Question for females with TS
Question:
My daughters pediatric neurologist,Richard Konkol, who practices in Vancouver, WA at Kaiser Permanente (Interstate Hospital) was previously that head of pediatric neurology for University of Oregon Health and Sciences, Dorenbecher, Children’s Hospital, did a small study on estrogen’s effect on premenopausal women with Tourette’s. There was a significant increase in ticcing just before the beginning of a woman’s menstrual period. (Women who have TS) I asked him about the relationship because my daughter had just started having her periods around the time of the initial diagnosis. In fact, on the day she started her first period, within one half hour of discovering she was having a period, she began a very loud vocal tic. There are those who post here that will say there are no studies to prove this, but I feel they are in error. He did mention that if her ticcing become overwhelming during pre menstrual that he could put her on hormonal therapy. What that involved, I don’t know. Dawnee
Response:
>Murphy wrote: >I have just recently noticed that my tics change >> with my cycle so I’m wondering if any other women have noticed that same >> thing. Towards the end of my period and the week following, my tics get >> much better.
Don’t know how or if this could be along the same lines, but the only time in my life since I was 7 years old that I was completely 100% tic free for more than a couple days was during both of my pregnancies. In fact, this is how i knew before taking a pregnancy test that I was pregnant the second time. The tics disappeared with in a week of conception. The tics returned to thier normal presence as soon as my cycle did. Kim
Response:
I’m new here and have a question. I have never been diagnosed with TS but I’m pretty certain I have it. I’m 36 years old and my tics are worse than when I was a child. In fact as a child people usually didn’t notice anything different about me except that they usual thought I wore contacts (excessive blinking!). I have just recently noticed that my tics change with my cycle so I’m wondering if any other women have noticed that same thing. Towards the end of my period and the week following, my tics get much better. But then they quickly get worse again. I’ve not done enough research about TS to know if there are triggers that make tics worse so if you can help me in that area I’d appreciate it! Thanks, DM
Response:
Murphy wrote: > I’m new here and have a question. I have never been diagnosed with TS but > I’m pretty certain I have it. I’m 36 years old and my tics are worse than > when I was a child. In fact as a child people usually didn’t notice > anything different about me except that they usual thought I wore contacts > (excessive blinking!). I have just recently noticed that my tics change > with my cycle so I’m wondering if any other women have noticed that same > thing. Towards the end of my period and the week following, my tics get > much better. But then they quickly get worse again. I’ve not done enough > research about TS to know if there are triggers that make tics worse so if > you can help me in that area I’d appreciate it! Thanks, > DM
Hi DM, Sorry to see that you haven’t had any other responses to this… My 16 year old daughter has a similar experience with tics increasing according to her cycle. Many girls and women I have spoken with have confirmed that this is true for them as well (as well as several women who report that their tics have increased with menopause). Unfortunately, the medical studies on TS have included few girls and women, so most of this info is purely anecdotal. Hopefully, there are still some women with TS lurking on the newsgroup who can share their own personal experiences. Best wishes, Maryann in MA — — A child, however, who had no important job and could only see things as his eyes showed them to him, went up to the carriage. "The Emperor is naked," he said. —Hans Christian Anderson Project Gutenberg Fine Literature Digitally Republished http://promo.net/pg/index.html
