Cursing article

Question:

2 points of interest with this come to mind…………in the early 1990s, my late buddy, Adam Seligman, took on the FCC who charged he could not swear on the air………exception is a Neurological Disorder called Tourette Syndrome ………so the FCC had to withdraw and eat crap! (HEY, I haeve corpoalia too) Second is the term "Jews for Jesus" which to me is the same as Dykes for dick or  Isrealies for Saddem, or Ivory soap  for Rednecks…………….It just doesn’t fit! In the same vein when Becca and I go to Dollywood I am going to ask Dolly, "who is bigger? My wife of her" LOL Grace almost fell on the floor laughing last night when I told her… remindng me that Dolly has had 3 breast augmentations while she is all natural "Jo" <joco…@comcast.net> wrote in message

news:h5adncFQdOwwSnTcRVn-2w@comcast.com… – Hide quoted text — Show quoted text -> FYI…Jo > What the … ? > As R-rated language, religious terms have lost their zing (hell of a > thing) > A chance remark can reveal a heck of a lot more than we intend. > Last month, the editor of the Jewish weekly newspaper The Forward > defended the inclusion of Madonna on the paper’s annual list of most > influential Jews in America. But isn’t she Catholic? > "She’s a practitioner of the Kabbalah, so she’s practicing Judaism, > for Christ’s sake!" the editor, J.J. Goldberg, told the New York Daily > News. "Well, not really for Christ’s sake." > Most Americans would be amused by that line. Some would find it > offensive. Either way, it’s more than just a punch line: The editor of > a Jewish newspaper can invoke the Christian deity without initially > considering the literal meaning. And a major daily newspaper will > print the quote as delivered. > Where has blasphemy gone, for Pete’s sake? > For many of us, the cultural taboos that made the colorful use of > faith-linked words so dangerously satisfying have mostly vanished. And > like Goldberg, most of us don’t think about the original connections > when searching for words to shout when we want to add an oral > exclamation point. > On the other hand, the words retain enough mojo that darned near any > American who whacks his thumb is likely to sprinkle religious > references among the words for family members, body parts and bodily > functions. > Or as David Letterman said on his show recently: "Holy crap!" > There’s evidence that human brains are hard-wired into using taboo > words as emotional escape valves — the more taboo, the more > effective. Tourette Syndrome is a brain disorder that includes > involuntary shouting of obscenities. > "They will tell you, if I say ‘(sexual term involving a parent),’ it > makes me feel better than when I say ‘darn,"’ said Timothy Jay, author > of "Why We Curse" and a psychology professor at Massachusetts College > of Liberal Arts. > And which words are considered most taboo can offer an emotional X-ray > into the core values of a person or a people. > "It tells you what a culture thinks is acceptable and what’s not," > said Reinhold Aman, editor of the scholarly "Maledicta: The > International Journal of Verbal Aggression" and a onetime professor of > medieval literature. > By that measure, the sacred is no longer most sacred in America. Sex, > bodily functions and family, it seems, are more sensitive topics than > religion, based on the relative frequency of use — and prohibitions > against polite use — of various kinds of swear words. > The sacred and profane are an odd pairing in most contexts, but stand > comfortably together in foul language in most cultures. That’s partly > because they both pull concepts where polite society says they don’t > belong, said Geoffrey Nunberg, author of "Going Nucular: Language, > Politics, and Culture in Controversial Times" and a researcher at > Stanford University’s Center for the Study of Language and > Information. > Obscenity takes bedroom and bathroom activities and drags them out > into the living room, he said. Blasphemy, on the other hand, hauls > heaven down into the common world. > Both feel satisfyingly "wrong" when we want to vent our frustrations. > Faith words are still a vital part of the salty lexicon in the United > States and other countries. The specific words used shift from nation > to nation. And as with Goldberg, individual beliefs don’t necessarily > tip off what words someone will use. > Expletives can be elaborate: "The 24 (uniquely male body parts) of the > 12 apostles of Christ!" was one example in Spanish that Aman found. > Another intricate Spanish exclamation: "I (bodily function) on a > carpenter who felled the tree to build the cross to nail Jesus on!" > The exclamations can be untranslatable idioms: Someone in Cairo, > Egypt, might yell the Arabic for "God destroy your house!" in a > situation where someone from Cairo, Ill., would say "Holy mackerel!" > Neither makes much literal sense. > (More common on the Egyptian street would be angry references to the > private parts of a nemesis’ mother, said Yasser Hegazy, a translator > and Arabic tutor who lives in Cairo.) > There was a time when using religious language in the wrong place or > manner could get you thrown in the stocks or even burned at the stake. > And harsh attitudes toward blasphemy aren’t simply ancient > curiosities. > Laws against blasphemy are still on the books in Italy, Spain and > Germany, for instance. And Iran’s Ayatollah Ruhollah Khomeini > notoriously issued a death sentence in 1989 against Salman Rushdie for > writing "The Satanic Verses" — a sentence upheld by subsequent Muslim > leaders. > The longtime prohibitions against "bad words" fueled a dizzying array > of euphemisms. > Heck and Sam Hill stand in for hell. Pete takes the place of God, as > in "For Pete’s sake." (There is no link to St. Peter, word experts > say). Good golly originally had nothing to do with Miss Molly. Like > gosh and gad, golly is a safer word for "God." Jiminy Christmas, Jeez > Louise, Judas Priest and even the Crocodile Hunter’s "Crikey!" soften > the straightforward J.C. > Other languages used similar strategies. The "Sacre bleu!" shouted by > Lumiere in "Beauty and the Beast" means "Sacred blue!" "Bleu" rhymes > with "Deiu," French for God. So the animated candlestick is yelling, > "My gosh," more or less. > Some words that seem like they should be religious may not be. The > British "bloody" has been linked by some to "by Our Lady" (a reference > to Mary) or the blood of Jesus. But the Oxford English Dictionary says > the slang term’s origin is uncertain, perhaps linked to a description > of rowdy aristocrats, or "bloods," in the 1700s. > But if pop culture is an indicator, the need for euphemisms has waned. > Broadcast TV remains more cautious than many other cultural outlets. > While "Oh my God!" can be heard virtually anywhere in prime time, ads > are still a blasphemy-free zone. For instance, a candy bar ad not long > ago had an angry guy shouting "Great oogly moogly!" > Cable, from "The Sopranos" to "Bill Maher," bars few if any words. > Comedy Channel’s taboo-shredding "South Park" started as an > Internet-distributed short that featured a wrestling match between > Jesus and Santa Claus. > Movie ratings also indicate a softening of attitudes said Jim Wall, > the former editor of Christian Century, who is a longtime advisor to > the appeals board of the Motion Picture Association of America. > "The ratings are designed to reflect what the rating board feels the > average American parent would expect to find," he said. > So even one f-word used in a sexual context is still pretty much an > automatic path to an R rating, he said. But a bunch of religious > expletives aren’t likely to move a movie beyond PG-13. > In fact, the official explanation of the ratings on the MPAA Web site > mentions violence, profanity, drug abuse and sexual content as factors > in determining ratings — but nothing about religious language. > The softening of standards — or degradation, depending on your point > of view — can be traced to the salty language of soldiers coming home > from World War II, Aman said. Vietnam, and the challenges to all > authority during that era, gave another boost to blasphemy and > obscenity filtering into standard use. > Not everyone has gone along, of course. In a recent study, kids and > their parents were given lists of "bad words’ and asked to rate how > bad they were. About 20 percent of the parents said some of the > religious words were worse than some of the sexual words, said Jay, > the psychology professor. > Count Dave Haverty among those still offended by religious expletives. > The president of Preview Family Movie and TV Review writes reviews > that appear on the gospelcom.net Web site. Repeated use of such terms > will bump a show down on his ratings. > Not that he’d be entirely above sin if he whacked his thumb with a > hammer. > "I’m a Christian and I know what I would probably yell," he said. "Not > that I’m proud of it. But it’s a reaction." > What

Looking for a natural (non-pharmaceutical) medicine

Question:

"Roger D. Freeman, M.D." wrote: > Chronic motor tic disorder *can* be more severe than TS, why not? > Both vary from hardly noticeable to severe and impairing.   The often-cited > statement that TS is "more serious" than the other tic disorders isn’t > correct.

Sometimes I forget (since we have made a lot of progress) how much work still remains to be done in terms of correcting misinformation that is "out there" about tic disorders … one more example of the kind of "stuff" we see so often repeated in the media and literature, both professional and otherwise. — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

http://www.bonniegr.com/index.htm "H.Z." <eale…@telus.net> wrote in message

news:BDA62C7C.2FE54%ealexzi@telus.net… – Hide quoted text — Show quoted text -> Hi, I have chronic-motor-tic disorder. Although it

PubMed. – "mandatory genetic regulation"?

