDeLong-0901021117290001@net243-81.med.yale.edu> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 17:29:11 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010784063 209.3.144.105 (Fri, 11 Jan 2002 15:21:03 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:21:03 CST Xref: news.uni-stuttgart.de control:40445783 autocancel
Response:
Dear Jo, I realize it has been a few days since your original post, sorry it has taken me so long to respond, but please know I am thinking about you and hoping everything will ease up soon. Hugs… Kim
Response:
Jo wrote: >> It can feel like one step forward and one step back. It can feel like >always >> climbing uphill.
Dearest Jo, We love you. I’m so sorry it’s so tough for you right now. I wish I could give you a hug. You do so much for so many, you are such a bright spot in every day. Persecution hurts, Jo, and so do physical problems. I’m sorry you have both at the same time. :( (((((((((((Jo))))))))))) Love, Sara ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!blackbush.xlink.net!blackbush.de.kpnqwest.net!newsfee d00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news.maxwell.syr .edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: sesgard…@aol.com (Sesgardner) Control: cancel <20020109123237.17450.00000…@mb-fy.aol.com> Subject: cmsg cancel <20020109123237.17450.00000…@mb-fy.aol.com> Newsgroups: alt.support.tourette X-Admin: n…@aol.com Organization: AOL http://www.aol.com Message-ID: <cancel.20020109123237.17450.00000441@mb-fy.aol.com> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 21:06:08 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010784047 209.3.144.105 (Fri, 11 Jan 2002 15:20:47 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:20:47 CST Xref: news.uni-stuttgart.de control:40445740 autocancel
Response:
Dear Jo, I realize it has been a few days since your original post, sorry it has taken me so long to respond, but please know I am thinking about you and hoping everything will ease up soon. Hugs… Kim ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!uni-erlangen.de!news-nue1.dfn.de!news-lei1.dfn.de!new sfeed00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news.maxwell .syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: kurlygir…@aol.com (Kurlygirl) Control: cancel <20020111003210.01587.00001…@mb-cu.aol.com> Subject: cmsg cancel <20020111003210.01587.00001…@mb-cu.aol.com> Newsgroups: alt.support.tourette X-Admin: n…@aol.com Organization: AOL http://www.aol.com Message-ID: <cancel.20020111003210.01587.00001264@mb-cu.aol.com> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 17:50:38 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010783290 209.3.144.105 (Fri, 11 Jan 2002 15:08:10 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:08:10 CST Xref: news.uni-stuttgart.de control:40444395 autocancel
Response:
> Dearest Jo, > We love you. I’m so sorry it’s so tough for you right now. I wish I could > give you a hug. You do so much for so many, you are such a bright spot in > every day. > Persecution hurts, Jo, and so do physical problems. I’m sorry you have both at > the same time. :( > (((((((((((Jo))))))))))) > Love, > Sara
Thanks, Sara, this means a lot to me… Today has been even worse – I thought I pulled a muscle in my back this morning (after ahorrible night). After my massage therapist worked on it for 1/2 hour we both realized since I was really in pain and could hardly breathe, that it must be a rib. I drove straight to my chiropractor (in tears now, wondering how much more I must endure before tonight’s sleep study). He took me gasping and crying and found that indeed I had torqued a rib, which was pressing on my diaphragm, making it hard to breathe. In pain and scared, i began hyperventilating and almost passed out. He calmed me, did one adjustment which helped me breathe, then a few more to get the rib into place. It still hurts like hell, and breathing is still tough at times, but I am home now after errands and once my friend gets here to stay with the dogs I’ll leave for the hospital. C’est la vie…. So, I’ll see you guys when I’m back….. Keep an eye on the shop while I’m gone :0) Jo ========= WAS CANCELLED BY =======: Path: news.uni-stuttgart.de!rz.uni-karlsruhe.de!schlund.de!newsfeed01.sul.t-onlin