Please help
Question:
"gnlwood" <gnlw…@aol.com> wrote in message
news:20030209193123.03252.00000620@mb-cr.aol.com… > Does anyone know. Can you get tolerant to Tenex or could it just have been a > really long waning period for that tic. > Lisa
I have no scientific proof to back me, but yes, IMHO i think you can get tolerant to Tenex. My son did well on Tenex for a year when all of a sudden all of his tics came back like he was unmedicated. He was already on a pretty high dose for his age and rather than raise the dose, or change to an SSRI, we chose to take him off it and give his body a rest from meds. What followed was a pretty hellish time where i think he got every tic out that he missed while on the med. :( After about 6 months we tried Clonidine, which didn’t seem to do a whole lot for him. It did take the edge off the tics, but took months for that to happen, and was so slow that i thought the Clonidine had no effect until i took him off it and realized he was ticcing way more. We messed with Clonidine for about 6 months when ADD issues forced us to try Tenex again. He has been on Tenex for just over a year and things are going well, but i have a fear that it is going to burn out again. I am really sorry you and your son are going through this Lisa. I remember there were days when i would chant "He’s only peaking, he will wane, we will get through this." I know how tough it is. Take Care, Jodi
Response:
Thank you everyone for your support and advise. It’s so good to have you here to understand because unless you or your child is going thru it, it is impossible to understand. My son went to school this morning, tic seemed a little less pronounced. He said something about "if this is coming back," I told him that it might just be "breakthrough" ones and might not get real bad and if it did, he could be sure that they will go away again. I do feel better thanks to you all and will hope for the best. One interesting thought/connection perhaps. My son’s vocal tic showed it’s ugly head one week after starting soft contact lenses 18 months ago. Now two days ago he was dx’d with giant papillary conjunctivitis which I’m taking him to an opthal. for today (life is never boring). Do any of you super-smart people out there know of any connection between the eyes and perhaps neurologic disorders or am I grasping at straws? Lisa
Response:
gnlwood Wrote: >One interesting thought/connection perhaps. My son’s vocal tic showed it’s >ugly head one week after starting soft contact lenses 18 months ago. Now >two >days ago he was dx’d with giant papillary conjunctivitis which I’m taking him >to an opthal. for today (life is never boring). Do any of you super-smart >people out there know of any connection between the eyes and perhaps >neurologic >disorders or am I grasping at straws? >Lisa
Hi Lisa, My son tried soft contact lenses at age 14 (he’s now 21). He did need to stop wearing them because of his tics and overflow movement (mild C.P.). He did end up with and eye infection and his tics were worse. But I also find that whenever he has any illness his tics will become somewhat worse and when he feels better, they start to wane. He has recently changed meds, had pneumonia and other problems, and his tics (windmilling arms, echolalia, cracking joints of his body) returned full force. Now that most of the problems have been resolved, all tics are waning. Pat
Response:
Thanks Pat. I guess it should come as no surprise that anything that affects the body will affect tics. I wonder if anyone has studied contacts and tics and any possible connection. Probably not. If so, let me know. Lisa
Response:
>From: gnlw…@aol.com (gnlwood) >One interesting thought/connection perhaps. My son’s vocal tic showed it’s >ugly head one week after starting soft contact lenses 18 months ago. Now >two >days ago he was dx’d with giant papillary conjunctivitis which I’m taking him >to an opthal. for today (life is never boring). Do any of you super-smart >people out there know of any connection between the eyes and perhaps >neurologic >disorders or am I grasping at straws? >Lisa
Hi Lisa. I don’t know about the eye connection, but I do know that whenever D had or was getting a virus, or had discomfort from something like sore muscles, it made his tics act up (still does that). It is any stress to the system, good and bad that seems to trigger them. Vacations were a time for me to look the other way as much as I could so as not to have that knot in my stomach watching the excessive ticcing. We would get home and by a week later, they had subsided. When he was young he did not seem to notice, only we seemed to see it. Now, he really is aware though, i.e. the Clonodine again after so many years on nothing. It may be the fact that his old friends all just knew he had tics and didn’t care. But college is always a place to meet new people and then the thought of interviews for grad school, etc. So the tics are definately resurfacing more. Glad to hear today went better than you expected. And sounds like you did a great job of calming hime down. Jan
Response:
‘Twas 10 Feb 2003 16:39:40 GMT when all alt.support.tourette stood in awe as gnlw…@aol.com (gnlwood) uttered: >One interesting thought/connection perhaps. My son’s vocal tic showed it’s >ugly head one week after starting soft contact lenses 18 months ago. Now two >days ago he was dx’d with giant papillary conjunctivitis which I’m taking him >to an opthal. for today (life is never boring). Do any of you super-smart >people out there know of any connection between the eyes and perhaps neurologic >disorders or am I grasping at straws?
I think inflammation anywhere in the body can aggravate tics. It’s possible that an inflammation in the eye aggravates tics more than elsewhere. — RB |