Question:

Pablo wrote: > This, I think, is where advocacy comes in, as welll as attention to > language.  For example, "AIDS victims" became "people with AIDS" or "PWA’s." > There can be only more advocacy, not less. > Pablo

That would be nice. A lot of the advocating being done for people with TS about the treatment of people with TS in the media (and some journal reports) has come from the combined efforts of participants from many different online support fora.  Those who should recognize the power of language, don’t always.  I was at a conference where Sheryl Pruitt actually told (jokingly) the audience (of teachers) that "children with TS can’t wear neckties."   Not all of the teachers understood it was a very lame joke.  Not a good rap for children with TS to have in private school admissions circles.  Sheryl Pruitt has also called students with TS "clueless," resulting in the following response: http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&th=12bf19f57c203f3… "Many times we have found and continue to run into is that the greatest barrier for our son to overcome and perhaps to compensate for was/is the lack of teacher understanding.  Now, here are two of the most well recognized names in the field of educational advocacy for those with TS and TS+ and they come up with a title for their session that labels the child — a practice that perpetuates the gross misunderstandings in our schools and a real blow to a child’s self esteem.  Perhaps a better introduction than the term ‘Clueless Student’ will better serve their intended purpose for the session. Pat W who found it quite provocative that the titles of the other sessions label the behavior, not the child." The TSA, in a well-publicized gaffe, succumbed to apparent special-interest pressure and actually printed a brochure titled "Repeated Anger Generated Episodes" or R.A.G.E., unnecessarily burdening people with TS with a new acronym, when the very research results being discussed in the article showed that "rage" was not associated with TS (and they barely mentioned that well into the brochure)! It is too bad that that online TS support fora have been undermined for several years, as they have often been the first and a very effective voice in advocating for folks with TS. http://tourettenowwhat.tripod.com/DrLauraTS.htm Again, does anyone know if, or think the TSA even addressed the article by Rhoda Yen? — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

"TSN" <t…@optonline.net> wrote in message

news:41594690.C0E851B8@optonline.net… – Hide quoted text — Show quoted text -> Pablo wrote: > > This, I think, is where advocacy comes in, as welll as attention to > > language.  For example, "AIDS victims" became "people with AIDS" or "PWA’s." > > There can be only more advocacy, not less. > > Pablo > That would be nice. > A lot of the advocating being done for people with TS about the treatment of > people with TS in the media (and some journal reports) has come from the > combined efforts of participants from many different online support fora. Those > who should recognize the power of language, don’t always.  I was at a conference > where Sheryl Pruitt actually told (jokingly) the audience (of teachers) that > "children with TS can’t wear neckties."   Not all of the teachers understood it > was a very lame joke.  Not a good rap for children with TS to have in private > school admissions circles.  Sheryl Pruitt has also called students with TS > "clueless," resulting in the following response:

http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&th=12bf19f57c203f3… – Hide quoted text — Show quoted text -> "Many times we have found and continue to run into is that the greatest > barrier for our son to overcome and perhaps to compensate for was/is > the lack of teacher understanding.  Now, here are two of the most well > recognized names in the field of educational advocacy for those with > TS and TS+ and they come up with a title for their session that labels > the child — a practice that perpetuates the gross misunderstandings > in our schools and a real blow to a child’s self esteem.  Perhaps a > better introduction than the term ‘Clueless Student’ will better serve > their intended purpose for the session. > Pat W who found it quite provocative that the titles of the other > sessions label the behavior, not the child." > The TSA, in a well-publicized gaffe, succumbed to apparent special-interest > pressure and actually printed a brochure titled "Repeated Anger Generated > Episodes" or R.A.G.E., unnecessarily burdening people with TS with a new > acronym, when the very research results being discussed in the article showed > that "rage" was not associated with TS (and they barely mentioned that well into > the brochure)! > It is too bad that that online TS support fora have been undermined for several > years, as they have often been the first and a very effective voice in > advocating for folks with TS. > http://tourettenowwhat.tripod.com/DrLauraTS.htm > Again, does anyone know if, or think the TSA even addressed the article by Rhoda > Yen?

Thanks for the links.  Very interesting reading.  I agree with you that language usage is very important. Pablo – Hide quoted text — Show quoted text -> — > Tourette Syndrome – Now What? > http://tourettenowwhat.tripod.com

Response:

- Hide quoted text — Show quoted text -TSNW wrote: > Hurricane Blurt wrote: > > In article <414a0…@dnews.tpgi.com.au>, > > Lara wrote: > > >I was just checking out a couple very new entries in OMIM for Tourette > > >Syndrome.  In the trail I followed after that I came across an entry in > > >PubMed that has no abstract. > > >I have a question:  Mandatory genetic regulation… what does that mean? > > >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&… > > >Law Psychol Rev. 2003 Spring;27:29-54 > > >Tourette’s syndrome: a case example for mandatory genetic regulation of > > >behavioral disorders. > > >Yen RJ. > > >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. > > >PMID: 15237537 [PubMed - indexed for MEDLINE] > > >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat… > > http://www.law.ua.edu/lawpsychology/ > > http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm > > http://www.jones-foster.com/delnewsletter0501.htm > I’m still waiting for the full article, but I ordered it quite a few days ago … snail mail …

Now I’m on to you, Blurt … this post didn’t wrap correctly … are you the culprit with line wrap set too long that is messing with my Netscape 4.7 ??? — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

Top Post. Maybe I’m the culprit.  I had it set at the default of 76 since reformatting. I put it down to 70 now. I’m sorry. – Hide quoted text — Show quoted text -"TSNW" <t…@optonline.net> wrote in message > TSNW wrote: > > Hurricane Blurt wrote: > > > In article <414a0…@dnews.tpgi.com.au>, > > > Lara wrote: > > > >I was just checking out a couple very new entries in OMIM for Tourette > > > >Syndrome.  In the trail I followed after that I came across an entry in > > > >PubMed that has no abstract. > > > >I have a question:  Mandatory genetic regulation… what does that mean? >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&

dopt=Abstract&list_uids=15237537 – Hide quoted text — Show quoted text -> > > >Law Psychol Rev. 2003 Spring;27:29-54 > > > >Tourette’s syndrome: a case example for mandatory genetic regulation of > > > >behavioral disorders. > > > >Yen RJ. > > > >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. > > > >PMID: 15237537 [PubMed - indexed for MEDLINE] >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat h=1444%7C1624 > > > http://www.law.ua.edu/lawpsychology/ > > > http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm > > > http://www.jones-foster.com/delnewsletter0501.htm > > I’m still waiting for the full article, but I ordered it quite a

few days ago … snail mail … > Now I’m on to you, Blurt … this post didn’t wrap correctly … are

you the culprit with line wrap set too – Hide quoted text — Show quoted text -> long that is messing with my Netscape 4.7 ??? > > — > Tourette Syndrome – Now What? > http://tourettenowwhat.tripod.com

Response:

Lara wrote: > Top Post. > Maybe I’m the culprit.  I had it set at the default of 76 since > reformatting. > I put it down to 70 now. > I’m sorry.

ah, I was just joshing !! I think it was the URL in the thread ?? If Netscape chokes on every long URL, it’s time for me to upgrade … — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

In article <4150B60A.F25C4…@optonline.net>, – Hide quoted text — Show quoted text -TSNW wrote: >Hurricane Blurt wrote: >> In article <414a0…@dnews.tpgi.com.au>, >> Lara wrote: >> >I was just checking out a couple very new entries in OMIM for Tourette >> >Syndrome.  In the trail I followed after that I came across an entry in >> >PubMed that has no abstract. >> >I have a question:  Mandatory genetic regulation… what does that mean? >> >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&… >> >Law Psychol Rev. 2003 Spring;27:29-54 >> >Tourette’s syndrome: a case example for mandatory genetic regulation of >> >behavioral disorders. >> >Yen RJ. >> >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. >> >PMID: 15237537 [PubMed - indexed for MEDLINE] >> >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat… >> http://www.law.ua.edu/lawpsychology/ >> http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm >> http://www.jones-foster.com/delnewsletter0501.htm >I’m still waiting for the full article, but I ordered it quite a few days ago … snail mail …

Thanks TSNW, and please let us know when you’ve read it. Lara, did you actually find a reference to the article on the OMIM site? Blurt

Response:

In article <4150C46B.98109…@optonline.net>, TSNW wrote: >I think it was the URL in the thread ?? >If Netscape chokes on every long URL, it’s time for me to upgrade …

When I used Netscape, it would mess up the formatting if I ever saved a message as a draft and returned to finish it later. When you tried out Agent, it seemed to me you gave up when it wanted to send messages from your outbox when you closed Agent.  To get around that, just click on "Save" in the message composition window, instead of "Send Later".  If you want to un-que a message for which you’ve clicked on "Send Later", just open up the outbox (under the "Window" menu next to the "Help" menu, you’ll find "Open Outbox"), open the message and click on "Save" in the composition menu. Blurt

Response:

Hurricane Blurt wrote: > In article <4150C46B.98109…@optonline.net>, > TSNW wrote: > >I think it was the URL in the thread ?? > >If Netscape chokes on every long URL, it’s time for me to upgrade … > When I used Netscape, it would mess up the formatting if I ever saved > a message as a draft and returned to finish it later.