e.de!newsfeed00.sul.t-online.de!t-online.de!news-spur1.maxwell.syr.edu!news .maxwell.syr.edu!feed.news.qwest.net!news.uswest.net.POSTED!u_n_a__c_ancel From: "Jo Cohen" <joco…@mediaone.net> Control: cancel <2R2%7.64677$Sj1.26065…@typhoon.ne.mediaone.net> Subject: cmsg cancel <2R2%7.64677$Sj1.26065…@typhoon.ne.mediaone.net> Newsgroups: alt.support.tourette Message-ID: <cancel.2R2%7.64677$Sj1.26065946@typhoon.ne.mediaone.net> X-No-Archive: yes Lines: 2 Date: Fri, 11 Jan 2002 18:46:09 GMT NNTP-Posting-Host: 209.3.144.105 X-Trace: news.uswest.net 1010783967 209.3.144.105 (Fri, 11 Jan 2002 15:19:27 CST) NNTP-Posting-Date: Fri, 11 Jan 2002 15:19:27 CST Xref: news.uni-stuttgart.de control:40445581 autocancel
Response:
"Jo Cohen" <joco…@mediaone.net> wrote in message
news:2R2%7.64677$Sj1.26065946@typhoon.ne.mediaone.net… – Hide quoted text — Show quoted text -> > Dearest Jo, > > We love you. I’m so sorry it’s so tough for you right now. I wish I > could > > give you a hug. You do so much for so many, you are such a bright spot in > > every day. > > Persecution hurts, Jo, and so do physical problems. I’m sorry you have > both at > > the same time. :( > > (((((((((((Jo))))))))))) > > Love, > > Sara > Thanks, Sara, this means a lot to me… > Today has been even worse – I thought I pulled a muscle in my back this > morning (after ahorrible night). After my massage therapist worked on it for > 1/2 hour we both realized since I was really in pain and could hardly > breathe, that it must be a rib. > I drove straight to my chiropractor (in tears now, wondering how much more I > must endure before tonight’s sleep study). He took me gasping and crying and > found that indeed I had torqued a rib, which was pressing on my diaphragm, > making it hard to breathe. In pain and scared, i began hyperventilating and > almost passed out. He calmed me, did one adjustment which helped me breathe, > then a few more to get the rib into place. > It still hurts like hell, and breathing is still tough at times, but I am > home now after errands and once my friend gets here to stay with the dogs > I’ll leave for the hospital. C’est la vie…. > So, I’ll see you guys when I’m back….. > Keep an eye on the shop while I’m gone :0) > Jo
Dear Jo, I will be keeping you in my thoughts tonight, even in my dreams. I hope that the sleep study works out and yields good information that will help you get some good rest, darlin’. Again, sweet dreams, Benita
Response:
I just wanted to briefly share a few personal things with AST…. 1. Botox is and has been worn off for close to a month. It’s been very difficult both physically and mentally as the vocals have come back louder than in the past year, although remain less than at baseline (i.e., pre-Botox). This in turn affects my mood, self-esteem, comfort level in public, etc. Coprolalia has also returned, and of course (curse) can now be heard quite clearly. i guess the Botox relief really spoiled me. The increase in louder vocals also takes its toll on my body, since such yelling and shouting tenses my back and other muscles. my throat has been sore for weeks now. Motor tics remain OK. 2. As I chided Randall for telling you publically, I’ve had trouble with my sleep schedule and have changed med dosages (not types) a few times to help balance this. I am currently lucky if I get to sleep before 3-4 a.m. I wake early when I have to, but have gotten adept at scheduling things later. Many days I must sleep past 1 p.m., and remain drowsy all day. 3. Despite my enthusiasm for exercise and eating right, and the loss of 10 pounds and 40 inches, that has ceased for now, mainly because of my sleeping and eating schedules, and drowsiness precluding much exercise except late afternoon hikes in the woods or working out in the gym or a weekly swim-date with a female friend. Anyway, tomorrow night I’m going in for a sleep study. We’ll see what it shows. Hopefully not sleep apnea. We know something REM related is going on, (and probably has for years). I just know there is more tweaking that needs to be done in my life, with meds and scheduling, and even with my long-term goals perhaps. I think I’ve been a bit in denial about how much time, emotion, and energy it takes to do what I strive