Tics
Question:
http://dailynews.yahoo.com/h/hsn/20011022/hl/tics_more_common_in_kids… uspected_1.html Tourette Syndrome truly was a rare disorder, which has become quite common. The question I would love to see addressed is; Why? Why the increase over the last several years? Because of the increasing awareness that most TS is mild … all of that previously went undiagnosed.
A kid learns to hide tics. If a kid is reasonably successful tics will typically go unnoticed. Even fairly extreme tics like coprolalia can go unnoticed becuase they may only be expressed in specific situations. Don’t ask me how I know. I do. -George
Response:
Because of the increasing awareness that most TS is mild … all of that previously went undiagnosed. A kid learns to hide tics. If a kid is reasonably successful tics will typically go unnoticed. Even fairly extreme tics like coprolalia can go unnoticed becuase they may only be expressed in specific situations. Don’t ask me how I know. I do.
Yep 
— Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat
Response:
– Hide quoted text — Show quoted text – Because of the increasing awareness that most TS is mild … all of that previously went undiagnosed. A kid learns to hide tics. If a kid is reasonably successful tics will typically go unnoticed. Even fairly extreme tics like coprolalia can go unnoticed becuase they may only be expressed in specific situations. Don’t ask me how I know. I do. Yep
Do you mean they suppress them or do you actually mean "hide" them? If a kid, sniffs, coughs, scrunches up his/her nose or makes funny sounds….every so often, and they shrug their shoulders, roll their eyes or hit theirself…..how the heck do you hide that? I guess I don’t understand what a "mild" case of TS would look like? I was told my daughter’s TS was mild….. and I’m telling you guys,…..there’s no way she could have hidden it, even while on meds. She tried…..believe me she tried. Cher
Response:
- Hide quoted text — Show quoted text – http://dailynews.yahoo.com/h/hsn/20011022/hl/tics_more_common_in_kids_t han_s uspected_1.html Tourette Syndrome truly was a rare disorder, which has become quite common. The question I would love to see addressed is; Why? Why the increase over the last several years? Because of the increasing awareness that most TS is mild … all of that previously went undiagnosed. A kid learns to hide tics. If a kid is reasonably successful tics will typically go unnoticed. Even fairly extreme tics like coprolalia can go unnoticed becuase they may only be expressed in specific situations. Don’t ask me how I know. I do.
From my research, a lot of kids are able to hold it together at school, and then come home and tic like crazy for a while.
Response:
Do you mean they suppress them or do you actually mean "hide" them?
Suppress, hide, incorporate them into their mannerisms … whatever. If a kid, sniffs, coughs, scrunches up his/her nose or makes funny sounds….every so often, and they shrug their shoulders, roll their eyes or hit theirself…..how the heck do you hide that?
It depends on how often you’re doing it, how forceful the tics are, and how many different tics you have. A few shoulder shrugs, eye rolls, and sniffs can easily be camouflaged as just part of the way you are, as many people don’t know what tics are anyway. I guess I don’t understand what a "mild" case of TS would look like?
I can see that. I was told my daughter’s TS was mild….. and I’m telling you guys,…..there’s no way she could have hidden it, even while on meds. She tried…..believe me she tried.
Then you have to define what you mean by "mild" in the case of your daughter. No one has ever detected or noticed my sons’ tics, and they tic all the time. People in the know about TS see their tics right away. People who don’t know about TS have never detected them. They have just incorporated them into their everyday mannerisms. — Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat
Response:
– Hide quoted text — Show quoted text – Do you mean they suppress them or do you actually mean "hide" them? Suppress, hide, incorporate them into their mannerisms … whatever. If a kid, sniffs, coughs, scrunches up his/her nose or makes funny sounds….every so often, and they shrug their shoulders, roll their eyes or hit theirself…..how the heck do you hide that? It depends on how often you’re doing it, how forceful the tics are, and how many different tics you have. A few shoulder shrugs, eye rolls, and sniffs can easily be camouflaged as just part of the way you are, as many people don’t know what tics are anyway. I guess I don’t understand what a "mild" case of TS would look like? I can see that. I was told my daughter’s TS was mild….. and I’m telling you guys,…..there’s no way she could have hidden it, even while on meds. She tried…..believe me she tried. Then you have to define what you mean by "mild" in the case of your daughter. No one has ever detected or noticed my sons’ tics, and they tic all the time. People in the know about TS see their tics right away. People who don’t know about TS have never detected them. They have just incorporated them into their everyday mannerisms.