Didn’t do that … > When you tried out Agent, it seemed to me you gave up when it wanted > to send messages from your outbox when you closed Agent.  To get > around that, just click on "Save" in the message composition window, > instead of "Send Later".  If you want to un-que a message for which > you’ve clicked on "Send Later", just open up the outbox (under the > "Window" menu next to the "Help" menu, you’ll find "Open Outbox"), > open the message and click on "Save" in the composition menu. > Blurt

Thanks, Blurt … I don’t even know what I did with my Agent disk … and I deleted it from this computer … but I had way more problems that that … I was really lost. — Dork

Response:

‘Twas Tue, 21 Sep 2004 19:18:47 -0400 when all alt.support.tourette stood in awe as TSNW <t…@optonline.net> uttered: >Now I’m on to you, Blurt … this post didn’t wrap correctly … are you the culprit with line wrap set too >long that is messing with my Netscape 4.7 ???

Blurt’s message contained a long URL, which Agent passes through intact (unlike Outluck which fractures long URLs).   — RB |  

Clinical Characteristics of Adults with Tics

Question:

"TSNW" <t…@optonline.net> wrote in message

news:40E0BF0A.92A307C6@optonline.net… > OBJECTIVE: This study was conducted to describe the natural course of > tic disorders over a long period of time

Then shouldn’t they have started with children rather than mean age: 31.4? A childs tics would possibly change, but an adults would pretty much stay the same over the 7 years.  Wouldn’t they?  Unless a change from the results of meds? > RESULTS: The adult patients with tic disorders could be classified into > the four groups:

IMHO, probably the same 4 groups they were classified in when they started. Am i not getting something here? A > CONCLUSIONS: Further investigation into the natural course and clinical > characteristics of adult TS needs to be done in order to acquire a > better understanding

Another words, more money please.

Response:

Jodi wrote: > … more money please.

In the USA, we have the NIH passing out taxpayer dollars to a lot of career researchers, but this study was done in Japan … I wonder how it was funded. But … I think it’s fine that they looked at only adult patients, hopefully to gain more info about adult issues — there aren’t enough adult studies.  We know more about how TS changes over time in children than we do about adult issues … — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

"Jodi" <hellofromj…@NOSPAMcharter.net> wrote in message

news:10e1rmrkhpal291@corp.supernews.com… > "TSNW" <t…@optonline.net> wrote in message > news:40E0BF0A.92A307C6@optonline.net… > > OBJECTIVE: This study was conducted to describe the natural course of > > tic disorders over a long period of time > Then shouldn’t they have started with children rather than mean age: 31.4? > A childs tics would possibly change, but an adults would pretty much stay > the same over the 7 years.  Wouldn’t they?  Unless a change from the results > of meds?

I don’t believe just because one is an adult means that one’s tics stay the same over seven years! For some people maybe, but I don’t believe that’s true for the majority of us! Jo – Hide quoted text — Show quoted text -> > RESULTS: The adult patients with tic disorders could be classified into > > the four groups: > IMHO, probably the same 4 groups they were classified in when they started. > Am i not getting something here? > A > CONCLUSIONS: Further investigation into the natural course and clinical > > characteristics of adult TS needs to be done in order to acquire a > > better understanding > Another words, more money please.

Response:

"Jo Cohen" <joco…@comcast.net> wrote in message

news:2-adnYDkZfhBEXzdRVn-ug@comcast.com… > I don’t believe just because one is an adult means that one’s tics > stay the same over seven years!

My sons both have tics that were some of their first and have never left. Different ones come and go, but those are always there.  For my older son it is heavy quick eye blinks and nose scrunches, for my younger son it is finger and mouth stretches.  I call it their "core" tics.  Do most people not have these (core tics)? Jodi For some people maybe, but I don’t – Hide quoted text — Show quoted text -> believe that’s true for the majority of us! > Jo > > > RESULTS: The adult patients with tic disorders could be classified > into > > > the four groups: > > IMHO, probably the same 4 groups they were classified in when they > started. > > Am i not getting something here? > > A > CONCLUSIONS: Further investigation into the natural course and > clinical > > > characteristics of adult TS needs to be done in order to acquire a > > > better understanding > > Another words, more money please.

Response:

Jodi wrote: > My sons both have tics that were some of their first and have never left. > Different ones come and go, but those are always there.  For my older son it > is heavy quick eye blinks and nose scrunches, for my younger son it is > finger and mouth stretches.  I call it their "core" tics.  Do most people > not have these (core tics)?

Until just a few years ago, I would have answered that my son’s "core" vocal tic had not changed for about six years — a gulpy thing he did in the back of his throat was there regardless of any other everchanging tics … but it’s been gone for a while, too, now that I think about it … so today, I would have to say that my son’s tics are ever changing and that there is no particular "core" tic any more … but all of these recent reports have just served to make me question how good we really are at observing, rating, or self-rating tics. Does our memory interfere ? I used to say my son never ticced while performing … well, the other night, I had to review some of his old videos for audition material … he ticced a lot more than I remembered, even though I may have been the only one to know it … Many used to blindly accept the notion that tics increased with puberty, until a study (which many people stridently rejected when it came out) showed that puberty wasn’t correlated with tic severity.  Many assume(d) that tics increase(d) due to GABHS infections, and another study now claims that’s not true.  Now someone claims tics don’t increase with "life events" … <arrrgh> … how much of what we know or think we know about tics is true, and how much is based on long-held notions  or perception or myth???  "Knowledge is power" — certainly, knowing that tic severity isn’t correlated with puberty helps some face the idea of ticcing teenagers with less trepidation … so, even though I hope we’re not outright rejecting something that *could* turn out to be a valid observation, I just can’t get my arms around the idea that tic severity isn’t related to life events, although I still agree (with JMM) that they mostly probably have a life of their own … — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

"Jodi" <hellofromj…@NOSPAMcharter.net> wrote in message

news:10e39jlf4nsr80c@corp.supernews.com… > "Jo Cohen" <joco…@comcast.net> wrote in message > news:2-adnYDkZfhBEXzdRVn-ug@comcast.com… > > I don’t believe just because one is an adult means that one’s tics > > stay the same over seven years! > My sons both have tics that were some of their first and have never left. > Different ones come and go, but those are always there.  For my older son it > is heavy quick eye blinks and nose scrunches, for my younger son it is > finger and mouth stretches.  I call it their "core" tics.  Do most people > not have these (core tics)? > Jodi

For the longest time, my son had the eye blinking and nose scruntches. That’s what started it all the "labelling" But then when he started to swear and yell and say all kinds of nasty things, his motor tics seem to be less. He does still get motor tics like finger stretching, banging and touching. But when he’s really swearing and yelling, he seems to have less motor tics. Anyone else noticed that? — Joanne mom to Mat the Amazing!

Response:

‘Twas Mon, 28 Jun 2004 21:33:01 -0700 when all alt.support.tourette stood in awe as "Jodi" <hellofromj…@NOSPAMcharter.net> uttered: >> OBJECTIVE: This study was conducted to describe the natural course of >> tic disorders over a long period of time

You snipped "in Japanese adults patients" here.  Why? >Then shouldn’t they have started with children rather than mean age: 31.4? >A childs tics would possibly change, but an adults would pretty much stay >the same over the 7 years.  Wouldn’t they?  Unless a change from the results >of meds?