to do, while managing TS and other medical issues. It’s hard. It can feel like one step forward and one step back. It can feel like always climbing uphill. I may be joining a formal yoga group weekly, along with some other structured things where I can get some support for me, make new friends, and not focus so much on TS+, especially when my work involves that as well. I absorb much frustration for my clients and THEIR issues, as well as anger at the school systems who take advantage of the parents who do not have the capacity to speak up to them/demand proper treatment for their kids. I can’t do everything for them. Clearly the recent rift with MA TSA is upsetting as well, as are the private emails I am getting validating what I have gone through with TSA….and how fear of making some very well-known and very serious issues against TSA keeps people from trying to make change…. All this, feeling greatly for Kat, along with the issues that has stirred for many of us, the New Year, etc. etc are just wearing me down. I am planning my next Botox shot in late January, but that will either involve a lower dose so that I can communicate (which has the risk of it either not working, or not working for as long) or the same dose which provides tremendous relief but takes it’s toll with the subsquent 3-6 weeks of not being audible..not being able to use the phone, give lectures, even see clients or meet new ones….Catch 22. Well, I just wanted to share that with you…as hard as that is for me…..I’m learning slowly to let go of the pretenses that everything is always OK….I know it will be again…but right not it just ain’t…. Maybe after the study a few days Down East might soothe the soul….. Jo
Response:
In article <3XO_7.64340$Sj1.25582…@typhoon.ne.mediaone.net>, "Jo Cohen" <joco…@mediaone.net> wrote:
Dear Jo – I’m so sorry to hear how tough things are for you. It was quite a shock coming after the previous post I read which was those great lines about 2001. > It can feel like one step forward and one step back. It can feel like always > climbing uphill.
This is something I empathize with a lot. Everytime I felt like I had made progress for my depression and the associated life problems I would realize that I had just reached a small plateau and the mountain was still looming over me. It was always so hard to overcome the frustration and start pushing forward again. I don’t have time to see my therapist this year because I’m focusing on Alex and family dynamics – the mountain climbing is different hill is different. Each time I feel like I can’t possibly put any more energy into my family, I realize that I have to. I’ve been like a clinging vine since childhood and being the one who provides the answers, the energy and the support is working mental and emotional muscles I never even knew I had. You are so amazing – you do so incredibly much. lesliedelong when I’m posting, you know I’m in avoidance mode.
Response:
Jo wrote: >> It can feel like one step forward and one step back. It can feel like >always >> climbing uphill.
Dearest Jo, We love you. I’m so sorry it’s so tough for you right now. I wish I could give you a hug. You do so much for so many, you are such a bright spot in every day. Persecution hurts, Jo, and so do physical problems. I’m sorry you have both at the same time. :( (((((((((((Jo))))))))))) Love, Sara
Response:
- Hide quoted text — Show quoted text -> Dear Jo, > So sorry to hear things are so tough for you right now. This Botox dilemma > must be very draining. Do you have to plan time off for the first few weeks > after an injection? Wow. What a quandry… Botox to make, among other > things, work life easier affects your ability to do your work! Catch 22 > indeed. > Can’t offer much but a hug, and some encouragement. I am glad you are > letting us know how you are doing. You deserve some of the support that you > offer, I’m sure at great emotional cost sometimes, to other people! > I wish you sweet dreams, Jo! > Benita
)) Thanks, Benita. Yes, I do have to re-schedule around the Botox. Limited phone use, ability to communicate with friends and relatives makes it hard, too. On the good side, I can no longer use the drive thru at fast food places!! hee hee Study tonight, wish me luck.. Jo