Are your sons tics bothersome to them? I mean, are they mild enough that they don’t really notice them all that much? Cheryl
Response:
Are your sons tics bothersome to them? I mean, are they mild enough that they don’t really notice them all that much?
Occasionally their muscles will be so sore they want a massage or a hot herbal bath. Or there eye blinking will be irritating when trying to read. Or my younger son gets a headache from the eye-rolling tics … and so on. When his TS first surfaced, my younger son had a very painful jaw thrusting tic, and an abdominal tic which caused acid reflux, but that level of pain hasn’t happened for about four years. — Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat
Response:
Are your sons tics bothersome to them? I mean, are they mild enough that they don’t really notice them all that much? Occasionally their muscles will be so sore they want a massage or a hot herbal bath.
Sore to the touch? Or just "I feel like I was working out much too hard"? See, the bit about abdominal tics causing acid reflux made me start to wonder: Or there eye blinking will be irritating when trying to read. Or my younger son gets a headache from the eye-rolling tics … and so on. When his TS first surfaced, my younger son had a very painful jaw thrusting tic, and an abdominal tic which caused acid reflux, but that level of pain hasn’t happened for about four years.
Is there any reason that you couldn’t have tics in other places, like your back muscles twitching, or your abdominal muscles clenching, or whatever? If they can twitch enough to cause pain, I wonder if that intersects with fibromyalgia and/or irritable bowel syndrome. (That’s why I asked the ’sore to the touch’. There are times when the pressure of my hand on my wife’s back – just the weight of the hand being placed gently there – hurts her badly.) — Everything I needed to know in life I learned in Kindergarten. Like: Shock and grief can rip you apart, but love can help knit you back together. Be loving, and understanding – there’s too much pain out there already.
Response:
Occasionally their muscles will be so sore they want a massage or a hot herbal bath. Sore to the touch? Or just "I feel like I was working out much too hard"?
The latter – never the former (in our case. I don’t know if that can be generalized, though?) See, the bit about abdominal tics causing acid reflux made me start to wonder: Or there eye blinking will be irritating when trying to read. Or my younger son gets a headache from the eye-rolling tics … and so on. When his TS first surfaced, my younger son had a very painful jaw thrusting tic, and an abdominal tic which caused acid reflux, but that level of pain hasn’t happened for about four years. Is there any reason that you couldn’t have tics in other places, like your back muscles twitching, or your abdominal muscles clenching, or whatever?
I think you can have a tic in any muscle. If they can twitch enough to cause pain, I wonder if that intersects with fibromyalgia and/or irritable bowel syndrome.
I’ve never come across that kind of info specifically, but I don’t see why not? (That’s why I asked the ’sore to the touch’. There are times when the pressure of my hand on my wife’s back – just the weight of the hand being placed gently there – hurts her badly.)
This is out of my league, but my son had a very serious bout with Lyme disease, and one doctor wanted to call it fibromyalgia so I had to learn about fibro, and from what you’re saying that sounds more like fibro type of pain than tics to me … but that’s just a guess??? I haven’t come across people describing tic soreness as similar to fibro soreness, but then, I’ve never asked the question before either. — Everything I needed to know in life I learned in Kindergarten. Like: Shock and grief can rip you apart, but love can help knit you back together. Be loving, and understanding – there’s too much pain out there already.
– Tourette Syndrome – Now What? http://members.home.net/tourettenowwhat