The objective was to study tic changes in adults.  My tics change over time.  I notice that when I read things I posted here years ago my tics have changed.  I don’t have multi-colored kittie tics.  I still say "I love the white kittie" or "I love the black kittie" or "I love the black and white kittie" or (rarely) "I love the purple kittie" but I haven’t said "I love the black and purple black and white and yellow purple kittie" in years.  I don’t go through numerical progressions either.  I might say "one hundred dollars" or "one hundred thousand dollars" but not "one hundred dollars, one hundred one dollars, on hundred seven dollars". — RB |  

Two new subjects(partially OT)

Question:

>I didn’t know there were any eastern European Cajuns. >–

Have you ever tried Kosher gumbo?

Response:

>Good point! I meant TS…which I hope people realized since TS is typically >used here to imply Tourette. But I understand the confusion!

I would say that since this a Tourette group, TS stands for Tourette Syndrome. It is a very good point, though.

Response:

‘Twas Mon, 10 Nov 2003 10:49:34 -0500 when all alt.support.tourette stood in awe as "Jo Cohen" <joco…@comcast.net> uttered: >Good point! I meant TS…

*sigh* — RB |  

drugs used to treat ADHD will usually worsen the RLS symptoms.

Question:

Sent: Wednesday, October 02, 2002 8:24 AM I thank you for the response you have recently given me on a couple of issues concerning my RLS. I do not mean to over utilize your assistance however I am on a journey to battle this illness and I do not want to leave any stone unturned. My question has to do with RLS and ADHD, I believe I suffered from ADHD most of my life and some have mentioned that being treated for ADHD actually relieved some of their RLS symptoms. Could you tell me which medications could be used to treat ADHD and if you have had any success in reducing rls symptoms after treating ADHD. I currently take either Mirapex usually .5 mg. or Ultram 100mg. I find the Ultram works wonders for helping me concentrate, I am becoming overwhelmed by even the most simple tasks. I am a pastor of a church and concentrating is a must for me. Thanks for your help Randy, 42, IL Medical Reply RLS experts feel that ADHD may be caused by RLS as RLS when active certainly makes it hard to concentrate or sit still.  Thus, treating the RLS problem may resolve the apparent ADHD.  It does not work the other way around.  In fact, the stimulant drugs used to treat ADHD will usually worsen the RLS symptoms.

Response:

Sent: Wednesday, October 02, 2002 8:24 AM I thank you for the response you have recently given me on a couple of

issues concerning my RLS. I do not mean to over utilize your assistance however I am on a journey to

battle this illness and I do not want to leave any stone unturned. My question has to do with RLS and ADHD, I believe I suffered from ADHD

most of my life and some have mentioned that being treated for ADHD actually relieved some of their RLS symptoms. Could you tell me which medications could be used to treat ADHD and if you

have had any success in reducing rls symptoms after treating ADHD. I currently take either Mirapex usually .5 mg. or Ultram 100mg. I find the Ultram works wonders for helping me concentrate, I am becoming

overwhelmed by even the most simple tasks. I am a pastor of a church and concentrating is a must for me. Thanks for your help Randy, 42, IL Medical Reply RLS experts feel that ADHD may be caused by RLS as RLS when active

certainly makes it hard to concentrate or sit still.  Thus, treating the RLS problem may resolve the

apparent ADHD.  It does not work the other way around.  In fact, the stimulant drugs used to treat

ADHD will usually worsen the RLS symptoms.

I think Katherine ought to offer her body for medical science to study! She claims more incredulous anonymolies than anyone posting to usenet ever claimed. Beginning with her assertion that her hypothyroidism was accompanied by HIGH blood pressure,  when hypothyroid state is accompanied by LOW,  LOW,  LOW blood pressure. Following that I think medical scientists ought to study  how the heck she could drink/taste 42 beers in 4 days…on the medications she alleges she’s on,   WHEN she also asserts she has GERD. GERD is Gastro-Esophogeal Reflux disorder. I have it,  owing to a weak valve between my stomach and esophogus letting stomach juices flow up into the esophogus if I am not careful about what i eat/drink. People with GERD are extremely careful about what they eat/drink,   because the esophogus isn’t lined in a manner can tolerate the acidic stomach juices flowing back up into the esophagus,  and there is HELL to pay in terms of burning up your esophogus if you eat or drink anything riles up your stomach juices to the point the acidic juices flow back up into your esophagus.   NOT a little pain,   but a great big incredible burning pain so bad,   you forever avoid eating or drinking anything churns or riles up your stomach juices, so they flow back up into your esophogus. Tyramine and the chemicals used to ferment beer,  and in wine…Rile up your stomach from just a few sips of wine or champagne or beer,  and give you KILLER pain in your esophugus.. so how the heck is someone with GERD gonna let their stomach get riled up  42 times in 4 days and risk that much Pain? then she tells us she has RLS…which has been associated with iron deficincy (for 40 years now),  problem pregnancy and in some people,  kidney impairments. Yet,  she’s not treated for the iron deficiency or a problem pregnancy or Kidney,  why she’s given neurontin an anticonvulsant for a problem known to be associated with an iron deficiency,  or in rare cases problematic pregnancies or kidney problems???? Then,  to top it all off…this person who claims she  is being treated for high blood pressure with hypoT,   Neurontic for RLS,  and has GERD,  says she has been prescribed a stimulant while she’s on hypertensive medication, which will also exacerbate the RLS,  and the GERD. YEP! all manner of incredulous anonymalies of condition,  then she can chug beer when nobody else on medications and having GERD to boot,  can risk, plus she claims she was  prescribed stimulants while she is being treated for hypertension,  RLS and GERD,  when such will exacerbate those conditions. INCREDULOUS!

Response:

Beginning with her assertion that her hypothyroidism was accompanied by HIGH blood pressure,  when hypothyroid state is accompanied by LOW,  LOW,  LOW blood pressure.

Not necessarily, according to these studies you’ll find at the NIH website: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Link&db=PubMed&dbFr… I know you aren’t interested in the facts, Linda, but you should at least do some rudimentary research before you fire off one of these missives – it’ll save you from making yourself look foolish.  Again. Tyramine and the chemicals used to ferment beer,  and in wine…Rile up your stomach from just a few sips of wine or champagne or beer,  and give you KILLER pain in your esophugus..

According to the GERD faq at http://www.gerd.com/faq/gerd-faq.htm , "The major factor [in triggering GERD] is meals. Meals stimulate the stomach to produce more acid that can reflux up into the esophagus." You might try eating smaller meals, Linda – it’s sure helped me. then she tells us she has RLS…which has been associated with iron deficincy (for 40 years now),  problem pregnancy and in some people, kidney impairments. Yet,  she’s not treated for the iron deficiency or a problem pregnancy or Kidney,

From my post to alt.vegan of 4/8/03: http://www.google.com/groups?q=iron++%22katherine+wolfe%22&hl=en&lr=&… "The best way to assess your iron status is to be tested at the doctor.   I just had my physical, showed up that my iron stores are low, although I’m not anemic, and so I’m going to take supplements for a few months, and be tested again." But enough about me, Linda, what about you?  You’ve admitted you don’t have ADD, and that your son doesn’t have it.  You don’t get any support here, and Lord knows you don’t give any.  So why is it that you’re here?  Are you mailing postcards from places you’ve never been? You can expect Linda to now froth at the mouth some more, or post another irrational rant, to try to distract people from her persistent refusal to answer the question.  If she did, she’d have to admit to herself that the only reason she’s here is to spew her vitriolic garbage over anyone within her reach.  And we can’t have that, now can we? Katherine

Response:

GERD is Gastro-Esophogeal Reflux disorder. People with GERD are extremely careful about what they eat/drink,  

Is that so? Then why was it that my GERD was independant of anything I ate? Perhaps you should speak to my surgeon–one of the two who developed the procedure currently used to correct the problem–that he does not know what he is talking about. INCREDULOUS!

truly – Hide quoted text — Show quoted text –

Response:

GERD is Gastro-Esophogeal Reflux disorder. People with GERD are extremely careful about what they eat/drink, Is that so? Then why was it that my GERD was independant of anything I ate?

Ditto. Perhaps you should speak to my surgeon–one of the two who developed the procedure currently used to correct the problem–that he does not know what he is talking about.

