PubMed. – "mandatory genetic regulation"?
Question:
Pablo wrote: > This, I think, is where advocacy comes in, as welll as attention to > language. For example, "AIDS victims" became "people with AIDS" or "PWA’s." > There can be only more advocacy, not less. > Pablo
That would be nice. A lot of the advocating being done for people with TS about the treatment of people with TS in the media (and some journal reports) has come from the combined efforts of participants from many different online support fora. Those who should recognize the power of language, don’t always. I was at a conference where Sheryl Pruitt actually told (jokingly) the audience (of teachers) that "children with TS can’t wear neckties." Not all of the teachers understood it was a very lame joke. Not a good rap for children with TS to have in private school admissions circles. Sheryl Pruitt has also called students with TS "clueless," resulting in the following response: http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&th=12bf19f57c203f3… "Many times we have found and continue to run into is that the greatest barrier for our son to overcome and perhaps to compensate for was/is the lack of teacher understanding. Now, here are two of the most well recognized names in the field of educational advocacy for those with TS and TS+ and they come up with a title for their session that labels the child — a practice that perpetuates the gross misunderstandings in our schools and a real blow to a child’s self esteem. Perhaps a better introduction than the term ‘Clueless Student’ will better serve their intended purpose for the session. Pat W who found it quite provocative that the titles of the other sessions label the behavior, not the child." The TSA, in a well-publicized gaffe, succumbed to apparent special-interest pressure and actually printed a brochure titled "Repeated Anger Generated Episodes" or R.A.G.E., unnecessarily burdening people with TS with a new acronym, when the very research results being discussed in the article showed that "rage" was not associated with TS (and they barely mentioned that well into the brochure)! It is too bad that that online TS support fora have been undermined for several years, as they have often been the first and a very effective voice in advocating for folks with TS. http://tourettenowwhat.tripod.com/DrLauraTS.htm Again, does anyone know if, or think the TSA even addressed the article by Rhoda Yen? — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com
Response:
"TSN" <t…@optonline.net> wrote in message
news:41594690.C0E851B8@optonline.net… – Hide quoted text — Show quoted text -> Pablo wrote: > > This, I think, is where advocacy comes in, as welll as attention to > > language. For example, "AIDS victims" became "people with AIDS" or "PWA’s." > > There can be only more advocacy, not less. > > Pablo > That would be nice. > A lot of the advocating being done for people with TS about the treatment of > people with TS in the media (and some journal reports) has come from the > combined efforts of participants from many different online support fora. Those > who should recognize the power of language, don’t always. I was at a conference > where Sheryl Pruitt actually told (jokingly) the audience (of teachers) that > "children with TS can’t wear neckties." Not all of the teachers understood it > was a very lame joke. Not a good rap for children with TS to have in private > school admissions circles. Sheryl Pruitt has also called students with TS > "clueless," resulting in the following response:
http://groups.google.com/groups?hl=en&lr=&ie=UTF-8&th=12bf19f57c203f3… – Hide quoted text — Show quoted text -> "Many times we have found and continue to run into is that the greatest > barrier for our son to overcome and perhaps to compensate for was/is > the lack of teacher understanding. Now, here are two of the most well > recognized names in the field of educational advocacy for those with > TS and TS+ and they come up with a title for their session that labels > the child — a practice that perpetuates the gross misunderstandings > in our schools and a real blow to a child’s self esteem. Perhaps a > better introduction than the term ‘Clueless Student’ will better serve > their intended purpose for the session. > Pat W who found it quite provocative that the titles of the other > sessions label the behavior, not the child." > The TSA, in a well-publicized gaffe, succumbed to apparent special-interest > pressure and actually printed a brochure titled "Repeated Anger Generated > Episodes" or R.A.G.E., unnecessarily burdening people with TS with a new > acronym, when the very research results being discussed in the article showed > that "rage" was not associated with TS (and they barely mentioned that well into > the brochure)! > It is too bad that that online TS support fora have been undermined for several > years, as they have often been the first and a very effective voice in > advocating for folks with TS. > http://tourettenowwhat.tripod.com/DrLauraTS.htm > Again, does anyone know if, or think the TSA even addressed the article by Rhoda > Yen?
Thanks for the links. Very interesting reading. I agree with you that language usage is very important. Pablo – Hide quoted text — Show quoted text -> — > Tourette Syndrome – Now What? > http://tourettenowwhat.tripod.com
Response:
- Hide quoted text — Show quoted text -TSNW wrote: > Hurricane Blurt wrote: > > In article <414a0…@dnews.tpgi.com.au>, > > Lara wrote: > > >I was just checking out a couple very new entries in OMIM for Tourette > > >Syndrome. In the trail I followed after that I came across an entry in > > >PubMed that has no abstract. > > >I have a question: Mandatory genetic regulation… what does that mean? > > >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&… > > >Law Psychol Rev. 2003 Spring;27:29-54 > > >Tourette’s syndrome: a case example for mandatory genetic regulation of > > >behavioral disorders. > > >Yen RJ. > > >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. > > >PMID: 15237537 [PubMed - indexed for MEDLINE] > > >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat… > > http://www.law.ua.edu/lawpsychology/ > > http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm > > http://www.jones-foster.com/delnewsletter0501.htm > I’m still waiting for the full article, but I ordered it quite a few days ago … snail mail …
Now I’m on to you, Blurt … this post didn’t wrap correctly … are you the culprit with line wrap set too long that is messing with my Netscape 4.7 ??? 
— Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com
Response:
Top Post. Maybe I’m the culprit. I had it set at the default of 76 since reformatting. I put it down to 70 now. I’m sorry. – Hide quoted text — Show quoted text -"TSNW" <t…@optonline.net> wrote in message > TSNW wrote: > > Hurricane Blurt wrote: > > > In article <414a0…@dnews.tpgi.com.au>, > > > Lara wrote: > > > >I was just checking out a couple very new entries in OMIM for Tourette > > > >Syndrome. In the trail I followed after that I came across an entry in > > > >PubMed that has no abstract. > > > >I have a question: Mandatory genetic regulation… what does that mean? >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&
dopt=Abstract&list_uids=15237537 – Hide quoted text — Show quoted text -> > > >Law Psychol Rev. 2003 Spring;27:29-54 > > > >Tourette’s syndrome: a case example for mandatory genetic regulation of > > > >behavioral disorders. > > > >Yen RJ. > > > >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. > > > >PMID: 15237537 [PubMed - indexed for MEDLINE] >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat h=1444%7C1624 > > > http://www.law.ua.edu/lawpsychology/ > > > http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm > > > http://www.jones-foster.com/delnewsletter0501.htm > > I’m still waiting for the full article, but I ordered it quite a
few days ago … snail mail … > Now I’m on to you, Blurt … this post didn’t wrap correctly … are
you the culprit with line wrap set too – Hide quoted text — Show quoted text -> long that is messing with my Netscape 4.7 ??? > > — > Tourette Syndrome – Now What? > http://tourettenowwhat.tripod.com
Response:
Lara wrote: > Top Post. > Maybe I’m the culprit. I had it set at the default of 76 since > reformatting. > I put it down to 70 now. > I’m sorry.
ah, I was just joshing !! I think it was the URL in the thread ?? If Netscape chokes on every long URL, it’s time for me to upgrade … — Tourette Syndrome – Now What? http://tourettenowwhat.tripod.com
Response:
In article <4150B60A.F25C4…@optonline.net>, – Hide quoted text — Show quoted text -TSNW wrote: >Hurricane Blurt wrote: >> In article <414a0…@dnews.tpgi.com.au>, >> Lara wrote: >> >I was just checking out a couple very new entries in OMIM for Tourette >> >Syndrome. In the trail I followed after that I came across an entry in >> >PubMed that has no abstract. >> >I have a question: Mandatory genetic regulation… what does that mean? >> >http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&… >> >Law Psychol Rev. 2003 Spring;27:29-54 >> >Tourette’s syndrome: a case example for mandatory genetic regulation of >> >behavioral disorders. >> >Yen RJ. >> >Jones, Foster, Johnston & Stubbs, P.A., West Palm Beach, Florida, USA. >> >PMID: 15237537 [PubMed - indexed for MEDLINE] >> >http://www.dnapolicy.org/biblio/index.jhtml?parentId=1704&id=1705&pat… >> http://www.law.ua.edu/lawpsychology/ >> http://www.law.ua.edu/lawpsychology/Recent%20Issues.htm >> http://www.jones-foster.com/delnewsletter0501.htm >I’m still waiting for the full article, but I ordered it quite a few days ago … snail mail …
Thanks TSNW, and please let us know when you’ve read it. Lara, did you actually find a reference to the article on the OMIM site? Blurt
Response:
In article <4150C46B.98109…@optonline.net>, TSNW wrote: >I think it was the URL in the thread ?? >If Netscape chokes on every long URL, it’s time for me to upgrade …
When I used Netscape, it would mess up the formatting if I ever saved a message as a draft and returned to finish it later. When you tried out Agent, it seemed to me you gave up when it wanted to send messages from your outbox when you closed Agent. To get around that, just click on "Save" in the message composition window, instead of "Send Later". If you want to un-que a message for which you’ve clicked on "Send Later", just open up the outbox (under the "Window" menu next to the "Help" menu, you’ll find "Open Outbox"), open the message and click on "Save" in the composition menu. Blurt
Response:
Hurricane Blurt wrote: > In article <4150C46B.98109…@optonline.net>, > TSNW wrote: > >I think it was the URL in the thread ?? > >If Netscape chokes on every long URL, it’s time for me to upgrade … > When I used Netscape, it would mess up the formatting if I ever saved > a message as a draft and returned to finish it later.
Didn’t do that … > When you tried out Agent, it seemed to me you gave up when it wanted > to send messages from your outbox when you closed Agent. To get > around that, just click on "Save" in the message composition window, > instead of "Send Later". If you want to un-que a message for which > you’ve clicked on "Send Later", just open up the outbox (under the > "Window" menu next to the "Help" menu, you’ll find "Open Outbox"), > open the message and click on "Save" in the composition menu. > Blurt
Thanks, Blurt … I don’t even know what I did with my Agent disk … and I deleted it from this computer … but I had way more problems that that … I was really lost. — Dork
Response:
‘Twas Tue, 21 Sep 2004 19:18:47 -0400 when all alt.support.tourette stood in awe as TSNW <t…@optonline.net> uttered: >Now I’m on to you, Blurt … this post didn’t wrap correctly … are you the culprit with line wrap set too >long that is messing with my Netscape 4.7 ???
Blurt’s message contained a long URL, which Agent passes through intact (unlike Outluck which fractures long URLs). — RB |
