MY TEEN TWIN SISTER AND I HAVE TS
Question:
Hi>Hello, – Hide quoted text — Show quoted text ->>This is my first time on news group, I am so happy that I found I found this >>on the internet. I am a 16 year old female diagnosed with TOURETTES >>SYNDROME and depression. My sister and my identical twin has TS but not >>near as bad as me. >>Tourettes Syndrome definitely runs my life from morning to night. I am so >>annoyed with my tics and am sick of living with this but I know I have to >>continue. Having depression that runs in the family dosen’t make my TS any >>better. I wake up every morning and take my orap and try to get through the >>day as best as I can. I have learned to deal with my TS and quite frankily >>I don’t think I can be embarrased by my tics like many are because they are >>constantly there. They’re a part of who I am. People ALWAYS ask me if I’m >>cold or ask "what’s wrong?" I respond the best way I know how, "Yea, I’m OK, >>I always do that." "It’s a habit" is what I tell them. They tell me that >>they don’t see it in my sister and I think how lucky she is. But in my >>heart I know what the neurologists have diagnosed me with. After all, all >>those tests had to prove something. Only a few people at school know what I >>have and barely understand it but that’s ok if everybody knows that I have >>TS because I’m not ashamed of it. >>What I’m trying to say is that it’s very hard to have TS in this world >>because a lot of people don’t understand it and they make assumptions. >>Sometimes I feel that people will neglect my friendship because they feel >>that I am retarded. I have bad impulses (that’s how I get my tics out). >>Sometimes I’ll be sitting in one of my classes and start shaking and jerking >>so bad that people look back at me and just stare. It seems like I’m having >>a seizure or something. But I am constantly shaking or jerking all over my >>body… I know how many of you feel. >>I sometimes say things I don’t mean just because I need some kind of relief >>from my tics. When I get nervous or very stressed out, my tics are severe. >>I can’t ever give oral reports because I get so bad that I can’t stand or I >>will collapse. I don’t allow myself to get emotional because that only >>causes the tics to get worse. Caffeine, and chocolate, and sugar are >>definitely NO NOs because I have seen what they have done with my TS, they >>make them horrible. >>When I talk my voice has tics in it, I mean I shake and that messes up my >>talking. I think my metabolism is sky high because of my TS. I constantly >>feel that I have to be doing something. I am hardly ever comfortable and am >>constantly moving around. Some days I feel like I could run for miles. >>I try to excersise as much as possible. This wears me out. And then I am >>tired and relaxed. I try not to sleep to long, maybe 7 hrs. a night, on >>school nights because then I will be tired in the morning and relaxed >>throughout the day. >>My handwriting is terrible, many cannot decode it and sometimes I can’t >>either. >>I have to say that I love my life but I wish somebody could give me >>significant help with my TS. I enjoy writing, swimming, playing tennis. I >>love Sting the rock singer and X-files, the show on TV. I love astronomy >>too. >>THANK YOU FOR LISTENING, : ) >Hi my name is Jennifer but everyone calls me Jenn. I am 16 and I have Ts and >OCD. This year has been a very rough year for my Ts so I can sympathize with >you. I love drama and my tics seem to disappear when I act which I LOVE! But >I get embarressed REALLY easily with my Ts. The other week I got kicked out of >class cause of my Ts my teacher felt uncomfortable. Oh well she is gone now so >I don’t need to worry. >Talk to ya later, >JennH
HI JENN. So nice to hear from you. Oh let me tell you, I know how you feel, I always picked at myself just to get my tics out, the neurologist looked into to see if I had OCD. I definitely act on impulses a lot. I LOVE to act to. It is hard for me though, but it’s like torture because I love to act and express myself but then I tic all the time and I never no when I’m going to have a jerking "seizure" (that’s the best way to describe it) One of my good friends died not very long ago and it was very hard to handle; my TS was unbearable at times during this period. When you say your teacher is gone, what do you mean? I think that is just stupid that she kicked you out of class, but she’s probably the type to that would never understand TS. Thanks for Listening ; )
Response:
Wow. My heart really goes out to you. I know how it is as a teenager with ts. BUT, you will find friends that will get to know you as you are and like you and soon they won’t notice your tics. ts is one of the hardest syndromes/diseases whatever to have and deal with. I am lucky I have a beutiful wife and a great job and marriage and lots of friends. I’m older though and it was tough iin school to have friends. I probably only had one or two close friends that truly ignored my ts. This is a great news group and there is lots of support here. You may need to increase your orap dosage or try another drug. There are many out there. Orap didn’t do a bit of good for me. Any time you need to get something off your chest you can e-mail me and I will respond, cause kiddo I’ve been there. I have 2 e-mail acounts.God is always there to listen to sweety! boo…@pdq.net tommy_pa…@hotmail.com
Response:
>Caffeine, and chocolate, and sugar are >>>definitely NO NOs because I have seen what they have done with my TS, they >>>make them horrible.
This is aside from your point of writing this, but I wanted to say, thanks for sharing this because I have had trouble with these things also and it helps to know I’m not just imagining this. I have found though that dark chocolate causes less problems because possibly it has less sugar. "High fructose corn syrup" and other pure sugar concoctions definitely cause a problem for me.
Response:
Hi my name is jose but my screen name is S0CCER1021 and although i don’t have TS i did a report on it and i can kind of understand what you are going through but not really but if you ever need to talk just IM me and i’ll be happy to talk to you i’m 16 male. well good luck in what ever you do.
Response:
Hi i`m 22years old i have ts it was hard growing up with this but i never gave up & no matter what anybody thought i did not let the bad bother me . i grew up in nyc & lived there for 21 years & there right when they say if u can make it there u can make it any where . so u CAN do it & if any one with ts needs a friend & i mean TRUE friend e-mail me 24-7 splitlev…@webtv.net i wish you all the best !!!!!!! peace & love, George Watson (douglasville ,GA)