Mark, did you have a fundoplication? I’m staying a long ways away from it for now … just not sure about it yet … any advice? Any idea who is #1 fundo surgeon in the NYC area? — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

- Hide quoted text — Show quoted text – GERD is Gastro-Esophogeal Reflux disorder. People with GERD are extremely careful about what they eat/drink, Is that so? Then why was it that my GERD was independant of anything I ate? Ditto. Perhaps you should speak to my surgeon–one of the two who developed the procedure currently used to correct the problem–that he does not know what he is talking about. Mark, did you have a fundoplication?

yes and it was wonderful. I have not had heartburn once in the ten years it was done. I was going through a bottle of rolaids a week (on top of prilosec and tagamet) and vomitting twice a day on clockwork (2 and 8 AM). The drawbacks seem to be few–i have a hard time burping and there’s a small lump in the soft tissue under my breastbone from where the stomach was turned back (most of the time I don’t even notice it). I’ve heard stories of the flap getting tied too tight (and burping is impossible) or too loose (and there is residual GERD) but mine appears to be "just right." Some of the preop testing was nastier than the actual procedure. I was helping a friend move a week after I had mine done with little discomfort. I’m staying a long ways away from it for now … just not sure about it yet … any advice? Any idea who is #1 fundo surgeon in the NYC area?

I’ll look around. I had mine done at Univ. Illinois Chicago Med Center before I moved back east.

Response:

Mark, did you have a fundoplication? yes and it was wonderful. I have not had heartburn once in the ten years it was done. I was going through a bottle of rolaids a week (on top of prilosec and tagamet) and vomitting twice a day on clockwork (2 and 8 AM).

You poor thing!  My run-in with GERD was a lot milder than this – eating smaller meals and avoiding orange juice has gotten me down to occasional heartburn.  I’m glad the surgery went well, it sounds like you’re doing a lot better. Katherine

Response:

Any idea who is #1 fundo surgeon in the NYC area? I’ll look around. I had mine done at Univ. Illinois Chicago Med Center before I moved back east.

Thanks, Mark.  I’ve been asking around, and searching the ‘net, with little success.  My gastro is WAY too hot to operate on me, and I don’t feel he’s qualified.  In the meantime, controlled diet, elevated bed, all that … and 80 mg daily Nexium.   I’m looking for a great surgeon, with a proven track record, in either the NYC or Yale area.  I found a GERD message board, but it was a waste.  If you hear anything, please let me know … but keep in mind that I do killfile most threads here once they get  … well, you know … so please call my attention to it if you hear anything.  Thanks again !! — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com

Response:

Adult with TS Needing Affordable Insurance

Question:

>Teaching Your Child the Language of >Social Success by Marshall P. Duke, et al (1996).  

Thank you, Pat, I will look for it. He is going to take a Social Cognition class this trimester, but I have not seen the curriculum for it yet. Sara

Response:

>and it offers a Gaming Degree. >           ?!

A degree in Video Game Development. Sara

Response:

>>Teaching Your Child the Language of >>Social Success by Marshall P. Duke, et al (1996).   >Thank you, Pat, I will look for it.

I found it on Amazon for $8! It looks very much like another book I’ve read, called, "Helping the Child Who Doesn’t Fit In." Further research showed that Marshall Duke wrote that one too! I gave that book away because I hated the title, although I made copies of the exercises before I gave it away. It will be nice to have similar exercises with a better title!! Sara

Response:

>>and it offers a Gaming Degree. >>           ?! >A degree in Video Game Development.

             ?!  I guess I’m just behind the times!   What sort of degree, though –  Bachelor of Arts??  Science??  Medicine??  Engineering??  Finance?? Derek Derek

Response:

> I guess I’m just behind the times!   What sort of degree, though – > Bachelor of Arts??  Science??  Medicine??  Engineering??  Finance?? >Derek

That is a very good question. I believe it’s a B.A. Sara

Response:

>Subject: Re: Adult with TS Needing Affordable Insurance >From: sesgard…@aol.com  (Sesgardner) >Date: 8/26/03 10:28 AM Pacific Daylight Time >Message-id: <20030826132820.20931.00000…@mb-m13.aol.com> >>How do you decide what *his* choice of school might be,  so you can make >sure >>he takes the right classes? >Well, he is very clear (for right now, anyway) that he wants to go to UCI. >It’s >right across the street from our house, and it offers a Gaming Degree.

A Gaming Degree is certainly a fascinating degree to get if he shares my and my son’s interest,  if by gaming degree you mean one about the  Gaming industry, meaning gambling industry,  or even gaming as in programming nintendo and play station 2 games! My son’s a regular  Conventioneer at all the big  Gaming Industry conventions for video games,  and what not. If you its gaming as in gambling,  where are you that he has been introduced to  gaming,   Palm Springs? Would you mind telling em the name of the college? I am fascinated at the idea there is such a thing as a "gaming degree" in vegas,  everyone who works in any establing with any kind of gambling,  must obtain a "Gaming License"  (and sheriff’s card) But,  I never heard anyone speak of getting a gaming degree. I would like to know more about it.   >It’s very tough to get into, however. He’s got a lot going for him, including >the fact that he’ll be attending one of the top-rated high schools in the >country. But the competition is stiff, and he is not someone who enjoys >studying prescribed courses. He would make an excellent "self-educated" man, >since he loves to read about any subject that is of interest to him. >We shall see!

I was told that  around age 15/16 a light bulb goes off and they know what they want they want  to be,  and believe it because i decided myself at around that age. . So I tried to  ensure he had a  proper but  general rather than specialized foundation,  academcially,  for whatever  that  might turn out to be,  rather than  close any doors before he reached the age he would  *know" >Sara

Linda

Response:

Are there any adults with Tourette syndrome here that have been able to acquire affordable health insurance? I’m asking because I am in the following scenario: 1. I just graduated from college 2. I have not been able to get hired since June 2002 3. My mother’s insurance co. from work will not extend coverage unless I’m a full-time student under the age of 25 4. I was turned down for private insurance by Blue Shield and Health Net because of my pre-existing Tourette diagnosis. Plus, COBRA is imposing a large (>$300) monthly premium and Blue Cross PPO is not so hot either 5. I am again covered (for now) under my mother’s insurance policy because I’m back in school as a full-time graduate student 6. In 2005, I expect to graduate with an M.S. degree, and if the economy doesn’t pick up and enable me to land a job, I will be in the same predicament–having no health insurance and paying $550/month for prescription drugs! If you are, or know, a TS adult in California has been able to acquire private health insurance having a modest premium, would you please post your contact info here or at my E-mail address (pauljo…@verizon.net)? Thanks, everyone! P.J. Azusa, California (23 w/ TS)

Response:

P.J. Wrote: – Hide quoted text — Show quoted text ->Are there any adults with Tourette syndrome here that have been able to >acquire affordable health insurance? I’m asking because I am in the >following scenario: >1. I just graduated from college >2. I have not been able to get hired since June 2002 >3. My mother’s insurance co. from work will not extend coverage unless >I’m a full-time student under the age of 25 >4. I was turned down for private insurance by Blue Shield and Health Net >because of my pre-existing Tourette diagnosis. Plus, COBRA is imposing a >large (>$300) monthly premium and Blue Cross PPO is not so hot either >5. I am again covered (for now) under my mother’s insurance policy >because I’m back in school as a full-time graduate student >6. In 2005, I expect to graduate with an M.S. degree, and if the economy >doesn’t pick up and enable me to land a job, I will be in the same >predicament–having no health insurance and paying $550/month for >prescription drugs! >If you are, or know, a TS adult in California has been able to acquire >private health insurance having a modest premium, would you please post >your contact info here or at my E-mail address (pauljo…@verizon.net)? >Thanks, everyone! >P.J. >Azusa, California >(23 w/ TS)

Hi P.J. and welcome to ast.  I have a son who is 22 who will finish college this upcoming January.  Please have your mother check with her work about who is actually covered.  I know that my son will be covered as long as I work at my current employer as a disabled child.  Most employers who have this insurance don’t "advertise" it. It’s tough out there right now trying to find a job, but stick with it. Pat

Response:

- Hide quoted text — Show quoted text ->Affordable Insurance >From: pparent…@aol.com >P.J. Wrote: >>Are there any adults with Tourette syndrome here that have been able to >>acquire affordable health insurance? >Hi P.J. and welcome to ast.  I have a son who is 22 who will finish college >this upcoming January.  Please have your mother check with her work about who >is actually covered.  I know that my son will be covered as long as I work at >my current employer as a disabled child.  Most employers who have this >insurance don’t "advertise" it. >It’s tough out there right now trying to find a job, but stick with it. >Pat

Hi PJ and Pat. Similar situation here too. My son is 22, going to grad school, and with TS (and diabetes). So I know he falls under IDEA due to either of those 2 . He is still covered like PJ due to the full time college status. But I also think NJ and some other states have the law about preexisting conditions. Will that mean that they can charge higher premiums or that they can’t discriminate? I was just hoping that when he gets a job ( hopeful) the company will have to pay ( as long as that state has the no preexisting laws). Anyway, PJ, good luck in grad school. What are you specializing in? And where are you going (if you don’t mind me asking? Pat, how about your son? Mine will be at NYU for international economics and politics.

