rages
Question:
"Leslie DeLong" <LeslieDeL…@alum.mit.edu> wrote in message
news:LeslieDeLong-2012011008270001@net243-110.med.yale.edu… – Hide quoted text — Show quoted text -> In article <163a5775.0112131927.31d9a…@posting.google.com>, > r…@scattercreek.com (Dawnee) wrote: > > When she has these rage attacks, she is beyond reason, beyond > > rationalization. She is totally out of control. She never had temper > > tantrums as a child but this seem to start happening right about the > > time her TS became severe enough that we had to take her to a doctor > > and she was diagnosed. > Although I’m finding the "Dysinhibition Syndrome" very tough going and > disagree with much of the logic, I do agree with her conclusion that tic > disorders are associated with loss of inhibition in other neurological > areas. I used to think that my son’s stress/anxiety was driving the > increased "ticcing" – after thinking about the concept of dysinhibition, > I’ve begun to think that maybe the increased "ticcing" is a sign that he’s > losing progressively more of his inhibitory ability and that is why we see > more rages occurring. Unfortunately, this doesn’t seem to be a mainstream > concept at the moment, so I suspect it’s not going to get me anywhere with > the "professionals". > > My husband and I called them rage attacks for lack of nothing else to > > describe it. She goes into a blind rage. It has to be played out > > until she falls into exhaustion. > > We took her to a counselor. He explained that she has that fear or > > flight concept going on. If you see a semi coming at you, you run > > rather than just stand there. He felt that this was what she was > > doing. But when she "runs" it is from reality. You would have > > thought that a mountain of lava was coming down to get her she was so > > upset that she couldn’t help herself if her life depended on it. > The counselors description makes sense, but doesn’t do much to help you > deal with the rages. I’ve found the suggestions in "The Exlposive Child" > most helpful so far, mainly for figuring out how to avoid "causing" them. > I may just be having trouble with the descriptions in "Dysinhibition > Syndrome", but I haven’t found that behavior modification or > rewards/consequences" do much for Alex. He is such a committed rule > follower that he doesn’t seem to go into rages unless he’s beyond the > point where he can control his behavior.
Leslie, you have just put your finger right on the point I have been unable to nail down about Ben’s behavior! He is a very committed rule follower, and has always demanded parameters from me (liberal old hippie chick that I am, it was really hard to get into this frame of reference…). When he goes into ‘tic storms’ I can expect a rage to follow, usually triggered by a school problem (homework, bullies, teasing). I guess I hadn’t put his rule-following behavior and his rages together in a way that made sense to me before you gave me a little push…thank you so very much! Dawnee, I have been wondering if your daughter has rages in response to your coughing, vomiting, etc., as a reaction to perceiving you as ‘vulnerable’, when she relies on you so much for support and help through all this misery that her TS causes her. It is almost as if she wants you to be superhuman and show no signs of physical distress at all. What do you think? Although, if this is the reason, I still don’t see what you could DO about it, other than help her to understand the roots of the rages. Hugs to y’all, Benita – Hide quoted text — Show quoted text -> > Anyway, I just wanted to share I know what many are talking about > > here. She gets upset when I cough, throw up, clear my throat, hum, or > > sometimes chew food. > > I think it probably also has to do with the desensitization problem > > many with TS have, I don’t know. > > All I know is that before her diagnosis I had this neat, well adjusted > > child and then she turned into someone I don’t even know at times and > > I think it is more than just being a teenager. > Being a teenager may well be contributing to the whole problem, but I > doubt that it is causiing it. > lesliedelong
Response:
In article <163a5775.0112131927.31d9a…@posting.google.com>, r…@scattercreek.com (Dawnee) wrote: > When she has these rage attacks, she is beyond reason, beyond > rationalization. She is totally out of control. She never had temper > tantrums as a child but this seem to start happening right about the > time her TS became severe enough that we had to take her to a doctor > and she was diagnosed.
Although I’m finding the "Dysinhibition Syndrome" very tough going and disagree with much of the logic, I do agree with her conclusion that tic disorders are associated with loss of inhibition in other neurological areas. I used to think that my son’s stress/anxiety was driving the increased "ticcing" – after thinking about the concept of dysinhibition, I’ve begun to think that maybe the increased "ticcing" is a sign that he’s losing progressively more of his inhibitory ability and that is why we see more rages occurring. Unfortunately, this doesn’t seem to be a mainstream concept at the moment, so I suspect it’s not going to get me anywhere with the "professionals". > My husband and I called them rage attacks for lack of nothing else to > describe it. She goes into a blind rage. It has to be played out > until she falls into exhaustion. > We took her to a counselor. He explained that she has that fear or > flight concept going on. If you see a semi coming at you, you run > rather than just stand there. He felt that this was what she was > doing. But when she "runs" it is from reality. You would have > thought that a mountain of lava was coming down to get her she was so > upset that she couldn’t help herself if her life depended on it.
The counselors description makes sense, but doesn’t do much to help you deal with the rages. I’ve found the suggestions in "The Exlposive Child" most helpful so far, mainly for figuring out how to avoid "causing" them. I may just be having trouble with the descriptions in "Dysinhibition Syndrome", but I haven’t found that behavior modification or rewards/consequences" do much for Alex. He is such a committed rule follower that he doesn’t seem to go into rages unless he’s beyond the point where he can control his behavior. > Anyway, I just wanted to share I know what many are talking about > here. She gets upset when I cough, throw up, clear my throat, hum, or > sometimes chew food. > I think it probably also has to do with the desensitization problem > many with TS have, I don’t know. > All I know is that before her diagnosis I had this neat, well adjusted > child and then she turned into someone I don’t even know at times and > I think it is more than just being a teenager.
Being a teenager may well be contributing to the whole problem, but I doubt that it is causiing it. lesliedelong
Response:
- Hide quoted text — Show quoted text -"Randall Bart" <Barti…@att.spam.net> wrote in message > ‘Twas Thu, 13 Dec 2001 14:16:38 +1000 when the wise and venerated "Lara" > <kbu…@tpg.com.au> enlightened alt.support.tourette with these thought > provoking words: > >He never raged outside of the home. > >The other thing that I really noticed for my son was that there was often a > >trigger. Usually some sort of sensory trigger/s. The busy classroom never > >helped him. Over stimulation! > I’m trying to put two and two together without getting five. If the busy > classroom was the problem, why did he only rage at home? Let me try a > scenario: > The over-stimulation of the classroom caused him to shut down. He had a > rage bottle-up inside him. When he got home, he was able to "relax" and let > the rage out. > Is that what you’re describing? > — > RB |
