Education
Question:
If you can’t educate your > friends or relatives, how do you do this. Does everyone have pea > braains? Maybe.
One can lead a horse to water….. If people aren’t "ready" for the information, you cannot infuse it into them. IT’s called ‘denial.’ In the case of your brother ("What? Does this mean I might have the gene too?) Or perhaps jealousy in the case of her little friend ("I don’t want to go to school either!!!!") The best you can do is provide the information, the ACCURATE information, and then wait..and hope..that they will one day be ready to hear it. > Thanks folks for letting me vent. > Dawnee
Dawnee….that’s what we’re HERE For…among other things… I hope you got some sleep!!! KAT in CT
Response:
In article <93pipq$1gm…@newssvr05-en0.news.prodigy.com>, "Kathryn A. Taubert" <kataub…@prodigy.net> wrote: > One can lead a horse to water….. > KAT in CT
. . . but one can’t make him drink." I think the variant appropriate to the situation is "You can lead a fool to knowledge, but you can’t make him think." Sandy L Sent via Deja.com http://www.deja.com/
Response:
Dawnee: I’ve dealt with that also, been told I am going to too many doctors who are just looking for something and that it made my daughter worse. But right now I have a pretty well adjusted 16 year old and my family member who chastised me is having problems with her sons because she didn’t get any help when they were younger. Don’t worry about what other people think. Do what you know is best for your child. As far as friends, tell your daughter that some people just don’t understand and that it’s OK because she is doing what she needs to do to take care of herself and that is what is important, not what other people think. Jean – Hide quoted text — Show quoted text -dawn…@my-deja.com wrote: > Well here it is past midnight and I have insomnia again. A couple of > things keep flitting around in my mind. One is the upset my 13 yr. old > dau. and TS’er had tonight with her best friend. Her friend is angry > with her because my Dau. doesn’t go to school right now and is being > tutored instead because of my dau.’s TS. She tells her, "you don’t > have TS, you’re just trying to get out of going to school." You don’t > always tic, therefore you don’t have TS. etc. etc. Which leads me to > think, how do we educate the public about TS. > Now this is a close family to us. I think that I have educated them, > but then I hear things like my mom doesn’t think you have TS either. I > think you are acting your tics, etc. > Then I was thinking about my dear brother who thinks that I have put it > into my daughter’s head to have TS. That one really blows my mind > because I know he loves me but he won’t even really discuss it with > me. He just says that its too strange to talk about it and that I > should never mention it to my daughter about what people do when they > have TS because then my daughter might do it, too. That is how he > thinks she developed coporalia, for instance, because somehow I put it > into her head. Talk about being frustrating and mind blowing. > But then how do you explain that when you mention ticcing to a TS’er > child, that their tics sometimes gets worse. How do you educate the > general public who probably quite frankly really don’t give a damn > about any Tom, Dick or Harry that has TS. If you can’t educate your > friends or relatives, how do you do this. Does everyone have pea > braains? Maybe. > We need to push somehow for a documentary on TS. I wish I had the moxy > to do that. > Sitting at the computer, I checked my dau.’s mail and she is telling > her male friend that she did not take her Clonidine tonight so that she > can wake up later and talk to him on internet. Yikes! I have told her > countless times, that she cannot not just quit taking her pills. > Education, Education, Education…….. > I don’t know why, but all of this is really bugging me tonight. Maybe > all of this manifested with the Ally McBeal program. I am really > thinking that any exposure is better than nothing. Oh well, I am so > frustrated! > Maybe my dau. didn’t take her pills so that when her friend comes over > tomorrow to spend the night, she will be ticcing more and that will > demonstrate she has TS. Sad isn’t it. > Thanks folks for letting me vent. > Dawnee > Sent via Deja.com > http://www.deja.com/
Response:
dawn…@my-deja.com wrote: > How do you educate the > general public who probably quite frankly really don’t give a damn > about any Tom, Dick or Harry that has TS.
One person at a time. > We need to push somehow for a documentary on TS.
Do you think we’re ready for it? What has been done in the past suggests that we may not be. Sensational and "bizarre" seems to be all anyone is interested in doing now. Wait ’til our kids grow up … ten years … we’ll see then ! > I don’t know why, but all of this is really bugging me tonight.
Hang in there, Dawnee. I had a horribly down and depressing time the first two weeks of the year this year … things will turn around 
— Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat
Response:
Dear Dawnee: I’m just here to express my sympathy to you. I can’t empathize because I don’t have any children with Tourettes. I do have a male cousin on my my mother’s side and I have been diagnosed with OCD which is genetically related to Tourettes. I also don’t believe I’m qualified enough to give advice. I do hope you, your husband, your daughter, and if you have any other children, will all be able to lead reasonably happy lives. Sent via Deja.com http://www.deja.com/
Response:
<sandy_l…@my-deja.com> wrote in message
news:93poos$gvn$1@nnrp1.deja.com… > In article <93pipq$1gm…@newssvr05-en0.news.prodigy.com>, > "Kathryn A. Taubert" <kataub…@prodigy.net> wrote: > > One can lead a horse to water….. > > KAT in CT > . . . but one can’t make him drink." I think the variant appropriate > to the situation is "You can lead a fool to knowledge, but you can’t > make him think." > Sandy L > Sent via Deja.com > http://www.deja.com/
Oh, WELL Said!!! KAT in CT (breaching Netiquette for the millioneth time…..and I don’t really care…"-)))
Response:
Well here it is past midnight and I have insomnia again. A couple of things keep flitting around in my mind. One is the upset my 13 yr. old dau. and TS’er had tonight with her best friend. Her friend is angry with her because my Dau. doesn’t go to school right now and is being tutored instead because of my dau.’s TS. She tells her, "you don’t have TS, you’re just trying to get out of going to school." You don’t always tic, therefore you don’t have TS. etc. etc. Which leads me to think, how do we educate the public about TS. Now this is a close family to us. I think that I have educated them, but then I hear things like my mom doesn’t think you have TS either. I think you are acting your tics, etc. Then I was thinking about my dear brother who thinks that I have put it into my daughter’s head to have TS. That one really blows my mind because I know he loves me but he won’t even really discuss it with me. He just says that its too strange to talk about it and that I should never mention it to my daughter about what people do when they have TS because then my daughter might do it, too. That is how he thinks she developed coporalia, for instance, because somehow I put it into her head. Talk about being frustrating and mind blowing. But then how do you explain that when you mention ticcing to a TS’er child, that their tics sometimes gets worse. How do you educate the general public who probably quite frankly really don’t give a damn about any Tom, Dick or Harry that has TS. If you can’t educate your friends or relatives, how do you do this. Does everyone have pea braains? Maybe. We need to push somehow for a documentary on TS. I wish I had the moxy to do that. Sitting at the computer, I checked my dau.’s mail and she is telling her male friend that she did not take her Clonidine tonight so that she can wake up later and talk to him on internet. Yikes! I have told her countless times, that she cannot not just quit taking her pills. Education, Education, Education…….. I don’t know why, but all of this is really bugging me tonight. Maybe all of this manifested with the Ally McBeal program. I am really thinking that any exposure is better than nothing. Oh well, I am so frustrated! Maybe my dau. didn’t take her pills so that when her friend comes over tomorrow to spend the night, she will be ticcing more and that will demonstrate she has TS. Sad isn’t it. Thanks folks for letting me vent. Dawnee Sent via Deja.com http://www.deja.com/