Response:

- Hide quoted text — Show quoted text -Paul-John A. To wrote: > Are there any adults with Tourette syndrome here that have been able to > acquire affordable health insurance? I’m asking because I am in the > following scenario: > 1. I just graduated from college > 2. I have not been able to get hired since June 2002 > 3. My mother’s insurance co. from work will not extend coverage unless > I’m a full-time student under the age of 25 > 4. I was turned down for private insurance by Blue Shield and Health Net > because of my pre-existing Tourette diagnosis. Plus, COBRA is imposing a > large (>$300) monthly premium and Blue Cross PPO is not so hot either > 5. I am again covered (for now) under my mother’s insurance policy > because I’m back in school as a full-time graduate student > 6. In 2005, I expect to graduate with an M.S. degree, and if the economy > doesn’t pick up and enable me to land a job, I will be in the same > predicament–having no health insurance and paying $550/month for > prescription drugs! > If you are, or know, a TS adult in California has been able to acquire > private health insurance having a modest premium, would you please post > your contact info here or at my E-mail address (pauljo…@verizon.net)? > Thanks, everyone! > P.J. > Azusa, California > (23 w/ TS)

I would suggest checking California state law to see if they have a state insurance plan that covers people who cannot get insurance on the open market. Minnesota has a similar plan and the cost is only about $30 – $40 more than the open market. I found out about that through some of my former co-workers. The company paid your insurance costs but you had to get it in the open market. Apparently I was the only one in the company that could get insurance in the open market (and if I was receiving services for a disorder diagnosed as a child, I am sure I would have been denied). It would be something to look into as a possibility. — Louis Bouchard de KC2FNN Rochester MN USA louisjbouch…@charter.net "I do not fear computers. I fear the lack of them." —————————– Issac Asimov

Response:

Jan Wrote: >Pat, how about your son? Mine will >be at NYU for international economics and politics.

Dan is going to Providence College, English major, will graduate in January. He just finished his fourth year as an intern for the state, with the Commission on Human Rights investigating cases.  I think he has found a job he really likes to do! Pat

Response:

>From: pparent…@aol.com  (PParent112) >Dan is going to Providence College, English major, will graduate in January. >He just finished his fourth year as an intern for the state, with the >Commission on Human Rights investigating cases.  I think he has found a job >he >really likes to do!

Sounds great. Jan

Response:

I attend the California State Polytechnic University, in Pomona, CA, where I am working on a Masters Degree in computer science. I’ve decided that I want to specialize, yet not exactly in what area. Ideas I’ve looked into include secure computer networks, computer databases, and Web programming. Thanks for all the input I’ve received so far. I hope more of you continue to write in. P.J.

Response:

>My son is 22, going to grad school, >and with TS (and diabetes). So I know he falls under IDEA due to either of >those 2 .

IDEA ends upon graduation from high school with a regular ed diploma.  It has nothing to do with college — college students get 504 plans.   [I realize that you've filtered me out, but I posted this so that others won't be erroneously thinking that their students are covered under IDEA (Individuals with Disabilities Education Act) after graduation from high school with a regular ed diploma. In fact, there's an OCR presentation entitled, "There are No IEPs in College." You might want to see if it could be presented in a school near you.]  

Response:

- Hide quoted text — Show quoted text ->>My son is 22, going to grad school, >>and with TS (and diabetes). So I know he falls under IDEA due to either of >>those 2 . >IDEA ends upon graduation from high school with a regular ed diploma.  It has >nothing to do with college — college students get 504 plans.   >[I realize that you've filtered me out, but I posted this so that others >won't >be erroneously thinking that their students are covered under IDEA >(Individuals >with Disabilities Education Act) after graduation from high school with a >regular ed diploma. >In fact, there's an OCR presentation entitled, "There are No IEPs in >College." >You might want to see if it could be presented in a school near you.]  

Jan, what kinds of services does your son get at grad school? My son dearly wants to go to UCI, and I’m in the process of figuring out what we need to accomplish before he graduates, and what kinds of things I can expect from a college. Brenda, what is OCR? And what suggestions do you have for me to ensure that my son takes the right courses now to help him get into the school of his choice? We just got his testing results back and he scored in the 98th and 99th percentile across the board! Sara

Response:

>what is OCR? And what suggestions do you have for me to ensure that my >son takes the right courses now to help him get into the school of his >choice? >We just got his testing results back and he scored in the 98th and 99th >percentile across the board!

Office of Civil Rights. There’s an interesting e-mail listserv  that has lots of suggestions about getting into students’ selected colleges, including courses to take, extracurriculars (he/she who participates in the most extracurriculars doesn’t win), tests, etc.  I’ll dig up the subscription info and send it to you. One thing they stress over and over is the importance of taking challenging courses (AP).  And any chance your son has to take high school credit courses in middle school/junior high, he should take (especially with those scores). My 12 y/o son will be taking Algebra 1 for high school credit this year, and also his second credit of high school foreign language.  By the time he leaves middle school, he will have 6 or 6-1/2 high school credits, so this will allow him to take higher level courses in high school earlier. When our kids don’t have that extra attraction of being a minority granted special status for college admissions purposes, it’s a different playing field that they have to compete against.

Response:

"Sesgardner" <sesgard…@aol.com> wrote in message

news:20030826101208.21713.00000665@mb-m01.aol.com… >And what suggestions do you have for me to ensure that my > son takes the right courses now to help him get into the school of his choice? > We just got his testing results back and he scored in the 98th and 99th > percentile across the board! > Sara

Here’s a site that addresses some of my concerns along this line.  Now that my son is entering junior high a focus on college prep is foremost in my mind. — pwilson: http://www.ed.gov/pubs/GettingReadyCollegeEarly/step2.html

Response:

- Hide quoted text — Show quoted text ->Subject: Re: Adult with TS Needing Affordable Insurance >From: sesgard…@aol.com  (Sesgardner) >Date: 8/26/03 7:12 AM Pacific Daylight Time >Message-id: <20030826101208.21713.00000…@mb-m01.aol.com> >>>My son is 22, going to grad school, >>>and with TS (and diabetes). So I know he falls under IDEA due to either of >>>those 2 . >>IDEA ends upon graduation from high school with a regular ed diploma.  It >has >>nothing to do with college — college students get 504 plans.   >>[I realize that you've filtered me out, but I posted this so that others >>won't >>be erroneously thinking that their students are covered under IDEA >>(Individuals >>with Disabilities Education Act) after graduation from high school with a >>regular ed diploma. >>In fact, there's an OCR presentation entitled, "There are No IEPs in >>College." >>You might want to see if it could be presented in a school near you.]   >Jan, what kinds of services does your son get at grad school? My son dearly >wants to go to UCI, and I’m in the process of figuring out what we need to >accomplish before he graduates, and what kinds of things I can expect from a >college. >Brenda, what is OCR? And what suggestions do you have for me to ensure that >my >son takes the right courses now to help him get into the school of his >choice? >We just got his testing results back and he scored in the 98th and 99th >percentile across the board!

How do you decide what *his* choice of school might be,  so you can make sure he takes the right classes? I thought I knew, until he was about to turn 15 and he let me know otherwise. Linda

Response:

> One thing they stress over and over is the importance of taking challenging > courses (AP).

A program they have here is called Running Start.  If you qualify, in your Jr and sr year you can take college classes (at the college) and get college credit and high school credit.   You have to pay for books but the hs pays for tuition.  At the end of your senior year you graduate with hs diploma and AA degree.  If that is too intense, you can just take a few college classes to give you a jumpstart on your AA. What an opportunity for students! Jodi

Response:

>  Now that >my son is entering junior high a focus on college prep is foremost in my >mind. — pwilson: >http://www.ed.gov/pubs/GettingReadyCollegeEarly/step2.html

Thanks, that’s exactly where we’re at. I’m trying to balance his tremendous academic success with his tremendous social deficits. I’m not sure how he would do with the stress of more difficult courses, so we’re taking it slow this first trimester. Sara

Response:

>How do you decide what *his* choice of school might be,  so you can make sure >he takes the right classes?

Well, he is very clear (for right now, anyway) that he wants to go to UCI. It’s right across the street from our house, and it offers a Gaming Degree. It’s very tough to get into, however. He’s got a lot going for him, including the fact that he’ll be attending one of the top-rated high schools in the country. But the competition is stiff, and he is not someone who enjoys studying prescribed courses. He would make an excellent "self-educated" man, since he loves to read about any subject that is of interest to him. We shall see! Sara

Response:

>One thing they stress over and over is the importance of taking challenging >courses (AP).  And any chance your son has to take high school credit courses >in middle school/junior high, he should take (especially with those scores).

Thanks, Brenda, I got the lnk. It looks great. We don’t have him signed up for AP courses this trimester, since we’re not sure how the new school experience will work out for him. He gets stressed very easily and cannot handle a ton of homework. Plus, his projects are not "polished," he lacks the fine motor skills for that. Sara

Response:

- Hide quoted text — Show quoted text ->Subject: Re: Adult with TS Needing Affordable Insurance >From: "Jodi" hellofromj…@charter.net >Date: 8/26/03 9:51 AM Pacific Daylight Time >Message-id: <vkn3smb830u…@corp.supernews.com> >> One thing they stress over and over is the importance of taking >challenging >> courses (AP). >A program they have here is called Running Start.  If you qualify, in >your Jr and sr year you can take college classes (at the college) and >get college credit and high school credit.   You have to pay for books >but the hs pays for tuition.  At the end of your senior year you >graduate with hs diploma and AA degree.  If that is too intense, you >can just take a few college classes to give you a jumpstart on your AA. >What an opportunity for students! >Jodi

I agree. My son was gungho in 7th and 8th grades while in AP courses he would recive  HS credit for.  But had a major case of  RSS his freshman and sophomore years. Now,  a junior he appears to be  gungho once again,   and I do believe it’s  owing to his being in that AP history course for which he will get college credit. Even if they choose not to remain in ALL the AP’s,  …as my son CHOSE to opt out of all AP’s  but history after freshman year, his staying with the one has a  positive and enhancing effect. (FYI,    RSS isn’t a real disorder,   i made it up =  Reluctant Schoolboy Syndrome) Linda

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>and it offers a Gaming Degree.

           ?! Derek

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"Sesgardner" <sesgard…@aol.com> wrote in message

news:20030826132405.20931.00000759@mb-m13.aol.com… > >  Now that > >my son is entering junior high a focus on college prep is foremost in my > >mind. — pwilson: > >http://www.ed.gov/pubs/GettingReadyCollegeEarly/step2.html > Thanks, that’s exactly where we’re at. I’m trying to balance his tremendous > academic success with his tremendous social deficits. I’m not sure how he would > do with the stress of more difficult courses, so we’re taking it slow this > first trimester. > Sara

Sara, you might want to pick up the book Teaching Your Child the Language of Social Success by Marshall P. Duke, et al (1996).  On page 7 it states: Nonverbal language is the mother language of the human relationship." Later on on the same page:  "A classic set of studies by Albert Mehrabian showed that in face-to-face interactions,  55 percent of the emotional meaning of a message is expressed through facial, postural, and gestural means, and 38 percent of the emotional meaning is transmitted through tone of voice.  Only 7 percent of emotional meaning is actually expressed with words." On page 8:  "When we see someone make a mistake in verbal communication, we may make judgements about that person’s intellectual abilities.  In contrast, when we see a person commit an error in nonverbal communication, we are more prone to think of that person as socially inept and even unlikable.  We might sympathetically look upon a person who makes mistakes in verbal communication as poorly educated.  On the other hand, we are likely to regard a person who makes errors in nonverbal communication as strange or weird.  Children often apply cruel names to those who — for reasons they cannot ascertain — do not follow nonverbal social rules. While children’s levels of verbal ability undoubtedly have something to do with their social success, it is likely that their social success will be affected even more significantly by their nonverbal language skills." The authors develop specific chapters on the various parts of speech of nonverbal language, including paralanguage, facial expressions, space and touch, gestures and postures, and rhythm and timing. I’ve looked a number of years for a decent book about social skills.  Most of those I found weren’t worth a nickel.  This one really nailed down what I was looking for.  It provides excellent definitions, examples, and easy-to-follow exercises.  We found it to be a valuable resource for teaching and improving our son’s nonverbal skills. — pwilson

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THC effective in Tourette syndrome in a 6-week trial (International Association for Cannabis as Medicine)

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<gnlw…@comcast.net> wrote in message

news:aRadnX10KsIA1kujXTWcrg@comcast.com… > Dumb question.  What is THC?

Tetrahydracannabinol (or something like that!) Pot, weed, cannibus Jo – Hide quoted text — Show quoted text -> Lisa > "Randall Bart" <Barti…@att.spam.net> wrote in message > news:qhk0dvobl8mqlqadaf51m1n866ud8l5b18@4ax.com… > > From: Richard Lake <rl…@mapinc.org> > > Date: Sun, 11 May 2003 18:48:23 -0400 > > Subject: [medicalmarijuanafreedom] IACM-Bulletin of 11 May 2003 > > * Science: THC effective in Tourette syndrome in a 6-week trial > > Science: THC effective in Tourette syndrome in a 6-week trial > > A double-blind placebo-controlled study with 24 patients suffering > > from Tourette syndrome was conducted at the Medical School of > > Hannover, Germany. The 6-week trial confirmed results of two > > earlier short-term studies by Dr. Kirsten Mueller-Vahl and > > colleagues that THC is effective in the reduction of tics. > > The Tourette syndrome is a complex neurological-psychiatric > > disorder characterized by motor tics (sudden spasms especially in > > the face, the neck and the shoulders) and one or more vocal tics. > > In many cases, it is associated with behavioural problems or > > psychopathologies (autoaggression, disturbed attention, etc.). > > Presently, neuroleptics are the most effective drugs. However, > > neuroleptics are not effective in all patients and in many cases, > > are not well tolerated. > > Patients were treated over a period of 6 weeks. The dosage was > > titrated to the target dosage of 10 mg THC. Starting at 2.5 > > mg/day, the dose was increased by increments of 2.5 mg/day > > every 4 days. Tic severity was rated using several established > > scales. > > Seven patients dropped out of the study or had to be excluded, but > > only one due to side effects. Application of THC resulted in a > > significant improvement of tic severity. No serious adverse > > effects occurred. Authors concluded that the results provide > > more evidence that THC is effective and safe in the treatment of > > tics. > > (Source: Mueller-Vahl KR, Schneider U, Prevedel H, Theloe K, > > Kolbe H, Daldrup T, Emrich > > HM. Delta-9-tetrahydrocannabinol (THC) is effective in the > > treatment of tics in Tourette syndrome: a 6-week randomized trial. > > J Clin Psychiatry 2003;64(4):459-465) > > (More at the IACM-Bulletin archives: http://www.cannabis-med.org/) > > International Association for Cannabis as Medicine (IACM) > > Arnimstrasse 1A > > D-50825 Cologne > > Germany > > Phone: 221-9543 9229 > > Fax: 221-130 05 91 > > Email: i…@cannabis-med.org > > http://www.cannabis-med.org > > If you want to be deleted from or added to the IACM-Bulletin > > mailing list or if you want to change your e-mail address please > > visit > > www.cannabis-med.org/english/subscribe.htm. You may choose > > between different languages (English, German, French, Dutch, > > Italian, Spanish and Swedish). > > — > > RB |  

tourette's-please help!

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- Hide quoted text — Show quoted text ->Hi everyone, >I am new here.  My 7 year old son was just diagnosed with tourette’s, and I >am >devistated!    He is loaded with tics, and it  is breaking my heart.  The >Doctor gave me a script for medication, however, I am very againt medicating >children.  Does anyone know of any natural approaches to treating this >disorder? >Thank you in advance for any info. you can offer me. >Pam

Dear Pam, I know how you feel but it does get better.  My now almost 15 yr. old was dx’d 2 years ago and it was so hard.  He is now on Tenex, his tics ranged from mild to average but now they are really not a problem. Like others have said, you’re not alone and as hard as it is, it could always be worse.  TS is not terminal and it can become just a small part of who your boy is.  There are several good books on it.  Go to a bookstore and research it.   Try to calm down yourself as he needs your strength right now.  It will get better.  Write any time.

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Hi Pam,     I have a 12 year old son with TS. He was diagnosed when he was 8. That was the hardest time of my life. You need to go through all the emotions: anger, frustration, sadness, grief… then you pull up your socks and you read all you can about TS. Some info will be familiar while others won’t quite match your son. You and your son together should decide what is best for him.  I wish you all the best in this life long quest… just remember, you and your son are not alone. — Joanne Mom to Mat the brat! "PammyRI" <pamm…@aol.com> wrote in message

news:20030512203302.27936.00000188@mb-m05.aol.com… – Hide quoted text — Show quoted text -> Hi everyone, > I am new here.  My 7 year old son was just diagnosed with tourette’s, and I am > devistated!    He is loaded with tics, and it  is breaking my heart.  The > Doctor gave me a script for medication, however, I am very againt medicating > children.  Does anyone know of any natural approaches to treating this > disorder? > Thank you in advance for any info. you can offer me. > Pam

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- Hide quoted text — Show quoted text ->"PammyRI" <pamm…@aol.com> wrote in message >news:20030512203302.27936.00000188@mb-m05.aol.com… >> Hi everyone, >> I am new here.  My 7 year old son was just diagnosed with tourette’s, and >I am >> devistated!    He is loaded with tics, and it  is breaking my heart.  The >> Doctor gave me a script for medication, however, I am very againt >medicating >> children.  Does anyone know of any natural approaches to treating this >> disorder? >> Thank you in advance for any info. you can offer me. >> Pam

Welcome Pam. I am a bit ahead of some here since my son is now 22, but was dxed at age 10. Twelve years flies by in the scheme of things. It was a difficult, stomach-achey time for me then, also. He has his waves of more ticcing, yet years of pretty mild ones. It’s been a "ticcing" year with college graduation and stuff, but hopefully things will settle down again. Lots of empathy is floating around here in cyberspace. Jan

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"PammyRI" <pamm…@aol.com> wrote in message

news:20030512203302.27936.00000188@mb-m05.aol.com… > Hi everyone, > I am new here.  My 7 year old son was just diagnosed with tourette’s, and I am > devistated!    He is loaded with tics, and it  is breaking my heart.  The > Doctor gave me a script for medication, however, I am very againt medicating > children.  Does anyone know of any natural approaches to treating this > disorder? > Thank you in advance for any info. you can offer me. > Pam

Here is a link to holistic treatment of TS. http://www.tourette-syndrome.com/holistic.htm

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http://www.bonniegr.com/index.htm HI Pam, Welcome to ast.  The above link is to Bonnie Grimaldi who sells vitamins specifically for TS kids.  Her website has a contact email address, if you have questions she can try to answer them for you.   I have never tried these, so have no opinion on the effectiveness.  My son is on Tenex, a first-line TS med.  I also didn’t want to use meds on my son, but started about a year after he was dx’d. Ask any questions you may have, there are  alot of great people here who either have TS themselves, or children with TS.   Its great to get advice from people who have "been there."   You will find alot of differing opinions, so do lots of research on your own and go with your gut instincts.  :) Take Care, Jodi

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Hi everyone, I am new here.  My 7 year old son was just diagnosed with tourette’s, and I am devistated!    He is loaded with tics, and it  is breaking my heart.  The Doctor gave me a script for medication, however, I am very againt medicating children.  Does anyone know of any natural approaches to treating this disorder? Thank you in advance for any info. you can offer me. Pam

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new here

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"Dave" <dave_jine…@netzero.net> wrote in message

news:e70pbvgfk1hv9uvu3lvfcqsqpct0rqc1m8@4ax.com… 2) So > many advances have been made in research that literature published > even with in the last 5-10 years is outdated, let alone 20 years. > .Dave

Very true.  How anyone could suggest ignoring 20+ years of research as irrelevant is beyond me.  Welcome to the group Daisie.  :) Jodi

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Welcome Daisie– As a parent of a 14 yr. old with TS, it is very overwhelming at first.  After almost two years now of dealing with it, I have to say that it does get easier and life does go back to "normal".  My son has a mild case, with some ADD, OCD, and ODD(oppositional defiant disorder) and has been helped by Tenex.  Find a good neuro. and start if needed with the mildest of meds to see what might work for him.  My son’s ADD isn’t treated as it is espec. mild but the Tenex does help the tics.   Yes, it is true that pharmaceutical companies are out to make money (aren’t we all) but do not discount the power and helpfulness of medications.  You cannot be embittered to the point that you turn your back on all meds.  I waited for awhile, then put him on something like he was begging me to do and I haven’t been sorry. Good luck and write any time. Lisa

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Hello, I just found this newsgroup.  My son is 7 and has a bad case of ADHD. Recently he has started having  a nervous tic in his face.  He blinks constantly, and does this sort of grimace with his mouth.  I looked up on the internet to see if there was any connection between this and his ADHD. That is where I found out about TS.  While I was reading about TS, I remembered about 5 months ago when my son start doing this strange sniffing noise.  He did it constantly, even though he didn’t have a cold.  It went away after about a month.     My question is, we had discussed before this latest tic started, putting my son on medication for his ADHD.  His grades have dropped dramatically, even though he is incredibly intelligent, because he is unable to focus, and his movements are disturbing his class. I haveread so many confusing things about ADHD medicine and TS.  Does anyone have any input.  We are going to the DR. at 3:00 today, and I would like to be armed with information before we go. Thanks, Daisie

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Daisie, Welcome to AST. Stimulant medications for ADHD do *NOT* cause TS, but can trigger tics in some kids. Often, when the stimulant is reduced, the tics disappear. For some kids who may have developed TS anyway, it might trigger it. You might ask your doctor about a few of the newer stimulants like Strattera or Adderall that supposedly are better for kids who develop tics. I would also suggest keeping a record or diary of the tics he displays, how long they last, and jot a few notes down about their frequency. This might come in handy someday (hopefully you won’t need it) if a doctor ever needs to determine a diagnosis of Tourette. Good luck and keep us posted! Jo "Daisie" <almue…@attbi.com> wrote in message

news:Skuua.778364$F1.98176@sccrnsc04… – Hide quoted text — Show quoted text -> Hello, I just found this newsgroup.  My son is 7 and has a bad case of ADHD. > Recently he has started having  a nervous tic in his face.  He blinks > constantly, and does this sort of grimace with his mouth.  I looked up on > the internet to see if there was any connection between this and his ADHD. > That is where I found out about TS.  While I was reading about TS, I > remembered about 5 months ago when my son start doing this strange sniffing > noise.  He did it constantly, even though he didn’t have a cold.  It went > away after about a month. >     My question is, we had discussed before this latest tic started, putting > my son on medication for his ADHD.  His grades have dropped dramatically, > even though he is incredibly intelligent, because he is unable to focus, and > his movements are disturbing his class. I haveread so many confusing things > about ADHD medicine and TS.  Does anyone have any input.  We are going to > the DR. at 3:00 today, and I would like to be armed with information before > we go. > Thanks, > Daisie

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Welcome Daisie, to the wonderful, frustrating world of Tourette’s, the hype, misinformation, the lackof consistent information and the total lack of understanding what Tourette’s sufferers experience. With that doomsday description, there are wonderful people here who as parents of children with TS, parents with TS, or anyone else with TS the best way to get information is from peers and fellow people who understand the condition firsthand- the TS’ers themselves. The tics you describe your son as showing are identical to the ones I had when I first started showing signs. (I’m 38 now, started having "tics" around 6th grade). Realize that each person, regardless of age, sex, or race will have their own personal battles and if you decide on medications, one may work for some, but may not work for others. This is why I am disputing the below statement from Daisie. I have tried Ritalin Ritalin SR, Adderall, Caffeine (for my ADD) plus Zoloft, Paxil, Clonidine, Risperdal, Orap, etc. each with varying success, stimulants did not affect my tic behaviior in any way, and some actually decreased my tics. The key (for me) is to help your son understand that A) He is OK- that there is nothing wrong with him (per se), and show him you love him NO MATTER WHAT. Help him, don’t criticize or question him. I have emotional scars that go back years because of this and 2) watch him and look for "triggers" that can cause tics to flare. I have learned that fatigue (lack of sleep) and anxiety are the two major causes of my ticcing. >When it comes to info about TS and stimulants  I advise people to ONLY rely >on research and info…published before the mid 80’s,  as the "research" >since is all tainted by  hyperbole and propaganda by big drugz and nuts who >encourage the drugging of children. >Before the drug companies compromised all basic research in US…it was a >well established and accepted fact in the scientific community that >stimulants triggered the expression of disorders like TS and even bipolar >disorder in persons who would never have developed TS or bipolar disorder, >if not given stimulant meds.

The problem with this theory is that A) Its a conspiracy by drug companies to get us on meds) which is probably partially true but very possibly the only solution to helping with the condition and 2) So many advances have been made in research that literature published even with in the last 5-10 years is outdated, let alone 20 years. Sometimes meds are needed, but often times, controllling the environmental factors help more. .Dave

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